Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Enterolab Clarification, Please


mrburns

Recommended Posts

mrburns Newbie

I've done a blood test to test for celiac disease. It came in negative.

I still am not convinced as to the validity of the results. Especially after reading how unrealiable they are in this forum.

I suspect I am not suffering from celiac disease, but rather 'just' gluten intolerance. So, a celiac test might be all for nothing anyway - no matter how accurate it might be.

I just have a question about the Enterolab test:

Will this detect if I am gluten intolerant in any way?

Or can I take this test - get it back negative - and still not be sure if I am intolerant or not?

Thanks.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



newgfcali Rookie

You mentioned on another post that you've been gluten free for 4 years. If that's still the case, the Enterolab test will more than likely come back negative, even if you are gluten intolerant. They're looking for antibodies and if you're not eating gluten, you're not producing antibodies to it. The antibodies do stay in your body for a while after you stop eating gluten. I was gluten free for about 3 months when I took their test and it came back positive, but I don't think those little antibodies will live 4 years.

The same is true for the blood test. If you're not eating gluten and not getting cross-contaminated, you won't have any antibodies in your blood to detect.

You must suspect you have a problem with gluten if you went off of it for 4 years. Maybe the question is if you were sick before and feel better now, isn't that enough of a test for you to stay gluten free?

Whether you're full blown Celiac or "just" gluten intolerant, it really doesn't matter, as either can cause serious health problems and abstinence from gluten is the only "cure".

But, if you MUST have a positive test to convince yourself, then you'll have to do a gluten challenge before testing.

mrburns Newbie

You mentioned on another post that you've been gluten free for 4 years. If that's still the case, the Enterolab test will more than likely come back negative, even if you are gluten intolerant. They're looking for antibodies and if you're not eating gluten, you're not producing antibodies to it. The antibodies do stay in your body for a while after you stop eating gluten. I was gluten free for about 3 months when I took their test and it came back positive, but I don't think those little antibodies will live 4 years.

The same is true for the blood test. If you're not eating gluten and not getting cross-contaminated, you won't have any antibodies in your blood to detect.

You must suspect you have a problem with gluten if you went off of it for 4 years. Maybe the question is if you were sick before and feel better now, isn't that enough of a test for you to stay gluten free?

Whether you're full blown Celiac or "just" gluten intolerant, it really doesn't matter, as either can cause serious health problems and abstinence from gluten is the only "cure".

But, if you MUST have a positive test to convince yourself, then you'll have to do a gluten challenge before testing.

newgfcali,

I understand everything you're saying.

I am fully willing to eat gluten for a few months again, if I know that I can be sure of any test I might be doing it for.

I'm still looking for an answer to my original question:

Does the Enterolab test conclusively rule out/in any sort of gluten intorelance or not?

I know that celiac test I did does not. That test was more or less useless for me; not to mention a waste of money.

Jestgar Rising Star

An Enterolab test will detect if you are producing antibodies against particular proteins.

It is generally accepted that healthy people do not produce antibodies against either food, (anti gliadin) or their own proteins (anti tissue transglutaminase).

I do not doubt that Enterolab detects the presence or absence of these antibodies, but I do not know if anyone has tested how often these antibodies are found in people that have no other detectable response to gluten.

michelley65 Rookie

I am wondering the same thing.I also feel I am gluten sensitive and not celiac..I had a negative blood test once,and am waiting for the results of the next one.I dont really care what the results are anymore..Ive been gluten free for two weeks and feel fabulous!!!

nora-n Rookie

Go and check out the enterolab website, I think they also have some other tests that can be enlightening.

Soy and milk are examples of things that can make you just as sick as celiac, and there are other things that can be wrong, like microscopic colitis, crohns or colitis.

They also have the gene test for gluten intolerance genes.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,546
    • Most Online (within 30 mins)
      7,748

