Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

2 Months gluten-free And Now Have Itchy Bumps, Any One Have These?


sandiz

Recommended Posts

sandiz Apprentice

I am 2 months gluten-free and have had great success. My headache of 30 yrs went away, pain in hands and feet disappeared, the tummy rumbles in the morning have gone. I have lost inches and even managed to lose a couple of pounds. I have way more energy and at time felt like I was on a caffeine buzz.

I had been diagnosed with IBS over 10 yrs ago and before I went gluten-free was very tired all the time, my doctor disregarded this along with all my other symptoms. Weird thing is that from going to allergist I was told I am allergic to flour. Never told not to eat it.

My question is, for the past few nights I have woken up feeling very itchy on my legs and back. Now on my chest and I have bumps coming out too. Could this be one of the ways that gluten leaves your system? Has anyone else had the same thing?


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ravenwoodglass Mentor

It is more likely you are getting some CC somewhere. This sounds like it could be DH. Do check your toiletries and lotions, soaps and go with a detergent like Arm and Hammer Free and Clear and see if that makes a difference.

YoloGx Rookie

Detox herbs like dandelion, licorice root and cleavers can help. Sounds like your body is trying to detox on its own and the liver and lymphatic system is maxed out. These herbs help those two systems along. Using marshmallow root can also help by reducing inflammation and helping to heal the damaged villi lining your intestines--which likely is the source of your problems.

Just avoid any alcohol based tinctures due to likely gluten. Don't take the licorice root for more than 10 days at a time, and then take a week off. Otherwise it can raise your blood pressure. Its an adaptogen and helps make the other herbs more effective, is good for the adrenals and against certain viruses, plus it has a pleasant taste.

I also found just last night that St. John's Wort oil is a godsend for those itchy bumpies (at least for me!). Whether I have DH or not I don't know. However it worked. It might be a virus or bacteria or what. I also find olive leaf tea and capsules help me too... The olive leaf is excellent against long standing viruses, bacteria, tiny microbial critters and the like.

I have found too that it really helps to eat lots of 24 hour home made plain yogurt as well as a ton of greens every day. Blending veggies is a good alternative to cooking when you just don't want to any more... People tell me by the way that I have very beautiful skin. Wasn't always so... I used to have tiny outbreaks all over my back and haunches as well as in my scalp and the sides of my neck... Going off the gluten helped immensely, but so has going on the herbs!

Again as already suggested consider looking at your soaps, shampoos and lotions. You might find they have gluten in them. Cross contamination (CC)from gluten from who knows where might also be a culprit. I have learned to always wash my hands before eating due to possible CC problems...

Bea

cheesycow5 Newbie

I am 2 months gluten-free and have had great success. My headache of 30 yrs went away, pain in hands and feet disappeared, the tummy rumbles in the morning have gone. I have lost inches and even managed to lose a couple of pounds. I have way more energy and at time felt like I was on a caffeine buzz.

I had been diagnosed with IBS over 10 yrs ago and before I went gluten-free was very tired all the time, my doctor disregarded this along with all my other symptoms. Weird thing is that from going to allergist I was told I am allergic to flour. Never told not to eat it.

My question is, for the past few nights I have woken up feeling very itchy on my legs and back. Now on my chest and I have bumps coming out too. Could this be one of the ways that gluten leaves your system? Has anyone else had the same thing?

Are the bumps filled with a clear liquid? It's probably dermititis herpetiformis, which is very related to gluten intolerance. For patients with DH who start a gluten free diet, the rash can take up to two years to go away, but usually is gone much sooner. Keep up the gluten-free diet!

ravenwoodglass Mentor

Are the bumps filled with a clear liquid? It's probably dermititis herpetiformis, which is very related to gluten intolerance. For patients with DH who start a gluten free diet, the rash can take up to two years to go away, but usually is gone much sooner. Keep up the gluten-free diet!

I hope you will forgive a bit of clarification. The antibodies in the skin take up to two years to leave but the lesions themselves will heal quicker than that gluten free. However even a small amount of gluten will cause a new outbreak until those antibodies have gone. After the antibodies have finally resolved DH outbreaks should be milder and quick to heal after a bit of exposure but it is vital to be a strict as is humanly possible to allow the antibodies to resolve.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - ShariW commented on Scott Adams's article in Frequently Asked Questions About Celiac Disease
      4

      What are Celiac Disease Symptoms?

