Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Cc In Factories

Canadian Girl

Recommended Posts

Canadian Girl Apprentice
Canadian Girl
Posted

Hey everyone, been away for a while but I'm back! I have a question, I read in a past post that we can eat items that are manufactured in a factory that says "produced in a factory that also produces wheat...etc.." as long as it doesn't bother us.. However, I don't understand something. Even if it doesn't bother us or give us symptoms.. it could still be damaging our intestines couldn't it?? I find that if I do eat gluten I'll bloat up instantly but nothing serious happens, which i find surprising as both my blood test and endoscopy came back positive. So just wanna know if we can eat things that have this disclosure on them?? thx! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

If you are instantly bloating you are reacting. I would avoid the foods that do that to you.

jackay Enthusiast
jackay
Posted

If you are instantly bloating you are reacting. I would avoid the foods that do that to you.

If you normally get symptoms from cc and don't when you eat products that are manufactured in a factory that produces wheat, than you should be O.K. If you never had symptoms from ingesting gluten, than you could possibly be damaging your intesttines.

Since you bloat up from gluten, you will know if these products are bad for you.

  • 2 weeks later...
Lynayah Enthusiast
Lynayah
Posted

Hey everyone, been away for a while but I'm back! I have a question, I read in a past post that we can eat items that are manufactured in a factory that says "produced in a factory that also produces wheat...etc.." as long as it doesn't bother us.. However, I don't understand something. Even if it doesn't bother us or give us symptoms.. it could still be damaging our intestines couldn't it?? I find that if I do eat gluten I'll bloat up instantly but nothing serious happens, which i find surprising as both my blood test and endoscopy came back positive. So just wanna know if we can eat things that have this disclosure on them?? thx! :)

You raise a valid point.

I often worry about "silent celiacs" -- those who do not show symptoms of having celiac disease. I worry that when they eat such foods, their upper villi may become damaged, but because they do not show any symptoms, they do not know it.

Worse yet, if they do not have a doctor who regularly checks bloods levels, run additional biopsy, etc., they may NEVER know it -- there are a lot of folks here who are self diagnosed or who have doctors who aren't really up on things.

In other words, these foods may be quietly killing them.

A few months ago, I traveled on a business meeting. Food was served buffet style. I met someone there who had celiac disease -- a man in his, I would guess, late 20's or early 30's -- someone who should have a long life ahead of him.

He was one of those people who do not exhibit symptoms.

So, when it came time to eat, he just went up to a hotel staff member-- not a chef, not a manager (not that the chef and manager at the hotel were knowledgable enough -- for me, they definitly weren't -- I had to eat fresh, unpeeled fruit only, because the hotel WAS HORRIBLE at understanding gluten-free) and he asked, "What has wheat in it?"

Then, he'd eat whatever they said didn't have wheat in it.

AUGH!!!!!!

But, because he didn't have to run to the bathroom and change his pants . . . and because he didn't double over in pain from eating what was almost certainly cc'd food, he thought he was okay.

Oh my gosh, my heart breaks for people such as him. I want to cry just thinking about it.

Reba32 Rookie
Reba32
Posted

There are some labeled Gluten Free foods that also say "produced in a factory that uses wheat..." etc...products that are advertised on this site even and maybe even sold in the Gluten Free Mall.

Personally, I figure if they're labeled Gluten free, with the allergy warning, then the company *may* have them in the same factory, but maybe they produce them on different days after a good clean up, or they're in different parts of the factory. Most of these products that I've tried I have had no reaction to.

However, in products that have the allergy warning that the items are produced on shared equipment I stay away from, because I usually have an immediate reaction.

rtrheli Newbie
rtrheli
Posted

If it says anything about being produced in a factory that produces wheat, I would stay away from that product. You can't count on others to keep things safe. They don't know or understand.

tarnalberry Community Regular
tarnalberry
Posted

If anyone brings a sandwich into your house, if your family ever brings a hamburger bun in - even in a room that's not the kitchen, then you have shared facilities. There are strict rules about cleaning. Is it possible to get contamination from shared facilities? Yes. ANYTHING is possible.

Realize, however, that virtually EVERYTHING passes through a shared facility at some point - whether it's on a farm, in a truck, in a processing plant, or in a grocery store. (Heck, grocery stores are one HUGE shared facility.) There is a balance that you have to find for yourself.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Canadian Girl Apprentice
Canadian Girl
Posted
  • Author

can ppl who are silent sufferers actually die from eating gluten and having no reaction? would the intestine eventually shut itself down??

mopsiecat Rookie
mopsiecat
Posted

I had been eating buckwheat that I thought was safe and for several years I felt good. Then I started getting celiac symptoms and for a long time could not find the gluten source. I got so sick I went to the doc to rule out something more serious. Finally I emailed the Winnipeg company that packaged the buckwheat and they answered that they used the same equipment for wheat and barley but cleaned the machinery after. But how well were they cleaned I wonder? Sure enough when I stopped using that buckwheat my symtoms disappeared. A good lesson for me; I'm much more careful now.

tarnalberry Community Regular
tarnalberry
Posted

can ppl who are silent sufferers actually die from eating gluten and having no reaction? would the intestine eventually shut itself down??

Well, the primary cause of death wouldn't be "eating gluten", and it's not an issue of the intestines shutting down. Rather, the autoimmune reaction causes other problems that can cause death. Anemia and osteoporosis (or just frequent infections due to vitamin D deficiency) are certainly not good for the body, other auto-immune diseases are not either, and intestinal cancer and lymphoma can directly lead to death. This isn't a "kills you quickly" disease.

Experiencing symptoms or not is absolutely zero evidence for what's going on "behind the scenes".

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,544
    • Most Online (within 30 mins)
      7,748
    Jem68
    Newest Member
    Jem68
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Beverage
      Diagnosed celiac for 1-2 months ago and everything makes me bloated.

      By Beverage · Posted

      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Protein or fat?

      By Jsingh · Posted

      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      High Cost of Gluten-Free Foods

      By Chanda Richard · Posted

      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
    • petitojou
      Frequent nausea after gluten-free diet

      By petitojou · Posted

      Thank you so much! I saw some tips around the forum to make a food diary and now that I know that the community also struggles with corn, egg and soy, the puzzle pieces came together! Just yesterday I tried eating eggs and yes, he’s guilty and charged. Those there are my 3 combo nausea troublemakers. I’m going to adjust my diet ☺️ Also thank you for the information about MCAS! I’m from South America and little it’s talked about it in here. It’s honestly such a game changer now for treatment and recovery. I know I’m free from SIBO and Candida since I’ve been tested for it, but I’m still going to make a endoscopy to test for H. Pylori and Eosinophilic esophagitis (EoE). Thank you again!! Have a blessed weekend 🤍
    • knitty kitty
      Unusual bright yellow but odourless discharge

      By knitty kitty · Posted

      Yes, I, too, have osteoporosis from years of malabsorption, too.  Thiamine and magnesium are what keep the calcium in place in the bones.  If one is low in magnesium, boron, selenium, zinc, copper, and other trace minerals, ones bone heath can suffer.  We need more than just calcium and Vitamin D for strong bones.  Riboflavin B 2, Folate B 9 and Pyridoxine B 6 also contribute to bone formation and strength.   Have you had your thyroid checked?  The thyroid is important to bone health as well.  The thyroid uses lots of thiamine, so a poorly functioning thyroid will affect bone heath.  
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.