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Recently Dx Celiac Struggles W/ Side Effects


pixespirit

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pixespirit Rookie

Greetings,

I am looking for support from others who may have gone through similar experiences. I need to know if what I'm going through is normal. Any feedback is appreciated.

I'm a 37 year old woman who was diagnosed (dx) w/ celiac disease Jan. 15, 2010. Upon receiving the dx, I changed my diet IMMEDIATELY. I've been experiencing loose stools since the beginning of December 2009, and I continue to have it today. My food moves through me within one hour. Everything I've read indicates that people start feeling better w/ more energy after changing their diet. I have yet to experience that 2 1/2 mo. later. In fact, I'm more lethargic each day. I got B12 shots several times over the past 6 months, but I need to lay down on a daily basis. I am a professional and I'm in graduate school working on my second graduate degree. I am also a mother and wife. Children were tested for Celiac, and thankfully both were negative. In addition to going gluten free, I cut out a great deal of sugar and soda. Additionally, I gained weight back in November and I continue to hold onto despite the new rabbit eating diet. I've called my dr. several times. He's sending me an order or more blood work to see if the Spru is decreasing. I do yoga when I can and would do it three times a week if my schedule allowed for it...but other duties call---sadly. I saw a nutritionist who gave me good idea's and helped me work through my sweet tooth addiction. Honestly, the loose stools and lethargy are driving me NUTS! I can handle the diet...but going to the bathroom 4-6 times a day and NEEDING a nap on a daily basis is not working for me.

Additional health issues include:

Life long allergies (environmental)

Gull Bladder removed 9 years ago

3 sinus surgeries

Ideas? Suggestions?


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Lgood22573 Rookie

The only thing I can offer is this. My father and brother both had their gallbladder removed and their food travels through them much quicker than it did before the surgery.

pixespirit Rookie

The only thing I can offer is this. My father and brother both had their gallbladder removed and their food travels through them much quicker than it did before the surgery.

Thanks--Sadly, up until December 2009, this was not an issue for me. I just happen to notice a trend with Celiac and Gull Bladder which is why I shared...Looking for magic fix :)

ravenwoodglass Mentor

Is your house gluten free? Have you done the kitchen things that need to be done like a dedicated toaster, no cooking with wheat flour even for others, restricting where others eat gluten foods to help keep crumbs down etc? Have you checked all meds OTC and script, script drugs that are generics need to be checked at each refill, supplements, some will say gluten free but still have wheat or barley grass which really is not safe for us. How about your toiletries and cosmetics, those should be gluten free also.

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    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
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      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
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      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
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