Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free And Dairy Free?

vintagegyrl

By vintagegyrl
in Coping with Celiac Disease

Recommended Posts

vintagegyrl Rookie
vintagegyrl
Posted

I just recently went gluten-free due to enterolab results. I know for sure one of my children needs gluten-free and the other 2 react to dairy, but not sure about vice-versa yet.

Does anyone eat dairy free and gluten-free? do you cut out everything that has a bit of milk or just main ingredient of milk?

;) Or did u find that gluten-free helped the dairy issue and now u can eat it?

THANKS!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


CMCM Rising Star
CMCM
Posted

I just recently went gluten-free due to enterolab results. I know for sure one of my children needs gluten-free and the other 2 react to dairy, but not sure about vice-versa yet.

Does anyone eat dairy free and gluten-free? do you cut out everything that has a bit of milk or just main ingredient of milk?

;) Or did u find that gluten-free helped the dairy issue and now u can eat it?

THANKS!

I spent my entire life thinking I was unable to handle dairy, didn't suspect gluten even though my mom has celiac disease. Doctors always made it seem so unlikely that I would have celac too, especially since I didn't react in the severe way she did. And we always thought my issue was dairy.

When I finally got tested and realized I had severe gluten problems if not also celiac disease, I went gluten free. I had Enterolab test casein too, and they said I was sensitive to it and to avoid it completely. So I did that for 6 or 7 months. I actually found it harder to avoid dairy than gluten! Anyhow, after that time away from dairy, I put a little bit of dairy back into my diet to test the waters and found I actually COULD handle modest amounts of dairy. So now I do have it, but I really limit it. As a minor ingredient in things, it doesn't bother me. A small bit of half and half in coffee doesn't bother me. A bit of cheese here and there is fine. But as I said, I'm careful, and I seem to do OK with it on that basis. A bowl of ice cream, for example, also yogurt, that's too much and I'll have problems with that amount.

AKcollegestudent Apprentice
AKcollegestudent
Posted

There are a ton of threads on the subject of eating dairy free (also known as casein free) and gluten free--you might want to do a quick search.

But for me personally, going gluten free actually acerbated my issues with dairy. I went from no obvious issues (though I did, looking back, have symptoms) to breaking out in hives. And while you're healing from gluten, many go off of dairy for a while before adding it back in anyway.

I don't cook with any form of dairy--not butter, not milk, not cheese. Some on the board use ghee (clarified butter), but I've been leery about trying it, even if I can find it. I tried goat's cheese, since it looked like my issue was primarily cow based, but continued to have issues. (Though not hives.)

Karina's site, glutenfreegoddess.blogspot.com, has dairy free and gluten free recipes (most are also egg free).

Hopefully, that helps.

tarnalberry Community Regular
tarnalberry
Posted

Lots of us are dairy free.

How dairy free you are depends on what your problem is. If you're lactose intolerant (common in the early stages of healing, before the villi have recovered), then it's avoiding milk, and/or taking a lactase enzyme when you have dairy. If you're casein intolerant, degrees of intolerance vary. Some people avoid any dairy strictly. I personally don't worry about something like butterfat in some chocolates or small amounts of butter in a recipe.

Lgood22573 Rookie
Lgood22573
Posted

I am gluten free and dairy free (I'm intolerant to Casein). I found it much easier to give up the gluten than the dairy. How I love a chunk of cheese! All my recipes and casseroles I've been cooking for 20 years have dairy. It's not easy. I'm trying to find some good recipes for both and it's not easy. I cut out absolutely everything with any milk in it. I can tell if I ingest the tiniest bit of milk. I use Almond milk in my coffee, cereal, and when I was a "milk" taste. For cheese- I'm just bummed. All dairy free cheese that I've seen has Casein in it- even the soy cheese. Like I said- I just want some cheese! lol Good luck.

AKcollegestudent Apprentice
AKcollegestudent
Posted

I am gluten free and dairy free (I'm intolerant to Casein). I found it much easier to give up the gluten than the dairy. How I love a chunk of cheese! All my recipes and casseroles I've been cooking for 20 years have dairy. It's not easy. I'm trying to find some good recipes for both and it's not easy. I cut out absolutely everything with any milk in it. I can tell if I ingest the tiniest bit of milk. I use Almond milk in my coffee, cereal, and when I was a "milk" taste. For cheese- I'm just bummed. All dairy free cheese that I've seen has Casein in it- even the soy cheese. Like I said- I just want some cheese! lol Good luck.

There are a couple of totally vegan cheeses, especially on the soy side of the equation. (Finding a decent rice cheese is one of those things I gave up on.) If I remember correctly, Galaxy was decent, though it's soy based. I can't eat it because of soy issues. Follow Your Heart's Vegan Gourmet cheeses (also soy) appear to be decent. And they too have no casein in them. The trick with finding truly dairy free cheeses is to look for vegan cheese.

And Turtle Mountain (Purely Decadent) has some awesome dairy-free, gluten-free ice creams. So does Good Karma (and theirs is soy free consistently, so I can eat them.)

vintagegyrl Rookie
vintagegyrl
Posted
  • Author

Lots of us are dairy free.

How dairy free you are depends on what your problem is. If you're lactose intolerant (common in the early stages of healing, before the villi have recovered), then it's avoiding milk, and/or taking a lactase enzyme when you have dairy. If you're casein intolerant, degrees of intolerance vary. Some people avoid any dairy strictly. I personally don't worry about something like butterfat in some chocolates or small amounts of butter in a recipe.

