Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Gluten Free For 8 Months, Starting To Feel Sick Again

lissm

Recommended Posts

lissm Newbie
lissm
Posted

So I was sick for about three years before someone suggested I go gluten free and started feeling better immediately, so I've been on a strict gluten free diet. But for the last month or so I've been feeling nauseas when I eat (which I used to get before going gluten free), and also have had fairly unpredictable bowel movements and cramps occasionally since I went gluten free. Is there a chance that there is something different wrong with me, or that I have more than one problem?

How much better did you feel once you went gluten free?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


txplowgirl Enthusiast
txplowgirl
Posted

So I was sick for about three years before someone suggested I go gluten free and started feeling better immediately, so I've been on a strict gluten free diet. But for the last month or so I've been feeling nauseas when I eat (which I used to get before going gluten free), and also have had fairly unpredictable bowel movements and cramps occasionally since I went gluten free. Is there a chance that there is something different wrong with me, or that I have more than one problem?

How much better did you feel once you went gluten free?

Hi Lissm,

I've been gluten-free for almost 11 months now. Are you eating any gluten-free processed foods? Could be cross contamination, check to see if it says processed in a wheat facility or something to that effect. Have you checked your shampoos, meds soaps?

Also, you might have a problem with dairy or soy. Try an elimination diet and see what happens. Hang in there, i'm sure you will figure this out in time.

I have been where you are. I had to cut out the dairy, soy and aspartame. I started feeling kind of sick about 3 months ago and finally figured out after being sick for almost 6 weeks that it was because I was getting cross contaminated from the steering wheel, door latch and knobs. I'm a truck driver teaming with my boyfriend. He still eats gluten. Once I started cleaning the steering wheel and everything he was touching during the night I started feeling a lot better. I have to clean every single morning before driving because if I don't I'll be sick to my stomach by evening.

Good luck

Vicky

lissm Newbie
lissm
Posted
  • Author

Hi Lissm,

I've been gluten-free for almost 11 months now. Are you eating any gluten-free processed foods? Could be cross contamination, check to see if it says processed in a wheat facility or something to that effect. Have you checked your shampoos, meds soaps?

Also, you might have a problem with dairy or soy. Try an elimination diet and see what happens. Hang in there, i'm sure you will figure this out in time.

I have been where you are. I had to cut out the dairy, soy and aspartame. I started feeling kind of sick about 3 months ago and finally figured out after being sick for almost 6 weeks that it was because I was getting cross contaminated from the steering wheel, door latch and knobs. I'm a truck driver teaming with my boyfriend. He still eats gluten. Once I started cleaning the steering wheel and everything he was touching during the night I started feeling a lot better. I have to clean every single morning before driving because if I don't I'll be sick to my stomach by evening.

Good luck

Vicky

Interesting that you say that, because my whole family went gluten free with me, except my sister, who wasn't living at home at the time. She moved back in Jan so there's been a whole lot more gluten in the house.

In terms of other products, could I really be getting sick from shampoo etc?

Thanks

Lollie Enthusiast
Lollie
Posted

Just thought I would add my two cents! I've been gluten-free for 5 years. In the first year I had to stay away from soy as the protein was too similar to gluten. I also had to really watch what was coming in the house, my family did not go gluten-free. If someone makes a sandwich on the counter, and you come in later and make a gluten-free one, then some of the crumbs can easily get on your food. i know from experience, that any thing cosmetic can make you sick if it has wheat in it. You really have to check everything. It seems like when you first go gluten-free that there is a grace period, perhaps it's the shock to the system not having to deal directly with the gluten... But usually, a few months in, the body is able to detect the smaller amounts of gluten in things. I now react very quickly to cross contamination, where in the beginning, I did not at all. Hang in there. It gets much easier!

mommida Enthusiast
mommida
Posted

It could be a reaction to another food intolerance. (I react to sorghum.)

I was happily gluten free at least 5 years and recently started getting nauseas, pains, and vomitting. I was tested for some different things, but it was my gallbladder. I had it removed 2 and half weeks ago.

tarnalberry Community Regular
tarnalberry
Posted

Interesting that you say that, because my whole family went gluten free with me, except my sister, who wasn't living at home at the time. She moved back in Jan so there's been a whole lot more gluten in the house.

In terms of other products, could I really be getting sick from shampoo etc?

Thanks

I would look very closely at cross contamination. Hopefully you've got your own dedicated toaster and she's not cooking gluten in your dedicated cookware with your dedicated utensils, but you also should look for crumbs and flour dust and all the other possible sources of contamination.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      @Jane02, I hear you about the kale and collard greens. I don't do dairy and must eat green leafies, too, to get sufficient calcium. I must be very careful because some calcium supplements are made from ground up crustacean shells. When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly. This is safe...
    2. Jane02
      - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency. I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently...
    3. knitty kitty
      - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Hello, @Jane02, I take Naturewise D 3. It contains olive oil. Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets. Fractionated coconut oil is not the same as coconut oil used for cooking. Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the...
    4. Scott Adams
      0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

      until
      Hello! Join me and treat yourself to a four-day, three-night restorative gluten-free retreat in a peaceful, private coastal retreat setting near Penobscot Bay in Maine. Dates: April 10-13, 2026 Enjoy engaging classes...
    5. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,332
    • Most Online (within 30 mins)
      7,748
    Nicolah
    Newest Member
    Nicolah
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Jane02 · Posted

      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By knitty kitty · Posted

      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By trents · Posted

      Contact them.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.