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How Do I Avoid Gluten?


antmimi

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antmimi Rookie

I want to know lists... What do I avoid? How do I avoid it if I don't know what carries gluten? Being given the celiac blood test this week and hurting, hurting, hurting...

Shampoos, toothpastes, soaps, drinks, cream cheese? Where do I get these lists?


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KaitiUSA Enthusiast

Do not go gluten free before all testing is complete. This may interfere with tests.

Here are some brands of food that will list right on the label wheat,rye,barley,or oats or they will be safe.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

The forbidden list will help you out...I gave you the link to that in your other post.https://www.celiac.com/st_main.html?p_catid=12

Here it is again and the forbidden list will help you as a guideline for what is questionable and what you need to avoid.

I eat Kraft cream cheese..all you have to do is check the label because they will not hide anything...these companies are a Godsend.

Toothpastes...all Crest and Colgate is gluten free

Dove is a brand that will not hide anything either so I use their shampoo, soap, conditioner and hairspray

Softsoap liquid soap is gluten free

https://www.celiac.com/st_main.html?p_catid...-17105445293.27

This is a link to some mainstream items lists of some stuff that is gluten free

All pepsi, co. softdrinks are gluten-free, coke has a list they'll send you.Try to avoid generic brands. Don't get the supermarket colas, as they aren't necessarily gluten-free. You often need to call to check.

100% juices are gluten free

Milk is gluten free and some soymilk is but with soymilk you need to check from brand to brand. I love silk soymilk and they have alot of gluten free products.

There are alot of great gluten free foods its a matter of finding the brands that are good...everyone here will help you out..

If you have any questions just ask :D

antmimi Rookie

You don't know what a blessing you are. I am going gluten free before those tests because I HURT!!!!!!

If tests come back negative, OH WELL!!!!

Canadian Karen Community Regular

Also, the delphi list is also a godsend. I don't go shopping without it.....

www.delphiforums.com

click on Health & Wellness on the left hand side.

The first forum to pop up is the celiac forum.

Their list is in convenient category form. Makes it easier for shopping.

Karen

KaitiUSA Enthusiast

Yes, I forgot about that. The Delphi list is 79 pages long and awesome. celiac3270 posted about it and gave directions for how to get it:

1) Go to the website, Open Original Shared Link

2) Click on "messages" or "start reading"

3) Select the folder "gluten-free Product List"

4) Click on the topic called "Downloadable files word"

5) Of the four options, choose the one in the upper right.

antmimi Rookie

What's so frustrating is that while coke and icecream can be gluten free often they have CORN in them!!!!

That's ok. Don't think I'll be doing milk for a while cause I am hurting... Staying away from starchies for a while.

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    • trents
      You might consider asking for a referral to a RD (Registered Dietician) to help with food choices and planning a diet. Even apart from any gluten issues, you will likely find there are some foods you need to avoid because of the shorter bowel but you may also find that your system may make adjustments over time and that symptoms may improve.
    • Ello
      I wish Dr’s would have these discussions with their patients. So frustrating but will continue to do research. Absolutely love this website. I will post any updates on my testing and results.  Thank you
    • trents
      Losing 12" of your small bowel is going to present challenges for you in nutritional uptake because you are losing a significant amount of nutritional absorption surface area. You will need to focus on consuming foods that are nutritionally dense and also probably look at some good supplements. If indeed you are having issues with gluten you will need to educate yourself as to how gluten is hidden in the food supply. There's more to it than just avoiding the major sources of gluten like bread and pasta. It is hidden in so many things you would never expect to find it in like canned tomato soup and soy sauce just to name a few. It can be in pills and medications.  Also, your "yellow diarrhea, constipation and bloating" though these are classic signs of a gluten disorder, could also be related to the post surgical shorter length of your small bowel causing incomplete processing/digestion of food.
    • Ello
      Yes this information helps. I will continue to be pro active with this issues I am having. More testing to be done. Thank you so much for your response. 
    • trents
      There are two gluten-related disorders that share many of the same symptoms but differ in nature from each other. One is known as celiac disease or "gluten intolerance". By nature, it is an autoimmune disorder, meaning the ingestion of gluten triggers the body to attack it's own tissues, specifically the lining of the small bowel. This attack causes inflammation and produces antibodies that can be detected in the blood by specific tests like the TTG-IGA test you had. Over time, if gluten is not withheld, this inflammation can cause severe damage to the lining of the small bowel and even result in nutrient deficiency related health issues since the small bowel lining is organ where all the nutrition found in our food is absorbed.  The other is NCGS (Non Celiac Gluten Sensitivity or just "gluten sensitivity") which we know less about and are unsure of the exact mechanism of action. It is not an autoimmune disorder and unlike celiac disease it does not damage the lining of the small bowel, though, like celiac disease, it can cause GI distress and it can also do other kinds of damage to the body. It is thought to be more common than celiac disease. Currently, we cannot test for NCGS. Celiac disease must first be ruled out to arrive at a diagnosis of NCGS. Both disorders require elimination of gluten from the diet.  Either of these disorders can find their onset at any stage of life. We know that celiac disease has a genetic component but the genes are inactive until awakened by some stress event. About 40% of the general population has the genetic potential to develop celiac disease but only about 1% develop active celiac disease. The incidence of NCGS is thought to be considerably higher. I hope this helps.
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