Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Bout To Lose My Noggin- What Is Making This Worse?

tiredofbeingsickandtired

Recommended Posts

tiredofbeingsickandtired Apprentice
tiredofbeingsickandtired
Posted

I know its been awhile since I've been here, but its hard to type when you're scratching.

I switched to sea salt, tried to find foods without added salt...can the sea salt be making this worse.

I'm skippety allergic to everything! EVERYTHING! Bare Minerals is a no go, tried every amkeup I can find and I still break out or turn beet red. I'm having a HORRIBLE time with shampoo and conditoner. I can't use sulfites or sulfates, safflower and sunflower showed up on my skin test so they're out, but they are in so many soaps, shampoos, and lotions. I used California Baby for awhile now I react horribly. My scalp is the worst though my back, legs and arms are not great either.

I need to find a soap, facewash and lotion, shampoo and conditoner, oh and makeup that won't cause me irritation :(

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Glamour Explorer
Glamour
Posted

I know its been awhile since I've been here, but its hard to type when you're scratching.

I switched to sea salt, tried to find foods without added salt...can the sea salt be making this worse.

I'm skippety allergic to everything! EVERYTHING! Bare Minerals is a no go, tried every amkeup I can find and I still break out or turn beet red. I'm having a HORRIBLE time with shampoo and conditoner. I can't use sulfites or sulfates, safflower and sunflower showed up on my skin test so they're out, but they are in so many soaps, shampoos, and lotions. I used California Baby for awhile now I react horribly. My scalp is the worst though my back, legs and arms are not great either.

I need to find a soap, facewash and lotion, shampoo and conditoner, oh and makeup that won't cause me irritation :(

I sympathize - I have been having bad attacks and don't know if I got glutened or if I even have DH. I just went off dairy a few days ago - again. I am also try to get 20-30 minutes of sunshine a day - I used to tan a little and had great skin.

As for shampoo - I switched to Dessert Essence gluten-free Coconut Shampoo in the tube. My scalp is much better and my neck base has cleared up. You can get this at most healthfood stores and whole foods. I just use this for soap (when I need soap). I just have not been using a lot of makeup or beauty products. Mascara and lipgloss.

Trying to get the diet as clean as possible and not giving up. Wheat and wheat products were making me fat. I have lost a lot of weight, and taking the advice of others and not going crazy with gluten-free baked goods. I find Udi's bread in moderation and Whole Food gluten-free bakery cheese biscuits are a good treat.

I backed off of my green juicing and it has hurt my health and I think affected the rash.

I have been using lac-hydrin but it burns and irritates the worst areas of rash. It is great for the rest of my skin. I use lubriderm free on the other areas.

  • 2 weeks later...
gabby Enthusiast
gabby
Posted

Hi,

Not sure if this will help...but I thought I'd tell you about something similar I went through 3 years ago. Everything was making me itch. I was down to using raw eggs and lemon juice with no soap to have a shower and wash my hair. But still i'd end up with a terrible horrific rash all over my arms, knees, ankles an legs. After much, much, much searching, I found out the culprit was the hot water tank in our apartment building. They use something called muric acid (not sure on the spelling of that) in the hot water tank to help keep the water pipes from getting gunky. If used properly, the muric acid should be undetectable. If they put too much in...then look out because it is very rough on skin. In our building, the guys who were supposed to be taking care of the water tank on a regular basis would instead come only once in a blue moon and then put a huge amount of muric acid in the tank. (kind of like how some people don't check the chlorine levels in their pool every day...and instead add a ton of chlorine all at once)

The building manager finally changed maintenance companies, and things got somewhat better. I eventually moved out. If you live in a house then this wouldn't be your problem. But if you are in a building...it could be making things worse for you.

Not sure if this is what is going on with you...but again thought I'd pass it on.

Guest doradomiel
Guest doradomiel
Posted

I know how you feel. Believe it or not MAC Studio Fix Powder Foundation is gluten-free. They don't advertise as gluten-free, but I found out after spending 8 hours at the mall looking for gluten-free, oil-free foundation.

