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I Don'T Know If I Can Do This...


Nightingale8472

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Bobbijo6681 Apprentice

I think it is AWESOME that you are seeing results and finding the "light" at the end of the tunnel. It took me a couple of weeks to get over the initial shock. I am SOOOOO not perfect yet, but I am starting to see the positive side of this and am really ok with it now.

I hope everything continues to go well for you!!!


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ravenwoodglass Mentor

Nightingale, It is great to hear things are going well. It great that you have had so many good restaurant experiences. It is wonderful when those migraines go away!

AKcollegestudent Apprentice

I am really, really glad that it looks like it's working. Hopefully, it keeps working.

sandsurfgirl Collaborator

Wow that's so great!! I'll have to write all these restaurants down as you post. ;)

In N Out is very accomodating. I called their corporate office and they were wonderful on the phone.

We haven't eaten out that much yet. I wonder if the Yard House has any gluten free beer??? With all the ones they have on tap there has to be something right?

CHARBEEGOOD Newbie

You might not be able to have Guinness, but as I recall, most pubs have cider, and nobody will look at you weird for ordering it or asking for it. The bartenders there suggested it to me often, because in their experience, the "yanks" knew about guinness, but the cider was something new to share!

Bulmers is one of the more popular brands, and they confirm on their website that the pear cider is gluten free... they don't mention the others (the pear is new, so their FAQ is all about it), but various places on the web say it's gluten free.

* Bulmers Original Cider

* Bulmers Pear Cider

* Bulmers Mid-Strength

* Bulmers Light

* Linden Village Cider

* Strongbow Cider

* Samsons Cider

* Ritz Crisp Dry Perry

They're sold outside Ireland under the brand name Magners. I can confirm that the original, the pear, and Strongbow are all really good! A lot of the pubs here in the US carry Strongbow cider.

Also, cider sold under then name Bulmer outside Ireland (the name is owned by Heineken outside Ireland...Bulmers Ireland uses Magners outside IE) in original and pear is gluten free.

I guess when my friends are all having a beer I'll have to have cider instead. I'm a skydiver...that's going to be tough for me. Beer is part of our culture. Whenever you do something for the first time (get your license, have a parachute malfunction and use your reserve, do something really cool), we say you "owe beer", which means you bring beer for all your friends so you can all sit around the bonfire and share the beer and the story. My headaches have pretty much kept me on the ground for the last few years. Maybe going gluten free will get my butt back up in the air. I'll just have to be sure to keep some cider in the cooler.

Thank you for the cider information. It had completely slipped my mind. I have been a wine, gluten-free beer, margarita or rum drinker since starting my "diet exploration". This just gives me another option and the fun of find the one I like the best..

Going Gluten Free does not mean missing out! You will find that many no-gluten-free persons have not tried all the things you will. Ground Wheat flour is easy "sorghum" rice or almond flour is branching out trying new things and some really tasty treats as well.

Reba32 Rookie

that's great that you're not feeling all deprived and that you're still getting out.

Normally I don't prefer Outback (I think they're very overpriced!) but heck, if they have a gluten free menu, I might just put them back on the list of places to eat.

My Australian friends think its funny though. It's not really Australian food. ;)

Nightingale8472 Rookie

that's great that you're not feeling all deprived and that you're still getting out.

Normally I don't prefer Outback (I think they're very overpriced!) but heck, if they have a gluten free menu, I might just put them back on the list of places to eat.

My Australian friends think its funny though. It's not really Australian food. ;)

Their gluten-free menu is about five pages long! There's tons of choices! It mostly tells how to modify the regular menu items, like:

"Victoria Filet Mignon, 7 or 9 oz. gluten-free- Avoid bleu cheese or horseradish crumb crust"

Or points out which items are gluten-free to begin with, like the dessert with the flourless chocolate brownie and ice cream.


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    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
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