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Recently Dx Celiac Struggles W/ Side Effects


pixespirit

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pixespirit Rookie

Greetings,

I am looking for support from others who may have gone through similar experiences. I need to know if what I'm going through is normal. Any feedback is appreciated.

I'm a 37 year old woman who was diagnosed (dx) w/ celiac disease Jan. 15, 2010. Upon receiving the dx, I changed my diet IMMEDIATELY. I've been experiencing loose stools since the beginning of December 2009, and I continue to have it today. My food moves through me within one hour. Everything I've read indicates that people start feeling better w/ more energy after changing their diet. I have yet to experience that 2 1/2 mo. later. In fact, I'm more lethargic each day. I got B12 shots several times over the past 6 months, but I need to lay down on a daily basis. I am a professional and I'm in graduate school working on my second graduate degree. I am also a mother and wife. Children were tested for Celiac, and thankfully both were negative. In addition to going gluten free, I cut out a great deal of sugar and soda. Additionally, I gained weight back in November and I continue to hold onto despite the new rabbit eating diet. I've called my dr. several times. He's sending me an order or more blood work to see if the Spru is decreasing. I do yoga when I can and would do it three times a week if my schedule allowed for it...but other duties call---sadly. I saw a nutritionist who gave me good idea's and helped me work through my sweet tooth addiction. Honestly, the loose stools and lethargy are driving me NUTS! I can handle the diet...but going to the bathroom 4-6 times a day and NEEDING a nap on a daily basis is not working for me.

Additional health issues include:

Life long allergies (environmental)

Gull Bladder removed 9 years ago

3 sinus surgeries

Ideas? Suggestions?


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Lgood22573 Rookie

The only thing I can offer is this. My father and brother both had their gallbladder removed and their food travels through them much quicker than it did before the surgery.

pixespirit Rookie

The only thing I can offer is this. My father and brother both had their gallbladder removed and their food travels through them much quicker than it did before the surgery.

Thanks--Sadly, up until December 2009, this was not an issue for me. I just happen to notice a trend with Celiac and Gull Bladder which is why I shared...Looking for magic fix :)

ravenwoodglass Mentor

Is your house gluten free? Have you done the kitchen things that need to be done like a dedicated toaster, no cooking with wheat flour even for others, restricting where others eat gluten foods to help keep crumbs down etc? Have you checked all meds OTC and script, script drugs that are generics need to be checked at each refill, supplements, some will say gluten free but still have wheat or barley grass which really is not safe for us. How about your toiletries and cosmetics, those should be gluten free also.

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    • pilber309
      I eat a lot of dairy but its intermittent is this burning so I would assume it would happen all the time. Plus I have been tested for lactose intolerance  etc and I am fine and the other symptoms of that I don't get. As a aside  my dad died last month after a long illness so I wonder if the stress of that might be a influence as a bodily reaction to stress.
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      Yes Bobs redmill cgf oatmeal I started when I became gluten-free. So taking all 3 with breakfast should work? Will I notice any reactions getting used to these or should I be fine. Thanks
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      Hello, @pilber309, welcome to the forum! Are you currently consuming dairy?   You mentioned something about lots of yogurt and cheese, but did you cut it out or are you eating lots of it?   Could you clarify please? Some people with Celiac react to casein, the protein in dairy the same as to gluten with antibodies and villi damage. 
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