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Introducing Myself


JennyRey

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JennyRey Rookie

Hi..

I am Jenny and I am from New Orleans, La. I am new to the whole Celiac Nation and need friends who have like symptons.

Thanks,

Jenny :rolleyes:

Geaux Saints!


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LucyMarci Newbie

Hi Jenny! I am also from New Orleans (born and raised) but now I live in Miami. I am SO EXCITED about our huge victory - NFC Champions!!! Geaux Saints, WHO DAT?!

Anyway, I return to Nola all the time because my family is still there, and there are quite a few places I can recommend for gluten free.

P.F. Changs (Lakeside) has a great gluten free menu

Naked Pizza (uptown) has a gluten free menu, their pizzas are so delicious I had one when I was home over Christmas.

Casementos (uptown) fries all their seafood in cornmeal so it's gluten free, says so on their website.

Whole Foods has so many gluten free foods in their store, they've really helped me in Miami and Nola.

Sushi is pretty easy to eat on a gluten free diet, just avoid soy sauces, imitation crab, and fried dishes. (I've eaten at Little Tokyo, Sake Cafe, Shogun)

Chilis has a gluten free menu, as well as Wendys, Burger King... places like that, which you may be familiar with.

I ate at Galatoire's over Christmas too and they were accomodating... made me a steak plain in a clean pan.

Are you still having symptoms? How long ago was your diagnosis? I have been gluten-free for eight or nine months now. I was diagnosed last summer, after years and years and years of mis-diagnoses, symptoms... it was awful. I am so thankful to be a Celiac and to feel better!

Lucy

curlyfries Contributor

Hi Jenny! You'll find lots of friends here :)

Sorry, but......GO COLTS!!!! :D

JennyRey Rookie

Thanks Ladies,

I have had symptoms for my whole 37 years of life. I dont ever remember a time when I didnt get the rash like pustules in between my fingers. I am 5" tall which is smaller than anyone else in my family. The pains have always been there. I have been to other doctors who have told me I had IBS, Crohn's Disease, gall bladder problems, I was also told that the pain was due to having my tubes tied 15 years ago. I had learned to live with them but it became too much when it interfeered with my volunteer work (I volunteer with ARNO Animal Rescue New Orleans). I am depended on by both the dogs and my other co-volunteers to be there since I am a lead volunteer and when you are unsure how your stomach is gonna react..well you all know. Anyway I had an appointment with a GOOD gastroenterologist for the past 6 months and she looked me over and did a battery of blood work and well..you know what the results were.. so here I am. Thank you for all the restaurant help. My 18th anniversary is tomorrow and we were at a loss of where to go.

Wonderful to meet you all!!

JennyRey Rookie

Also, ladies..

I am on facebook all day at work.. Please find me so I can have some Celiac people on my site. :)

I am under Jennifer DeMarco Reynolds

Thanks!

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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