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How Do I Avoid Gluten?


antmimi

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antmimi Rookie

I want to know lists... What do I avoid? How do I avoid it if I don't know what carries gluten? Being given the celiac blood test this week and hurting, hurting, hurting...

Shampoos, toothpastes, soaps, drinks, cream cheese? Where do I get these lists?


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KaitiUSA Enthusiast

Do not go gluten free before all testing is complete. This may interfere with tests.

Here are some brands of food that will list right on the label wheat,rye,barley,or oats or they will be safe.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

The forbidden list will help you out...I gave you the link to that in your other post.https://www.celiac.com/st_main.html?p_catid=12

Here it is again and the forbidden list will help you as a guideline for what is questionable and what you need to avoid.

I eat Kraft cream cheese..all you have to do is check the label because they will not hide anything...these companies are a Godsend.

Toothpastes...all Crest and Colgate is gluten free

Dove is a brand that will not hide anything either so I use their shampoo, soap, conditioner and hairspray

Softsoap liquid soap is gluten free

https://www.celiac.com/st_main.html?p_catid...-17105445293.27

This is a link to some mainstream items lists of some stuff that is gluten free

All pepsi, co. softdrinks are gluten-free, coke has a list they'll send you.Try to avoid generic brands. Don't get the supermarket colas, as they aren't necessarily gluten-free. You often need to call to check.

100% juices are gluten free

Milk is gluten free and some soymilk is but with soymilk you need to check from brand to brand. I love silk soymilk and they have alot of gluten free products.

There are alot of great gluten free foods its a matter of finding the brands that are good...everyone here will help you out..

If you have any questions just ask :D

antmimi Rookie

You don't know what a blessing you are. I am going gluten free before those tests because I HURT!!!!!!

If tests come back negative, OH WELL!!!!

Canadian Karen Community Regular

Also, the delphi list is also a godsend. I don't go shopping without it.....

www.delphiforums.com

click on Health & Wellness on the left hand side.

The first forum to pop up is the celiac forum.

Their list is in convenient category form. Makes it easier for shopping.

Karen

KaitiUSA Enthusiast

Yes, I forgot about that. The Delphi list is 79 pages long and awesome. celiac3270 posted about it and gave directions for how to get it:

1) Go to the website, Open Original Shared Link

2) Click on "messages" or "start reading"

3) Select the folder "gluten-free Product List"

4) Click on the topic called "Downloadable files word"

5) Of the four options, choose the one in the upper right.

antmimi Rookie

What's so frustrating is that while coke and icecream can be gluten free often they have CORN in them!!!!

That's ok. Don't think I'll be doing milk for a while cause I am hurting... Staying away from starchies for a while.

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    • trents
      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
    • trents
      Let me suggest an adjustment to your terminology. "Celiac disease" and "gluten intolerance" are the same. The other gluten disorder you refer to is NCGS (Non Celiac Gluten Sensitivity) which is often referred to as being "gluten sensitive". Having said that, the reality is there is still much inconsistency in how people use these terms. Since celiac disease does damage to the small bowel lining it often results in nutritional deficiencies such as anemia. NCGS does not damage the small bowel lining so your history of anemia may suggest you have celiac disease as opposed to NCGS. But either way, a gluten-free diet is in order. NCGS can cause bodily damage in other ways, particularly to neurological systems.
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