Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Really Tired At School

chasing4

Recommended Posts

chasing4 Rookie
chasing4
Posted

My daughter was diagnosed a couple years ago and has been doing great. She's growing and not feeling sick all the time, but a couple months ago her teacher was telling me she's been very tired almost to the point of passing out. It normally starts happening about an hour or so before lunch, so we decided to send extra snacks with her to eat during that time and hopefully get her to be alert until lunch. But unfortunately this has not been working.

Could this be possibly related to Celiac? I originally didn't think it could be but now I'm really not sure since I can't think of anything else that could be causing this.

I do know that last week I caught her bringing glutened cookies home that she got from a friend on the bus, so I know she's been getting glutened every once in a while. :( I can usually tell when she's been glutened cause she comes home extremely irritable and I'm ready to pull my hair out. Been trying to talk to her to make her understand how bad she's gonna get sick if she keeps doing this, but I can tell she's still sneaking snacks she shouldn't be having.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Zane Newbie
Zane
Posted

My daughter was diagnosed a couple years ago and has been doing great. She's growing and not feeling sick all the time, but a couple months ago her teacher was telling me she's been very tired almost to the point of passing out. It normally starts happening about an hour or so before lunch, so we decided to send extra snacks with her to eat during that time and hopefully get her to be alert until lunch. But unfortunately this has not been working.

Could this be possibly related to Celiac? I originally didn't think it could be but now I'm really not sure since I can't think of anything else that could be causing this.

I do know that last week I caught her bringing glutened cookies home that she got from a friend on the bus, so I know she's been getting glutened every once in a while. :( I can usually tell when she's been glutened cause she comes home extremely irritable and I'm ready to pull my hair out. Been trying to talk to her to make her understand how bad she's gonna get sick if she keeps doing this, but I can tell she's still sneaking snacks she shouldn't be having.

It must be so hard to witness your baby hurting herself, but please consider her feelings too and how unfair it is that our kids can't eat normally like all the other children. My 9 year-old son's symptoms -severe stomach aches and itching- have convinced him to stay away from gluten because feeling that bad is just not worth it, you are lucky if your little girl doesn't have these severe symptoms(and I am by no means undermining fatigue) because it

affects their daily routine, school-work and play-time, but maybe that's why your daughter just doesn't think there's anything wrong with eating what she wants, perhaps her reasoning is that feeling tired is not that big deal. My advice would be to buy her some gluten free goodies (like Lucy's cookies from Starbucks) and gluten free ice cream from Whole Foods and eat them with her, you should keep talking to her about what gluten does to the intestines and that it could get worse and she might end up feeling really sick, and if all else fails; have the pediatrician or family doctor speak to her, good luck with everything!

GF Traveling Dude Newbie
GF Traveling Dude
Posted

Low vitamin D?

My daughter was diagnosed a couple years ago and has been doing great. She's growing and not feeling sick all the time, but a couple months ago her teacher was telling me she's been very tired almost to the point of passing out. It normally starts happening about an hour or so before lunch, so we decided to send extra snacks with her to eat during that time and hopefully get her to be alert until lunch. But unfortunately this has not been working.

Could this be possibly related to Celiac? I originally didn't think it could be but now I'm really not sure since I can't think of anything else that could be causing this.

I do know that last week I caught her bringing glutened cookies home that she got from a friend on the bus, so I know she's been getting glutened every once in a while. :( I can usually tell when she's been glutened cause she comes home extremely irritable and I'm ready to pull my hair out. Been trying to talk to her to make her understand how bad she's gonna get sick if she keeps doing this, but I can tell she's still sneaking snacks she shouldn't be having.

macocha Contributor
macocha
Posted

Is she on a daily multi-vitamin? my son is and has to take extra vitamin d for his is low. My son also experiences extreme fatigue, but I think I would have a doc talk to her about her sneaking food and what it is doing to her. helps coming from a 3rd party.

chasing4 Rookie
chasing4
Posted
  • Author

Thank you for responding. :) I will have our doc talk to her. When she was first diagnosed she would get extremely sick and vomit all the time. Once she was diagnosed and we changed her diet, all that stopped. Every so often she still gets sick like that when she sneaks a glutened snack, but thankfully not as bad as before. I hope our doc can get her to understand that everytime she eats even a little bit of something with gluten, she damages her intestines and will only make it worse again.

chasing4 Rookie
chasing4
Posted
  • Author

Sorry, forgot to add about the multivitamin. No,she's not on one at this time. I'll talk to the doc about that too today. Thanks again :)

kareng Grand Master
kareng
Posted

Sorry, forgot to add about the multivitamin. No,she's not on one at this time. I'll talk to the doc about that too today. Thanks again :)

My boys at that age shared "special" food (like some god-awful blue candy advertised on TV) at lunch. This was a friend making thing in grade school. Maybe some days she can share some of her cookies or pretzels or even normal candy. That way she is participating. Also, if I knew a kid in the group couldn't have something, I tried to send treats they all could have. Maybe if the parents knew, it would help? Think of it like a peanut allergy.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Wolicki Enthusiast
Wolicki
Posted

Have you had her iron and ferritin checked? I second giving her some great tasting safe snacks in her lunch.

chasing4 Rookie
chasing4
Posted
  • Author

Have you had her iron and ferritin checked? I second giving her some great tasting safe snacks in her lunch.