    KimberlyAnne76
    Newest Member
    KimberlyAnne76
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Scott Adams
      Navigating medication safety with Celiac disease can be incredibly stressful, especially when dealing with asthma and severe allergies on top of it. While I don't have personal experience with the HealthA2Z brand of cetirizine, your caution is absolutely warranted. The inactive ingredients in pills, known as excipients, are often where gluten can be hidden, and since the FDA does not require gluten-free labeling for prescription or over-the-counter drugs, the manufacturer's word is essential. The fact that you cannot get a clear answer from Allegiant Health is a significant red flag; a company that is confident its product is gluten-free will typically have a customer service protocol to answer that exact question. In situations like this, the safest course of action is to consider this product "guilty until proven innocent" and avoid it. A better alternative would be to ask your pharmacist or doctor to help you identify a major national brand of cetirizine (like Zyrtec) whose manufacturer has a verified, publicly stated gluten-free policy for that specific medication. It's not worth the risk to your health when reliable, verifiable options are almost certainly available to you. You can search this site for USA prescriptions medications, but will need to know the manufacturer/maker if there is more than one, especially if you use a generic version of the medication: To see the ingredients you will need to click on the correct version of the medication and maker in the results, then scroll down to "Ingredients and Appearance" and click it, and then look at "Inactive Ingredients," as any gluten ingredients would likely appear there, rather than in the Active Ingredients area. https://dailymed.nlm.nih.gov/dailymed/   
    • Scott Adams
      What you're describing is indeed familiar to many in the Celiac community, especially in the early stages of healing. When the intestinal villi are damaged from Celiac disease, they struggle to properly digest and absorb fats, a condition known as bile acid malabsorption. This can cause exactly the kind of cramping and spasms you're seeing, as undigested fats can irritate the sensitive gut lining. It is highly plausible that her reactions to dairy and eggs are linked to their higher fat content rather than the proteins, especially since she tolerates lean chicken breast. The great news is that for many, this does improve with time. As her gut continues to heal on a strict gluten-free diet, her ability to produce the necessary enzymes and bile to break down fats should gradually return, allowing her to slowly tolerate a wider variety of foods. It's a slow process of healing, but your careful approach of focusing on low-fat, nutrient-dense foods like seeds and avocado is providing her system the best possible environment to recover. Many people with celiac disease, especially those who are in the 0-2 year range of their recovery, have additional food intolerance issues which could be temporary. To figure this out you may need to keep a food diary and do an elimination diet over a few months. Some common food intolerance issues are dairy/casein, eggs, corn, oats, and soy. The good news is that after your gut heals (for most people who are 100% gluten-free this will take several months to two years) you may be able to slowly add some these items back into your diet after the damaged villi heal. This article may be helpful: Thank you for sharing your story—it's a valuable insight for other parents navigating similar challenges.
    • Beverage
      I had a very rough month after diagnosis. No exaggeration, lost so much inflammatory weight, I looked like a bag of bones, underneath i had been literally starving to death. I did start feeling noticeably better after a month of very strict control of my kitchen and home. What are you eating for breakfast and lunch? I ignored my doc and ate oats, yes they were gluten free, but some brands are at the higher end of gluten free. Lots of celics can eat Bob's Red Mill gluten-free oats, but not me. I can now eat them, but they have to be grown and processed according to the "purity protocol" methods. I mail order them, Montana Gluten-Free brand. A food and symptoms and activities log can be helpful in tracking down issues. You might be totally aware, but I have to mention about the risk of airborne gluten. As the doc that diagnosed me warned . . Remember eyes, ears, nose, and mouth all lead to your stomach and intestines.  Are you getting any cross contamination? Airborne gluten? Any pets eating gluten (they eat it, lick themselves, you pet them...)? Any house remodeling? We live in an older home, always fixing something. I've gotten glutened from the dust from cutting into plaster walls, possibly also plywood (glues). The suggestions by many here on vitamin supplements also really helped me. I had some lingering allergies and asthma, which are now 99% gone. I was taking Albuterol inhaler every hour just to breathe, but thiamine in form of benfotiamine kicked that down to 1-2 times a day within a few days of starting it. Also, since cutting out inflammatory seed oils (canola, sunflower, grapeseed, etc) and cooking with real olive oil, avocado oil, ghee, and coconut oil, I have noticed even greater improvement overall and haven't used the inhaler in months! It takes time to weed out everything in your life that contains gluten, and it takes awhile to heal and rebuild your health. At first it's mentally exhausting, overwhelming, even obsessive, but it gets better and second nature.
    • Jsingh
      Hi,  I care for my seven year old daughter with Celiac. After watching her for months, I have figured out that she has problem with two kinds of fats- animal fat and cooking oils. It basically makes her intestine sore enough that she feels spasms when she is upset. It only happens on days when she has eaten more fat than her usual every day diet. (Her usual diet has chia seeds, flaxseeds, and avocado/ pumpkin seeds for fat and an occasional chicken breast.) I stopped using cooking oils last year, and when I reintroduced eggs and dairy, both of which I had held off for a few months thinking it was an issue of the protein like some Celiac patients habe mentioned to be the case, she has reacted in the same fashion as she does with excess fats. So now I wonder if her reaction to dairy and eggs is not really because of protein but fat.   I don't really have a question, just wondering if anyone finds this familiar and if it gets better with time.  Thank you. 
    • Chanda Richard
      Hello, My name is Chanda and you are not the only one that gose through the same things. I have found that what's easiest for me is finding a few meals each week that last. I have such severe reactions to gluten that it shuts my entire body down. I struggle everyday with i can't eat enough it feels like, when I eat more I lose more weight. Make sure that you look at medication, vitamins and shampoo and conditioner also. They have different things that are less expensive at Walmart. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.