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How Do I Avoid Gluten?


antmimi

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antmimi Rookie

I want to know lists... What do I avoid? How do I avoid it if I don't know what carries gluten? Being given the celiac blood test this week and hurting, hurting, hurting...

Shampoos, toothpastes, soaps, drinks, cream cheese? Where do I get these lists?


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KaitiUSA Enthusiast

Do not go gluten free before all testing is complete. This may interfere with tests.

Here are some brands of food that will list right on the label wheat,rye,barley,or oats or they will be safe.

Aunt Nelly's

Balance

Baskin Robbins

Ben & Jerry

Betty Crocker

Blue Bunny

Breyers

Campbells

Cascadian Farms

Celestial Seasonings

Country Crock

Edy's

General Mills

Good Humor

Green Giant

Haagen Daz

Hellman's

Hershey

Hormel

Hungry Jack

Jiffy

Knorr

Kozy Shack

Kraft

Libby's

Lipton

Martha White

McCormick

Nabisco

Nestle

Old El Paso

Ortega

Pillsbury

Popsicle

Post

Progresso

Russell Stover

Seneca Foods

Smucker

Stokely's

Sunny Delight

T Marzetti

Tyson

Unilever

Wishbone

Yoplait

Zatarain's

The forbidden list will help you out...I gave you the link to that in your other post.https://www.celiac.com/st_main.html?p_catid=12

Here it is again and the forbidden list will help you as a guideline for what is questionable and what you need to avoid.

I eat Kraft cream cheese..all you have to do is check the label because they will not hide anything...these companies are a Godsend.

Toothpastes...all Crest and Colgate is gluten free

Dove is a brand that will not hide anything either so I use their shampoo, soap, conditioner and hairspray

Softsoap liquid soap is gluten free

https://www.celiac.com/st_main.html?p_catid...-17105445293.27

This is a link to some mainstream items lists of some stuff that is gluten free

All pepsi, co. softdrinks are gluten-free, coke has a list they'll send you.Try to avoid generic brands. Don't get the supermarket colas, as they aren't necessarily gluten-free. You often need to call to check.

100% juices are gluten free

Milk is gluten free and some soymilk is but with soymilk you need to check from brand to brand. I love silk soymilk and they have alot of gluten free products.

There are alot of great gluten free foods its a matter of finding the brands that are good...everyone here will help you out..

If you have any questions just ask :D

antmimi Rookie

You don't know what a blessing you are. I am going gluten free before those tests because I HURT!!!!!!

If tests come back negative, OH WELL!!!!

Canadian Karen Community Regular

Also, the delphi list is also a godsend. I don't go shopping without it.....

www.delphiforums.com

click on Health & Wellness on the left hand side.

The first forum to pop up is the celiac forum.

Their list is in convenient category form. Makes it easier for shopping.

Karen

KaitiUSA Enthusiast

Yes, I forgot about that. The Delphi list is 79 pages long and awesome. celiac3270 posted about it and gave directions for how to get it:

1) Go to the website, Open Original Shared Link

2) Click on "messages" or "start reading"

3) Select the folder "gluten-free Product List"

4) Click on the topic called "Downloadable files word"

5) Of the four options, choose the one in the upper right.

antmimi Rookie

What's so frustrating is that while coke and icecream can be gluten free often they have CORN in them!!!!

That's ok. Don't think I'll be doing milk for a while cause I am hurting... Staying away from starchies for a while.

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    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
    • Scott Adams
      I will assume you did the gluten challenge properly and were eating a lot of gluten daily for 6-8 weeks before your test, but if not, that could be the issue. You can still have celiac disease with negative blood test results, although it's not as common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.
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