Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Diagnosed Learning To Cope In Wa State

verbiage

Recommended Posts

verbiage Newbie
verbiage
Posted

After months of constant pain and unanswered questions I have to say I have bittersweet feelings about my celiac disease diagnosis which just happened on March 16th. Having to switch my way of life from the "stuff-your-face with gluten goodness" attitude to actually having to make a conscious decision about what I put in and even ON my body is nothing short of overwhelming. Is it normal to get all teary-eyed over a cupcake?

So making a 360 degree change in lifestyle I guess I am looking for any words of wisdom or tips & tricks of the trade...or anything at all. So far I haven't really found any community support groups or ways to link up with other young adults with celiac disease but if you know of anything in Tacoma Washington (or surrounding area) it would be much appreciated. its just nice to have someone to talk to that can level with you on having to make such drastic changes.

Whitney

hahasdfk@hotmail.com

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


celiac-mommy Collaborator
celiac-mommy
Posted

Hi Whitney!

I'm down in Vancouver, otherwise, I take you to coffee so we could chat! I understand what you're going through and I know you will get all the support you could possibly need here at this site! How old are you and if you're living at home, is your family supportive? I've rediscovered a love of baking over the last few years. I see it as a great and fun challenge to come up with amazing recipes to rival any gluten one. I make gluten free (and vegan!!) chocolate cupcakes that can kick any regular cupcake's arse :P

Do you have any other sensitivities or allergies?

Whatever you need, we're here for you!

  • 1 month later...
LovingLife7 Newbie
LovingLife7
Posted

After months of constant pain and unanswered questions I have to say I have bittersweet feelings about my celiac disease diagnosis which just happened on March 16th. Having to switch my way of life from the "stuff-your-face with gluten goodness" attitude to actually having to make a conscious decision about what I put in and even ON my body is nothing short of overwhelming. Is it normal to get all teary-eyed over a cupcake?

So making a 360 degree change in lifestyle I guess I am looking for any words of wisdom or tips & tricks of the trade...or anything at all. So far I haven't really found any community support groups or ways to link up with other young adults with celiac disease but if you know of anything in Tacoma Washington (or surrounding area) it would be much appreciated. its just nice to have someone to talk to that can level with you on having to make such drastic changes.

Whitney

hahasdfk@hotmail.com

Whitney,

Hi! I am in the same exact boat as you. I have gone years now with horrible stomach pain, nausea and unanswered questions and I live in Seattle :). How old are you/what school do you go to? I am a senior in high school but i will be going to SPU next year. I just got diagnosed correctly (finally!) with Celiac in January, so I am new to this too. It is really hard the first few months but I have to admit that it is getting easier and is just so worth it to feel GOOD for once. I would love to help you out with the few tips I have(me being a newby still) and chat more. It will take you a while to get used to not eating gluten, and mostly the biggest challenge for me is staying away from hidden gluten in foods that you would never expect. Such as the grilled chicken from QFC that i used to always eat, they inject it with wheat! How weird is that? Anyways I look forward to hearing back from you, everything will feel better soon :).

-Shannon

Generic Apprentice
Generic
Posted

I know this is the teen section, but I had to speak up. I used to live in Tacoma, so I know a few food places that might be helpful to you. I too was a teen celiac, I was diagnosed over 20 years ago, back then things really sucked!

Besides the normal places that have gluten-free menus. (outback, chevys, chillis) There is a place called Woody's on Dock street that has a gluten-free menu. Rumor has it that there is a place at the freight house square that carries gluten-free baked goods. Most Garlic Jim's pizza places have a gluten-free pizza (I know for sure there is one in Lakewood). Fred Meyers carries some gluten-free foods in their health food section. There is or used to be a store in Spanaway called the acorn pantry. They are a gluten-free store if they are still there. Marlene's Market has some gluten-free stuff as well and you might be able to find a support group thru them. If you can make a road trip to Mountlake Terrace (Just North of Seattle) there is a huge health food store called Manna Mills that is about 80% gluten free.

Oh and by the way Betty Crocker now has gluten-free brownies, chocolate chip cookies, and cake mixes. They are usually with the normal betty crocker stuff. Albertson and safeway tend to have them.

Generic Apprentice
Generic
Posted

I forgot there is also a place in Kent called Hailey's Bakery. They are 100% gluten-free baked goods.

Lycopene Rookie
Lycopene
Posted

I live sort of near you! I live in Kirkland. [: We could easily meet up for coffee some time if you'd like. Either that or just chat online. [:

But I've been diagnosed for nearly a year, I just haven't held to the diet until recently, so I definitely know what you're going through.

Oh, I am moving to Georgia soon, so... if you do want to meet up it'll have to be relatively soon. ]: I'll email you. [:

  • 1 month later...
zombietommie Newbie
zombietommie
Posted

I'm near Seattle, and I finally figured out the answers to all my pain in August!

More stuff has come up for me, however, more recently!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty commented on Scott Adams's article in Multiple Sclerosis and Celiac Disease
      3

      Gluten-Free Diet Linked to Reduced Inflammation and Improved Outcomes in Multiple Sclerosis (+Video)

      I worried at one point on my journey whether I had MS, having many of the symptoms myself. However, my symptoms improved dramatically with high dose thiamine hydrochloride, Benfotiamine, and Thiamine TTFD. Thiamine deficiency symptoms overlap with MS symptoms, including changes on brain MRIs. Thiamine deficiency affected my eyes (light sensitivity),...
    2. trents
      - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products...
    3. Matthias
      - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing...
    4. trents
      - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen...
    5. Scott Adams
      - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that y...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,325
    • Most Online (within 30 mins)
      7,748
    Jaxon Reed
    Newest Member
    Jaxon Reed
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • trents
      Unexpected gluten exposure risk from cultivated mushrooms

      By trents · Posted

      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      Unexpected gluten exposure risk from cultivated mushrooms

      By Matthias · Posted

      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      IBS-D vs Celiac

      By Scott Adams · Posted

      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Question

      By Scott Adams · Posted

      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.