Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Argh I Got Glutened!

sandsurfgirl

By sandsurfgirl
in Coping with Celiac Disease

Recommended Posts

sandsurfgirl Collaborator
sandsurfgirl
Posted

I have been gluten free for 2 weeks now. We ate at Wendy's last night and I think I got glutened.

I had a baked potato but put my own butter on it at home. I had a side salad which doesn't contain croutons and I put my own salad dressing on it at home. But... I also had the chili. It's supposed to be gluten free but I think somehow it was contaminated. That is the only food I can trace it back to.

So... today I had dizzy spells all morning. Alternating between C and D today. Fatigue in the afternoon and brain fog in the evening, as well as horrible bowel pain in my side for a large part of the day.

Wahhhhhh!!! I hate this. I have to eat out sometimes. My life is SO busy. That was my 3rd time eating out and the first two went great. I'm so new at this and a setback like this really stinks.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

As hard as it is going to be I would strongly suggest that you avoid eating out anywhere for a while. You will be taking less risks and will heal faster. I am sorry you are feeling so badly, it is hard at first. Some of us find it helpful to always carry a supply of safe for sure gluten free snacks and investing in a thermos and a insulated lunch bag can help. That way we can still have something hot or cold that is safe for us to eat. This lifestyle does take some preperation for daily food needs that takes a bit of getting to used to. But you will get the hang of it. I hope you feel better soon.

TrillumHunter Enthusiast
TrillumHunter
Posted

It's hard at first to tell if you truly ate gluten or your poor damaged insides just couldn't handle what you ate that day. That's why you'll find so many of us warning the newly diagnosed to avoid gluten-free replacements (cookies, breads and such) and eating out for a while. The damage wasn't done in a few weeks and it's not going to heal in a few weeks. Even eating completely gluten-free, you'll still have periods of gluten like symptoms. That can last months. I didn't listen at first and it wasn't until I gave up dairy and gluten-free replacements that I really started to heal. I had an endoscopy a year after I went gluten-free and I still had spots of mild damage.

Slow down. Give yourself a break and the chance to heal.

HTH

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

I was wondering if it's a glutening or just too complicated food for my system. You are right about not eating out. I've only done it a couple of times when I just did not have the time to pack food.

The gluten free substitutes are really tough for me to digest right now too. I posted on another thread that I was worried about reacting to xanthan gum or tapioca. I am going to lay off those for awhile too.

This healing business is not fun.

OptimisticMom42 Apprentice
OptimisticMom42
Posted

Hello sandsurfgirl,

Wow chili after only two weeks - you're pretty brave. I've only started eating the chili at our local Wendy's in the last couple of months. The last container of it came with cracker crumbs on the outside of the lid. I ate and wasn't sick but I will talk with the manager the next time I visit them! Anyhow, the first couple of months I had a hard time digesting anything with a lot of carbs in it, had to stick with meats and low carb veggies for a bit.

Hope this helps, RA

sandsurfgirl Collaborator
sandsurfgirl
Posted
  • Author

Hello sandsurfgirl,

Wow chili after only two weeks - you're pretty brave. I've only started eating the chili at our local Wendy's in the last couple of months. The last container of it came with cracker crumbs on the outside of the lid. I ate and wasn't sick but I will talk with the manager the next time I visit them! Anyhow, the first couple of months I had a hard time digesting anything with a lot of carbs in it, had to stick with meats and low carb veggies for a bit.

Hope this helps, RA

I know. What was I thinking? :lol: I was hungry and knew the chili was supposed to be gluten free. If I get in a pinch like that again I will be smart and go for a baked potato and plain salad or something easy to digest.

Tvaculin Newbie
Tvaculin
Posted

Hi there , Im new to this forum but very excited to have found it. My mother had celiac her whole life and my two daughters have it as well. I'm pretty much gluten free myself and have found that MOST places that say they have a gluten free menu or food actually cook the food in the same kitchen using the same pans etc. With that in mind its almost a waste to go to those places because in my experience my girls always end up sick with gluten symptoms. I definately would stay as far away from fast food places as possible...There is no way they have anything close to a gluten free kitchen. I do think ppl have different levels of sensitivity to gluten as well so what I did with my girls was just slowly introduced them to new (as long as it was gluten free) and see how they do.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,171
    • Most Online (within 30 mins)
      7,748
    kyle68j
    Newest Member
    kyle68j
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • DAR girl
      Celiac and allergic to common subs and adds in prepared foods

      By DAR girl · Posted

      Looking for help sourcing gluten-free products that do not contain potato or corn derived ingredients. I have other autoimmune conditions (Psoriatic Arthritis and Sjogrens) so I’m looking for prepared foods as I have fatigue and cannot devote a lot of time to baking my own treats. 
    • Scott Adams
      Disregarded

      By Scott Adams · Posted

      I am so sorry you're going through this. It's completely understandable to feel frustrated, stressed, and disregarded after such a long and difficult health journey. It's exhausting to constantly advocate for yourself, especially when you're dealing with so many symptoms and positive diagnoses like SIBO, while still feeling unwell. The fact that you have been diligently following the diet without relief is a clear sign that something else is going on, and your doctors should be investigating other causes or complications, not dismissing your very real suffering. 
    • Oldturdle
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By Oldturdle · Posted

      It is just so sad that health care in the United States has come to this.  Health insurance should be available to everyone, not just the healthy or the rich.  My heart goes out to you.  I would not hesitate to have the test and pay for it myself.  My big concern would be how you could keep the results truly private.  I am sure that ultimately, you could not.  A.I. is getting more and more pervasive, and all data is available somewhere.  I don't know if you could give a fake name, or pay for your test with cash.  I certainly would not disclose any positive results on a private insurance application.  As I understand it, for an official diagnosis, an MD needs to review your labs and make the call.  If you end up in the ER, or some other situation, just request a gluten free diet, and say it is because you feel better when you don't eat gluten.      Hang in there, though.  Medicare is not that far away for you, and it will remove a lot of stress from your health care concerns.  You will even be able to "come out of the closet" about being Celiac!
    • plumbago
      Paying for my own Celiac screening at WalkInLab so a positive result doesn’t become part of my medical history

      By plumbago · Posted

      Yes, I've posted a few times about two companies: Request a Test and Ulta Labs. Also, pretty much we can all request any test we want (with the possible exception of the N protein Covid test and I'm sure a couple of others) with Lab Corp (or Pixel by Lab Corp) and Quest. I much prefer Lab Corp for their professionalism, ease of service and having it together administratively, at least in DC. And just so you know, Request a Test uses Lab Corp and Quest anyway, while Ulta Labs uses only Quest. Ulta Labs is cheaper than Request a Test, but I am tired of dealing with Quest, so I don't use them so much.
    • Scott Adams
      Does Dailymed.nlm.nih.gov site have filters for gluten?

      By Scott Adams · Posted

      PS - I think you meant this site, but I don't believe it has been updated in years: http://glutenfreedrugs.com/ so it is best to use: You can search this site for prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
×
×
  • Create New...