Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Advice For A New Mom?


Emily Elizabeth

Recommended Posts

Emily Elizabeth Enthusiast

Hi everyone,

I'm due on April 8th and of course don't know if my daughter will have Celiac Disease or not. Of course I'm not eating gluten now, and I was told not to feed her gluten until she is at least a year old in hopes of preventing celiac disease. Do any of you have any additional advice?

Thanks!

Emily


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



nmlove Contributor

Congratulations! Having a baby is such a blessed event. As far as food introduction, the AAP now officially says to wait until 6 months for any food. Last I knew 6-8 months was the "magic" window for introducing gluten. We threw that out at my house. Both my boys, diagnosed celiac, were introduced at that time. With our third (who's 7 months) we decided to keep her gluten-free. We actually enrolled her in a study. Genetic testing's been done. Because of her age she's in an observational group so we could offer her gluten if we wanted to. But we don't. We're going to wait until she's old enough to let us know if it's bothering her. Besides, our house is mostly gluten-free. Any gluten is brought in from the outside, usually by my husband. And it's not really anything I'd want her eating anyway! If you want any info on the study, I'll be glad to give it to you. It's through the University of Maryland. You could even go directly there and read up on it.

tarnalberry Community Regular

Congratulations! Having a baby is such a blessed event. As far as food introduction, the AAP now officially says to wait until 6 months for any food. Last I knew 6-8 months was the "magic" window for introducing gluten. We threw that out at my house.

The researched "magic window" so far is actually 4-6months. Open Original Shared Link, Open Original Shared Link

Why they tested that time frame, when all the recommendations are to avoid solid food when possible before 6 months is beyond me, but that's what the research shows. I'm almost certainly going to wait until after a year, as there are all kinds of other foods I'd rather introduce before grains, and we're probably going to keep the house primarily gluten free, with her only exposure being outside the house (and maybe, eventually, to daddy's oatmeal :) ).

jmengert Enthusiast

I'm currently 19 weeks pregnant, and I've been doing a lot of research on this, too. My plan is similar to Tiffany's: I plan to breastfeed for hopefully a year, introduce solids at 6 months or so, and avoid gluten entirely for the first year. Other than the limited gluten that my husband brings into the house, our house is gluten free, so he/she will be eating gluten free, as well, at home. Outside of the house, after a year old, I'll probably allow gluten at that point.

hez Enthusiast

my only advice is to go on a date! seriously, once the baby is born it will be awhile before you and your hubby have a date:)

hez

nmlove Contributor

The researched "magic window" so far is actually 4-6months. Open Original Shared Link, Open Original Shared Link

Why they tested that time frame, when all the recommendations are to avoid solid food when possible before 6 months is beyond me, but that's what the research shows. I'm almost certainly going to wait until after a year, as there are all kinds of other foods I'd rather introduce before grains, and we're probably going to keep the house primarily gluten free, with her only exposure being outside the house (and maybe, eventually, to daddy's oatmeal :) ).

Thanks for the correction. I remembered wrong. Where's my brain? Oh yeah, probably taken away by my 3 little ones! :)

elle's mom Contributor

Just reading this thread and wondering why all these daddy/husbands are bringing gluten in almost gluten free homes...........mine too! lol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



tarnalberry Community Regular

Just reading this thread and wondering why all these daddy/husbands are bringing gluten in almost gluten free homes...........mine too! lol

For us anyway, it's because that's how we decided to do things. My husband is a picky eater, and I trust him to be responsible for his own things. So he has a shelf (that I can't really even reach) for his cereal, granola bars, and oatmeal. He has a toaster and cutting board for frozen waffles and french bread. Everything else is gluten free. It works for us, and though it might not work for everyone, has been fine so far.

nmlove Contributor

Just reading this thread and wondering why all these daddy/husbands are bringing gluten in almost gluten free homes...........mine too! lol

Mine has a horrible habit of not eating breakfast and even worse, many days at work he ends up skipping lunch because he's so busy. Let's just say he has bad eating habits and leave it at that. :) I'm sure you all know you can't change someone else... And because he eats what I make for dinner, he wants his "gluten" some time (not really gluten, just junkier food, imo, that just so happens to contain gluten). So he'll have bread, frozen pizza or something later at night (he's a night owl). He has a vertical strip in the kitchen to use. A cupboard to store food, a piece of the counter to hold a toaster oven and to prepare his food and a lower cabinet to store pans/other stuff. It works for us. The few times he eats it around the boys we just have to say no. Sometimes they look a little sad but they're getting past that.

T.H. Community Regular

Well, one bit of advice I don't think I read yet. :-)

If you are breastfeeding when you introduce gluten, it increases the chances of at least delaying the onset of celiac disease, if not helping prevent it. However, it can also lessen the symptoms of the disease, which can make it less likely for a doctor to diagnose it.

That's what happened with my kiddo. I introduced gluten while breastfeeding, and my daughter probably developed celiac around 8 years old, but with no gut symptoms. Nothing at all aside from some behavioral issues and a bit of exhaustion, so she didn't get diagnosed until someone else in the family did and I requested that she be tested.

So...just be vigilant, would be my advice! And if you want someone who is gluten knowledgeable, you're more likely to get one in a younger pediatrician. The older doctors were all taught that not only was celiac rare, but that it only happened with gut symptoms. :-(

Take care, and congrats on the upcoming little one!

Hi everyone,

I'm due on April 8th and of course don't know if my daughter will have Celiac Disease or not. Of course I'm not eating gluten now, and I was told not to feed her gluten until she is at least a year old in hopes of preventing celiac disease. Do any of you have any additional advice?

Thanks!

Emily

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,327
    • Most Online (within 30 mins)
      7,748

    dnamutant
    Newest Member
    dnamutant
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.