I don't know which DD and DS are. How Do i find out? All I know is they have stool issues when consuming milk products like milk or ice cream. We let them have milkshakes, just to see and the problems came back. It took about a week to clear up in DD. I guess i just need to try different things. How do you differentiate between casein & lactose items?

I will check out the threads, thanks!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Kanney Newbie
Kanney
Posted

I am dairy free and Gluten free. The Dairy issues didn't show up until I went gluten free. I don't know if I have issues with casein or lactose or both. I avoid all dairy. I have however discovered I can tolerate Goat cheese and sheep's milk cheese. A total blessing because I LOVE cheese and none of the soy or rice based cheese I could find worked for me. And I agree going diary free was way harder than being gluten free!

GFinDC Veteran
GFinDC
Posted

I don't know which DD and DS are. How Do i find out? All I know is they have stool issues when consuming milk products like milk or ice cream. We let them have milkshakes, just to see and the problems came back. It took about a week to clear up in DD. I guess i just need to try different things. How do you differentiate between casein & lactose items?

I will check out the threads, thanks!

If it is lactose intolerance you can give them Lactaid brand lactase pills when they eat dairy. Watch out for generic alternatives because some of them have gluten. Or give them Lactaid milk to drink. If they are ok then it is a lactose problem. If they still have issues it is more likely to be a casein problem. You can also take them to the doctor for a hydrogen breath test (for lactose intolerance). But that is more expensive and doesn't tell you any more. Another thing is hard cheeses are mostly lactose free. So if they can eat them ok that is another indicator it is probably a lactose problem.

Of course there is no reason they can't have both a casein and a lactose problem too.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions...
    2. asaT
      - asaT replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      48

      Supplements for those Diagnosed with Celiac Disease

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know. I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past...
    3. nanny marley
      - nanny marley replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      20

      Insomnia help

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I...
    4. David Blake
      - David Blake commented on Scott Adams's article in Product Labeling Regulations
      1

      FDA Moves to Improve Gluten Labeling—What It Means for People With Celiac Disease

      My question I have proposed to the FDA through their website is why Prescription and OTC drug manufacturers are not required to list what binding ingredients were used to bine the drug? They list this on Capsules which are made of cellulose but not on pills? As it stands I or my pharmacist must contact the manufacturer to find out and my list is long from...
    5. nanny marley
      - nanny marley replied to wellthatsfun's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      4

      nothing has changed

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,343
    • Most Online (within 30 mins)
      7,748
    emoryprose
    Newest Member
    emoryprose
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      plant sources of calcium, such as spinach, have calcium bound to oxalates, which is not good. best source of calcium is unfortunately dairy, do you tolerate dairy? fermented dairy like kefir is good and or a little hard cheese. i do eat dairy, i can only take so much dietary restriction and gluten is hard enough! but i guess some people do have bad reactions to it, so different for everyone.  
    • asaT
      Supplements for those Diagnosed with Celiac Disease

      By asaT · Posted

      i take b12, folate, b2, b6, glycine, Nac, zinc, vk2 mk4, magnesium, coq10, pqq, tmg, creatine, omega 3, molybdnem (sp) and just started vit d. quite a list i know.  I have high homocysteine (last checked it was 19, but is always high and i finally decided to do something about it) and very low vitamin d, 10. have been opposed to this supp in the past, but going to try it at 5k units a day. having a pth test on friday, which is suspect will be high. my homocysteine has come down to around 9 with 3 weeks of these supplements and expect it to go down further. i also started on estrogen/progesterone. I have osteoporosis too, so that is why the hormones.  anyway, i think all celiacs should have homocysteine checked and treated if needed (easy enough with b vit, tmg). homocysteine very bad thing to be high for a whole host of reasons. all the bad ones, heart attack , stroke, alzi, cancer..... one of the most annoying things about celiacs (and there are so many!) is the weight gain. i guess i stayed thin all those years being undiagnosed because i was under absorbing everything including calories. going gluten-free and the weight gain has been terrible, 30#, but i'm sure a lot more went into that (hip replacement - and years of hip pain leading to inactivity when i was previously very active, probably all related to celiacs, menopause) yada yada. i seemed to lose appetite control, like there was low glp, or leptin or whatever all those hormones are that tell you that you are full and to stop eating. my appetite is immense and i'm never full. i guess decades or more ( i think i have had celiacs since at least my teens - was hospitalized for abdominal pain and diarrhea for which spastic colon was eventually diagnosed and had many episodes of diarrhea/abdominal pain through my 20's. but that symptom seemed to go away and i related it to dairy much more so than gluten. Also my growth was stunted, i'm the only shorty in my family. anyway, decades of malabsorption and maldigestion led to constant hunger, at least thats my theory. then when i started absorbing normally, wham!! FAT!!!    
    • nanny marley
      Insomnia help

      By nanny marley · Posted

      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
    • nanny marley
      nothing has changed

      By nanny marley · Posted

      I agree there I've tryed this myself to prove I can't eat gluten or lactose and it sets me back for about a month till I have to go back to being very strict to settle again 
    • trents
      Supplements for those Diagnosed with Celiac Disease

      By trents · Posted

      You may also need to supplement with B12 as this vitamin is also involved in iron assimilation and is often deficient in long-term undiagnosed celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.