Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Just Venting a Bit

hypersof

By hypersof
in Coping with Celiac Disease

Recommended Posts

hypersof Apprentice
hypersof
Posted

Here I am, 1month gluten-free and it has been great!

But I think I got glutened last week -no idea from what exactly!

So, I had the digestion symptoms coming back 5 days ago; took some gas-x and miralax the 1st day and it helped making them go away...my digestive tract feels ok now, but the fatigue/ brain fog, and my dyshidrosis & acne came back too -I feel like crap.

I hope this isn't going to last too long, 'cause this is tough and right now I just miss so much feeling good again!

So I guess I just needed to write it down, it helps a little bit already.

And I wanted to thank all of you guys, it's been a while I'm hanging around the board and reading treads, and it is fantastic how it helps reading your stories (for all the info, and the support!)

Sophie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


hypersof Apprentice
hypersof
Posted
  • Author

Sorry for the title typo, I meant "..Venting a Bit" of course :)

Stylo Rookie
Stylo
Posted

I hope you feel better! How long do the symptoms usually last if you accidentally digest gluten? Hopefully not too long.

I understand how you feel about the board, this has been great for me to have somewhere I can go to learn more and ask for help.

hypersof Apprentice
hypersof
Posted
  • Author

I hope you feel better! How long do the symptoms usually last if you accidentally digest gluten? Hopefully not too long.

I understand how you feel about the board, this has been great for me to have somewhere I can go to learn more and ask for help.

Well, I think this is the first time I got glutened, so I have no idea how long this "usually" lasts...I guess I'll find out now :)

kareng Grand Master
kareng
Posted

Sorry for the title typo, I meant "..Venting a Bit" of course :)

I thought maybe you type with an exotic accent. I just type with a boring Midwest one.

Sorry you feel bad. I know that my iron pills & some of my vitamins bug me sometimes (no gluten just hard to process). Am having a vitamin holiday today.

Welda Johnson Newbie
Welda Johnson
Posted

Hi,

I have been gluten free for YEARS, so I was so surprised last week to be feeling really lousy after lunch a couple of days in a row. Come to find out, the shrimp sauce I thought was okay was not--it listed WHEAT as an ingredient! I think now I must go back to square one and really be diligent about reading the ingredients in everything. Hope you are doing great today and that you are getting over being glutened. Good ending to my story was that I slept like a baby last night, once that was all out of my system. Best wishes.

hypersof Apprentice
hypersof
Posted
  • Author

kareng, this time it was a typo but at times my sentences can seem strange -it's because I'm french :)

welda, it's interesting. I am so focused on understanding the diet & feeling better now, that I didn't even think about how it must feel being an old pro of the gluten-free diet...I guess we all have our distracted moments, weather we're newbies or not ;) otherwise, I also guess (hope?) that it gets easier??

anyway, thanks again for your replies!

feels better already, just to read you -and I'm sure I'll wake up feeling even better tomorrow!

Sophie

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Jsingh
      - Jsingh replied to lizzie42's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      Hi, My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine...
    2. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    3. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    4. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    5. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,862
    • Most Online (within 30 mins)
      7,748
    ZoesDad
    Newest Member
    ZoesDad
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Jsingh
      Son's legs shaking

      By Jsingh · Posted

      Hi,  My 7 year daughter has complained of this in the past, which I thought were part of her glutening symptom, but more recently I have come to figure out it's part of her histamine overload symptom. This one symptom was part of her broader profile, which included irritability, extreme hunger, confusion, post-nasal drip. You might want to look up "histamine intolerance". I wish I had known of this at the time of her diagnosis, life would have been much easier.  I hope you are able to figure out. 
    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.