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Celiac Blood Panel

reeetz

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reeetz Rookie
reeetz
Posted

I finally found a great doctor! I am just 5 weeks too late though. I started the gluten free diet 5 weeks ago and feel sooo much better now. I went to see a new doctor today...who was great. Since I hadn't had the Celiac blood panel before, she wanted me tested for it. She of course did mention that because of the diet, the results could come back normal even if they really aren't. So my question....has anyone out there been on the diet for a few weeks but still tested positive? I am just wondering what the chances of the test coming back positive are with the gluten-free diet already started?

I am just glad that this doctor was willing to listen and not tell me, "there is no treatment for Celiac Disease no it's not that."

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    • par18
      Is it gluten?

      By par18 · Posted

      Thanks for the reply. 
    • Scott Adams
      nothing has changed

      By Scott Adams · Posted

      What you’re describing is actually very common, and unfortunately the timing of the biopsy likely explains the confusion. Yes, it is absolutely possible for the small intestine to heal enough in three months on a strict gluten-free diet to produce a normal or near-normal biopsy, especially when damage was mild to begin with. In contrast, celiac antibodies can stay elevated for many months or even years after gluten removal, so persistently high antibody levels alongside the celiac genes and clear nutrient deficiencies strongly point to celiac disease, even if you don’t feel symptoms. Many people with celiac are asymptomatic but still develop iron and vitamin deficiencies and silent intestinal damage. The lack of immediate symptoms makes it harder emotionally, but it doesn’t mean gluten isn’t harming you. Most specialists would consider this a case of celiac disease with a false-negative biopsy due to early healing rather than “something else,” and staying consistently gluten-free is what protects you long-term—even when your body doesn’t protest right away.
    • Scott Adams
      Is it gluten?

      By Scott Adams · Posted

      Yes, I meant if you had celiac disease but went gluten-free before screening, your results would end up false-negative. As @trents mentioned, this can also happen when a total IGA test isn't done.
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