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What Do You Think?

MamaMeagan

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MamaMeagan Apprentice
MamaMeagan
Posted

Okay I've made a few posts like this, but my GI doctor decided to run the gene test on me, not really sure why, because well he still said it doesn't always mean anything.

These are the testing I've had done and the results....positive IgG and IgA, but negative ttg. Had a scope had inflammation and some errosions healing. Responded VERY well to diet, until I had to cut out dairy also, now doing very well with no dairy or gluten. Then I had the gene test which showed I do carry the celiac genes.

My doctor said with the scope, you have 15 feet on intestines and he only sees a foot, so it is possible to miss it. He said could be just a gluten intolerance also or could be Celiacs. I don't know he just said in the end it's the samething, but to me if you are just intolerant you can be a little more leniant, ya know?

I am having the enterolab testing done. I plan to show him that when I go in April. We are also having chronic loose stools with my 2 year old, he is also having enterolab testing done.

So what do you think??

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Wolicki Enthusiast
Wolicki
Posted

Okay I've made a few posts like this, but my GI doctor decided to run the gene test on me, not really sure why, because well he still said it doesn't always mean anything.

These are the testing I've had done and the results....positive IgG and IgA, but negative ttg. Had a scope had inflammation and some errosions healing. Responded VERY well to diet, until I had to cut out dairy also, now doing very well with no dairy or gluten. Then I had the gene test which showed I do carry the celiac genes.

My doctor said with the scope, you have 15 feet on intestines and he only sees a foot, so it is possible to miss it. He said could be just a gluten intolerance also or could be Celiacs. I don't know he just said in the end it's the samething, but to me if you are just intolerant you can be a little more leniant, ya know?

I am having the enterolab testing done. I plan to show him that when I go in April. We are also having chronic loose stools with my 2 year old, he is also having enterolab testing done.

So what do you think??

Your blood tests were positive. The cure for either Celiac or Gluten intolerance is a life long gluten free diet. And sorry to say, your doctor is wrong. You have to be 100% gluten free, with either diagnosis. Once in a while cheating is not an option- at least not if you want to heal.

MamaMeagan Apprentice
MamaMeagan
Posted
  • Author

Hmm they wrote on my lab work the blood test, questionable for celiac not for diagnosis??

katifer Apprentice
katifer
Posted

Okay I've made a few posts like this, but my GI doctor decided to run the gene test on me, not really sure why, because well he still said it doesn't always mean anything.

These are the testing I've had done and the results....positive IgG and IgA, but negative ttg. Had a scope had inflammation and some errosions healing. Responded VERY well to diet, until I had to cut out dairy also, now doing very well with no dairy or gluten. Then I had the gene test which showed I do carry the celiac genes.

My doctor said with the scope, you have 15 feet on intestines and he only sees a foot, so it is possible to miss it. He said could be just a gluten intolerance also or could be Celiacs. I don't know he just said in the end it's the samething, but to me if you are just intolerant you can be a little more leniant, ya know?

I am having the enterolab testing done. I plan to show him that when I go in April. We are also having chronic loose stools with my 2 year old, he is also having enterolab testing done.

So what do you think??

I am just going to add that the reason i went to be tested was because my child was having chronic lose stool and was struggling to gain weight/and grow. Both of our tests came back negative.(unfortunately i was put on an elimination diet while breastfeeding and gluten had been out of my system for a while) He was diagnosed failure to thrive(born a 9lb)...under the 2nd %...took gluten out of his diet and has been great since...he and i both have the gene and his endoscopy was fine but he had already been off gluten for too long they shouldn't have even done it. I will be honest it was a VERY hard decision to make without every test coming back positive but the doctors at Emory in Atlanta just said if he cannot tolerate it then it is not good for him. He is 3 now and my 5 year old and i all are gluten free. They are both doing so well--they are not catching ever sickness anymore(they rarely ever get sick), they do not know the difference when it comes to gluten free food and they know what they are allowed to have. We eat well and they are so much more healthy than before. My 3 year old is growing and doing well. The doctors believe that i have celiac because of all my symptoms,gene test and i am very,very small compared to the rest of my family...i stopped growing in 6th grade. Celiac and food intolerances..anything that makes your food rush through your body means you are not getting the proper nutrition and your body suffers. i hope you can find a support group to help if you decide to go fully gluten free-it has saved our family from sooo much pain. God Bless

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