No, she hasn't had those tests yet. I have contacted our doc and we have an appointment next Monday. Hoping they can figure exactly what is going on and get her to feeling better again.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      This article does not address migraines at all. Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines...
    2. knitty kitty
      - knitty kitty replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Excessive dietary tyrosine can cause problems. Everything in moderation. Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese. Sulfites cause a high histamine release. High histamine levels are found in migraine. Following a low histamine diet like the low histamine Autoimmune Protocol diet,...
    3. trents
      - trents replied to Sarah Grace's topic in Related Issues & Disorders
      26

      Headaches / Migraines and Hypoglycaemia

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit.
    4. Scott Adams
      - Scott Adams replied to Russ H's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      KAN-101 Treatment for Coeliac Disease

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."
    5. Scott Adams
      - Scott Adams replied to miguel54b's topic in Related Issues & Disorders
      1

      Body dysmorphia experience

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress...
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      132,154
    • Most Online (within 30 mins)
      7,748
    bobadigilatis
    Newest Member
    bobadigilatis
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      This article does not address migraines at all.  Yes, red wine and sulfites are often mentioned in connection with migraine triggers. With me, any kind of alcoholic beverage in very modest amounts will reliably produce a migraine. Nitrous oxide generators, which are vaso dialators, also will give me migraines reliably. So, I think most of my migraines are tied to fluctuations vascular tension and blood flow to the brain. That's why the sumatriptan works so well. It is a vaso constrictor. 
    • knitty kitty
      Headaches / Migraines and Hypoglycaemia

      By knitty kitty · Posted

      Excessive dietary tyrosine can cause problems.  Everything in moderation.   Sulfites can also trigger migraines. Sulfites are found in fermented, pickled and aged foods, like cheese.  Sulfites cause a high histamine release.  High histamine levels are found in migraine.  Following a low histamine diet like the low histamine Autoimmune Protocol diet, a Paleo diet, helps immensely.    Sulfites and other migraine trigger foods can cause changes in the gut microbiome.  These bad bacteria can increase the incidence of migraines, increasing histamine and inflammation leading to increased gut permeability (leaky gut), SIBO, and higher systemic inflammation.   A Ketogenic diet can reduce the incidence of migraine.  A Paleo diet like the AIP diet, that restricts carbohydrates (like from starchy vegetables) becomes a ketogenic diet.  This diet also changes the microbiome, eliminating the bad bacteria and SIBO that cause an increase in histamine, inflammation and migraine.  Fewer bad bacteria reduces inflammation, lowers migraine frequency, and improves leaky gut. Since I started following the low histamine ketogenic AIP paleo diet, I rarely get migraine.  Yes, I do eat carbs occasionally now, rice or potato, but still no migraines.  Feed your body right, feed your intestinal bacteria right, you'll feel better.  Good intestinal bacteria actually make your mental health better, too.  I had to decide to change my diet drastically in order to feel better all the time, not just to satisfy my taste buds.  I chose to eat so I would feel better all the time.  I do like dark chocolate (a migraine trigger), but now I can indulge occasionally without a migraine after.   Microbiota alterations are related to migraine food triggers and inflammatory markers in chronic migraine patients with medication overuse headache https://pmc.ncbi.nlm.nih.gov/articles/PMC11546420/  
    • trents
      Headaches / Migraines and Hypoglycaemia

      By trents · Posted

      Then we would need to cut out all meat and fish as they are richer sources of tyrosine than nuts and cheese. Something else about certain tyrosine rich foods must be the actual culprit. 
    • Scott Adams
      KAN-101 Treatment for Coeliac Disease

      By Scott Adams · Posted

      I agree that KAN-101 looks promising, and hope the fast track is approved. From our article below: "KAN-101 shows promise as an immune tolerance therapy aiming to retrain the immune system, potentially allowing safe gluten exposure in the future, but more clinical data is needed to confirm long-term effects."  
    • Scott Adams
      Body dysmorphia experience

      By Scott Adams · Posted

      Thank you so much for having the courage to share this incredibly vivid and personal experience; it's a powerful reminder of how physical ailments can disrupt our fundamental sense of self. What you're describing sounds less like a purely psychological body dysmorphia and more like a distinct neurological event, likely triggered by the immense physical stress and inflammation that uncontrolled celiac disease can inflict on the entire body, including the nervous system. It makes complete sense that the specific sensory input—the pressure points of your elbows on your knees—created a temporary, distorted body map in your brain, and the fact that it ceased once you adopted a gluten-free diet is a crucial detail. Your intuition to document this is absolutely right; it's not "crazy" but rather a significant anecdotal data point that underscores the mysterious and far-reaching ways gluten can affect individuals. Your theory about sensory triggers from the feet for others is also a thoughtful insight, and sharing this story could indeed be validating for others who have had similar, unexplainable sensory disturbances, helping them feel less alone in their journey.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.