    2. - klmgarland replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    3. - Scott Adams replied to klmgarland's topic in Dermatitis Herpetiformis
      2

      Help I’m cross contaminating myself,

    4. - Scott Adams replied to Jmartes71's topic in Coping with Celiac Disease
      1

      My only proof

    5. - Scott Adams replied to Colleen H's topic in Related Issues & Disorders
      1

      Methylprednisone treatment for inflammation?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,908
    • Most Online (within 30 mins)
      7,748

    ebrown
    Newest Member
    ebrown
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • klmgarland
      Thank you so very much Scott.  Just having someone understand my situation is so very helpful.  If I have one more family member ask me how my little itchy skin thing is going and can't you just take a pill and it will go away and just a little bit of gluten can't hurt you!!!! I think I will scream!!
    • Scott Adams
      It is difficult to do the detective work of tracking down hidden sources of cross-contamination. The scenarios you described—the kiss, the dish towel, the toaster, the grandbaby's fingers—are all classic ways those with dermatitis herpetiformis might get glutened, and it's a brutal learning curve that the medical world rarely prepares you for. It is difficult to have to deal with such hyper-vigilance. The fact that you have made your entire home environment, from makeup to cleaners, gluten-free is a big achievement, but it's clear the external world and shared spaces remain a minefield. Considering Dapsone is a logical and often necessary step for many with DH to break the cycle of itching and allow the skin to heal while you continue your detective work; it is a powerful tool to give you back your quality of life and sleep. You are not failing; you are fighting an incredibly steep battle. For a more specific direction, connecting with a dedicated celiac support group (online or locally) can be invaluable, as members exchange the most current, real-world tips for avoiding cross-contamination that you simply won't find in a pamphlet. You have already done the hardest part by getting a correct diagnosis. Now, the community can help you navigate the rest. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      It's very frustrating to be dismissed by medical professionals, especially when you are the one living with the reality of your condition every day. Having to be your own advocate and "fight" for a doctor who will listen is an exhausting burden that no one should have to carry. While that 1998 brochure is a crucial piece of your personal history, it's infuriating that the medical system often requires more contemporary, formal documentation to take a condition seriously. It's a common and deeply unfair situation for those who were diagnosed decades ago, before current record-keeping and testing were standard. You are not alone in this struggle.
    • Scott Adams
      Methylprednisolone is sometimes prescribed for significant inflammation of the stomach and intestines, particularly for conditions like Crohn's disease, certain types of severe colitis, or autoimmune-related gastrointestinal inflammation. As a corticosteroid, it works by powerfully and quickly suppressing the immune system's inflammatory response. For many people, it can be very effective at reducing inflammation and providing rapid relief from symptoms like pain, diarrhea, and bleeding, often serving as a short-term "rescue" treatment to bring a severe flare under control. However, experiences can vary, and its effectiveness depends heavily on the specific cause of the inflammation. It's also important to be aware that while it can work well, it comes with potential side effects, especially with longer-term use, so it's typically used for the shortest duration possible under close medical supervision. It's always best to discuss the potential benefits and risks specific to your situation with your gastroenterologist.
    • Scott Adams
      Based on what you've described, it is absolutely possible you are dealing with non-celiac gluten sensitivity (NCGS).  Approximately 10x more people have non-celiac gluten sensitivity than have celiac disease, but there isn’t yet a test for NCGS. If your symptoms go away on a gluten-free diet it would likely signal NCGS.   Your situation is a classic presentation: a negative celiac panel but a clear, recurring pattern of symptoms triggered by gluten. The symptoms you listed—particularly the extreme fatigue, bloating, neurological-psychiatric symptoms like depression and anxiety, and even the skin manifestations like facial flushing—are all well-documented in research on NCGS. It's important to know that you are not alone in experiencing this specific combination of physical and emotional reactions. The only way to know for sure is to commit to a strict, 100% gluten-free diet under the guidance of a doctor or dietitian for a period of several weeks to see if your symptoms significantly improve. It is also crucial to rule out other potential causes, so discussing these symptoms with a gastroenterologist is a very important next step.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.