I don't want a matte finish all the time, so sometimes I'll mix the powder with a "safe" lotion. I just scrape some of the powder off the top with my thumbnail, pour that into my palm, and mix with my lotion until smooth and creamy. I use a lotion with a dewy finish so it won't dry out and look matte again.

Then there's this Joelle make-up they advertise on this site, but I haven't tried it yet. But it's supposed to be gluten-free.

Guest doradomiel
Guest doradomiel
Posted

Lush also carries a lot of gluten free products too.

  • 2 weeks later...
Patricia27 Newbie
Patricia27
Posted

Hi ~ Have you cut out soy products? My husband & I are both Celiac however he cannot tolerate any soy, whatsoever. Once he cut that out, he was much better. (He had been enjoying gluten-free crackers but they contained soy)

He is on Dapsone for his rash.

I am on Diflucan since I was recently diagnosed & my yeast levels were through the roof. I am finally starting to feel better. I cheated once & paid so dearly, (or should I say harshly!) so I have become 100% gluten-free!

Best wishes to you. Let us know how you make out.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,984
    • Most Online (within 30 mins)
      7,748
    Bryan s
    Newest Member
    Bryan s
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Celiac and dermatitis herpetiformis has taken Me from Me

      By Scott Adams · Posted

      If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch--thanks for the tip about Dupixent, and I've added it to the article:  
    • Scott Adams
      New Celiac Mama in My 30s

      By Scott Adams · Posted

      I just want to clarify that what I posted is a category of research summaries we've done over the years, and nearly each one shows that there is definitely a connection to celiac disease and migraine headaches. The latest study said: "the study did indicate some potential causal associations between celiac disease and migraine with or without aura, as well as between migraine without aura and ulcerative colitis...this study did not find evidence of a shared genetic basis..." Anyway, there is definitely a connection, and you can go through more of the articles here if you're interested: https://www.celiac.com/celiac-disease/celiac-disease-amp-related-diseases-and-disorders/migraine-headaches-and-celiac-disease/
    • SusanJ
      Celiac and dermatitis herpetiformis has taken Me from Me

      By SusanJ · Posted

      Two months ago, I started taking Dupixent for dermatitis herpetiformis and it has completely cleared it up. I can't believe it! I have had a terrible painful, intensely itchy rash for over a year despite going fully gluten-free. See if your doctor will prescribe Dupixent. It can be expensive but I am getting it free. When the dermatitis herpetiformis was bad I could not do anything. I just lay in bed covered in ice packs to ease the pain/itching and using way too Clobetasol. Dapsone is also very good for dermatitis herpetiformis (and it is generic). It helped me and the results were immediate but it gave me severe anemia so the Dupixent is better for me. Not sure if it works for everyone. I cannot help with the cause of your stress but from experience I am sure the severe stress is making the celiac and dermatitis herpetiformis worse. Very difficult for you with having children to care for and you being so sick. Would this man be willing to see a family therapist with you? He may be angry at you or imagine that your illness is a psychosomatic excuse not to take care of him. A therapist might help even if he won't go with you. Also do you have any family that you could move in with (with the kids) for a short time to get away? A break may be good for you both.
    • knitty kitty
      New Celiac Mama in My 30s

      By knitty kitty · Posted

      @tiffanygosci, Thiamine deficiency is a thing in pregnancy for "normal" people, so it's exponentially more important for those with celiac disease and malabsorption issues. I studied nutrition before earning a degree in Microbiology because I was curious what the vitamins were doing inside the body.  See my blog.  Click on my name to go to my page, scroll to drop down menu "activities" and select blog.   So glad you're motivated to see the dietician!  We're always happy to help with questions.  Keep us posted on your progress! 
    • tiffanygosci
      New Celiac Mama in My 30s

      By tiffanygosci · Posted

      Thank you for sharing all of this, Knitty Kitty! I did just want someone to share some commonality with. I did not know This one Deficiency was a thing and that it's common for Celiac Disease. It makes sense since this is a disorder that causes malabsorption. I will have to keep this in mind for my next appointments. You also just spurred me on to make that Dietician appointment. There's a lot of information online but I do need to see a professional. There is too much to juggle on my own with this condition.<3
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.