Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

How Do You Cope With The Health Side?


Coleslawcat

Recommended Posts

Coleslawcat Contributor

Ever since being diagnosed I've been learning more and more about all the potential long term problems. Of course, the increased risk of cancer is highest on my worry list. I know for most cancers the risk goes down after 5 years gluten-free, but seeing as I was just diagnosed a month ago that is still 5 years off. I'm having a relatively easy time handling the adjustment to gluten-free, but I am just paranoid about my health now. This morning I woke up with a swollen painful lymph node in my neck. Prior to my diagnosis I would have shrugged it off and thought nothing of it. Instead I am fraught with worry and made an appointment to see my PCP. Am I the only one reacting this way? I feel so out of control about my health now. I took up jogging earlier this month as an attempt to regain some control of my health since I feel as if I lost so much.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



RiceGuy Collaborator

Well, I try not to worry myself over it too much. I just eat the healthiest I know how, and take the supplements that I find helpful. I mean, what else could I do? As far as I can see, doctors are basically useless until something goes wrong. It's damage control, not health care. Caring for one's health is up to each of us to do for ourselves.

Some people do all sorts of foolish things that the rest of us know will come back to bite them later, while others worry like a hypochondriac over everything. If I have cancer or something lurking, I actually don't want to know. I want quality of life, not quantity. I'd rather have a short healthy life than a long, sickly one. Every person I have ever known who died prematurely, went downhill like a freight train once a doctor diagnosed them. Before that point, the problem didn't seem so severe. So I think once you make up your mind that you're seriously ill, the body follows suit and allows itself to experience the full potential of how sick you think you are. I think the placebo effect works both ways. That is, a sugar pill can make someone feel better if they believe it will, and the belief that something is wrong can actually manifest the problem.

I heard a saying once; The thing about life is that nobody gets out alive.

We're all going to bite the bullet some day. So you can either enjoy the time you have, and make the best of it, or you can spend that time worrying about the end of it.

jackay Enthusiast

The chances are you will not get cancer within the next five years. By staying gluten free, you may be preventing cancer in the years to come after that. Think if it this way, there is a chance of getting cancer now, but even less of a chance of getting it after five years. Hopefully each day closer to the five years, you are that much further away from cancer.

If you are feeling ill because of gluten, you may be a lot less worried about getting sick once you start feeling better. I worried about so much at first because I was feeling so lousy. Once I started feeling better, the worrying went away.

woodnewt Rookie

I take each day as it comes. No point in worrying about something that hasn't happened yet.

Reba32 Rookie

Now that you know what was making you sick, and how to prevent future illness, the chances of actually getting sick are less.

For myself, I know that because I was undiagnosed for so long, that my lifespan is likely to be shortened from the average, but still, I have an Aunt who is 94 this year and she still lives on her own! So I know the genes are good, but who really wants to live that long anyway! ;)

Just take care of yourself now, and that'll take care of later.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748

    MARYANN RICHARDS
    Newest Member
    MARYANN RICHARDS
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.