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Frustrated :(

curlingfan

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curlingfan Newbie
curlingfan
Posted

So I never got the official diagnosis, but I have a bunch of symptoms (low vitamin b12, d, and iron), joint aches, brain fog, slight nausea, fatigue, etc. So 2 months ago I just stopped eating it on a random day. Well right now, two months later, I feel a lot better I think. Unfortunately, my hair is still falling out, but I'm hopeful.

But the main problem is, I had near diareah for a few months now (and before that whenever I took vit. d for some reason). Not to be gross but it smelled like dirareah and was ALMOST soft enough to be diareah, but it wasn't completely. I thought it started to change back to solid brown poop last week, but I realized that I just ate a lot of dairy that week, so I think that might have been why it wasnt the diareah style. The last few days I'm back to the gross almost-diareah poop. Am I allergic to soy maybe? Do I need to just wait longer on the gluten-free diet? This is so frustrating :(

Any help is greatly appreciated!

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missy'smom Collaborator
missy'smom
Posted

gluten-free cleared things up quite a bit, dairy-free helps too(I have clear lifelong issues with dairy) but I was still having urgent, loose stools most mornings, and GI distress the nights before even after 2 years gluten-free. The thing that helped mostly solve my problem was being allergy tested for foods and eliminating all that I tested positive to-quite a few. Soy was on the list as were several other top allergens and many others that I would not have suspected. I re-introduced eggplant this week, after avoiding it for several months and got D, who would have guessed?

Wolicki Enthusiast
Wolicki
Posted

I had the same problem with nightshades. That intolerance took the longest to go away. Giving up tomoatoes was WAY worse than giving up gluten. AFter about 6 months nightshades were once again ok. My only lingering issue is broccoli. I have decided that I just don't like it enough to eat it again and not feel well. I don't care if it's good for you :P

Wolicki Enthusiast
Wolicki
Posted

So I never got the official diagnosis, but I have a bunch of symptoms (low vitamin b12, d, and iron), joint aches, brain fog, slight nausea, fatigue, etc. So 2 months ago I just stopped eating it on a random day. Well right now, two months later, I feel a lot better I think. Unfortunately, my hair is still falling out, but I'm hopeful.

But the main problem is, I had near diareah for a few months now (and before that whenever I took vit. d for some reason). Not to be gross but it smelled like dirareah and was ALMOST soft enough to be diareah, but it wasn't completely. I thought it started to change back to solid brown poop last week, but I realized that I just ate a lot of dairy that week, so I think that might have been why it wasnt the diareah style. The last few days I'm back to the gross almost-diareah poop. Am I allergic to soy maybe? Do I need to just wait longer on the gluten-free diet? This is so frustrating :(

Any help is greatly appreciated!

Do you by chance get heartburn? The reason I ask is that I ended up with LOW stomach acid, thinking it was too much. One of the side effects, for me, of low stomach acid was soft unformed stools. Once I was diligent about taking HCL with every meal and enzymes after, bms are totally normal.

curlingfan Newbie
curlingfan
Posted
  • Author

Do you by chance get heartburn? The reason I ask is that I ended up with LOW stomach acid, thinking it was too much. One of the side effects, for me, of low stomach acid was soft unformed stools. Once I was diligent about taking HCL with every meal and enzymes after, bms are totally normal.

Don't think I've ever had heartburn.

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    • trents
      how much gluten do I need to eat before blood tests?

      By trents · Posted

      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
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    • catnapt
      how much gluten do I need to eat before blood tests?

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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
    • trents
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