Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated And Mad At Doctors!

sandiz

By sandiz
in Doctors

Recommended Posts

sandiz Apprentice
sandiz
Posted

Went to the doctor the other day for ct scan results for lower right abdominal pain. Nothing was wrong he said. Had mentioned to him about this site and was wondering about the itchy bumps I have been getting. I asked him if it was gluten coming out in my system, he laughed at me and said that was not possible. Gluten passes thru your system it doesn't stay there, he also said don't believe everything I read.

Talk about bad "bed side" manners. He offered no answers. I felt so pissed off when I left. Have searched and there are no doctors in my area that deal with this. Doctors are very scarse so have no where to turn.

No wonder people turn to sites like this with no help or support from there doctors.

Feeling frustrated and mad!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I am sorry you live in an underserved medical area :( It is true that the most common reaction celiacs receive from the medical profession is skepticism and put-downs. Doctors should believe more of what they read!! Then they would be more educated. The trouble is that most of them do not read their own medical journals and keep up to date. Any doctor who graduated before 1995 is probably under-educated about celiac. However, fortunately not all doctors believe that they are God, their patients idiots or headcases, or sometimes both!

Do you have a state Celiac Society who could recommend a doctor within driving distance of where you live? It would be well worth the trip!

sandiz Apprentice
sandiz
Posted
  • Author

I am sorry you live in an underserved medical area :( It is true that the most common reaction celiacs receive from the medical profession is skepticism and put-downs. Doctors should believe more of what they read!! Then they would be more educated. The trouble is that most of them do not read their own medical journals and keep up to date. Any doctor who graduated before 1995 is probably under-educated about celiac. However, fortunately not all doctors believe that they are God, their patients idiots or headcases, or sometimes both!

Do you have a state Celiac Society who could recommend a doctor within driving distance of where you live? It would be well worth the trip!

I live on Vancouver Island, BC, Canada and the closest doctor is in the next province hundreds of miles away. Thank you.

mushroom Proficient
mushroom
Posted

I live on Vancouver Island, BC, Canada and the closest doctor is in the next province hundreds of miles away. Thank you.

How about a ferry trip to Vancouver? :D

T'is is a pleasant voyage if I recall, from Nanaimo, if the sea is right :)

sandiz Apprentice
sandiz
Posted
  • Author

How about a ferry trip to Vancouver? :D

T'is is a pleasant voyage if I recall, from Nanaimo, if the sea is right :)

Is there a doctor in Vancouver that deals with gluten? I know there is a support group in Nanaimo, which is half hour from me. It is hard to get to things because of work and days off. Not to mention the fact that I can't afford to take time off work.

mushroom Proficient
mushroom
Posted

Is there a doctor in Vancouver that deals with gluten? I know there is a support group in Nanaimo, which is half hour from me. It is hard to get to things because of work and days off. Not to mention the fact that I can't afford to take time off work.

I would think the Nanaimo support group would probably have some good information for you - worth a try anyway! They might meet in the evenings even.

ravenwoodglass Mentor
ravenwoodglass
Posted

Do you have access to a dermatologist? The itchy bumps could be DH and a diagnosis of DH is a diagnosis of celiac. It isn't the gluten coming out through the skin, your doctor was correct about that. It is an antibody reaction in the skin. A dermatologist can do a biopsy of the sking next to the lesions to find it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      130,810
    • Most Online (within 30 mins)
      7,748
    JayCee1995
    Newest Member
    JayCee1995
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Izelle
      Anyone From South Africa

      By Izelle · Posted

      Thank you very much for your reply and the information. I much appreciate it
    • Suze046
      Gluten Intolerance And Low White Blood Cell Counts?

      By Suze046 · Posted

      Hello, I am new here and currently on my 3rd week of gluten-free and finally starting to feel better after 5 months of pain, IBS symptoms, and losing 1 and a half stone.  I also have low white blood cells and wondered if it might be related.  Just wanted to share! I've been tested for autoimmune diseases and had stool tests, blood tests and all fine (apart from white blood cells are at 3.0). Doc wants to retest for Celiac but I need to be eating gluten and quite frankly, I really don't want to! 
    • cristiana
      Struggling to get into a good pattern

      By cristiana · Posted

      Since I've been a member of this forum,  I've seen some people write that they have not been able to tolerate corn, and others nightshades - tomatoes, potatoes, eggplant, and peppers (including bell peppers, chili peppers, and paprika).    However, intolerances can be short term, just while you are healing.    So bear this in mind if you start dropping certain foods from your diet - you may well be able to eat them again once you are healed.
    • trents
      Anyone From South Africa

      By trents · Posted

      Welcome to the forum, @Izelle! Normally, the diagnosis of celiac disease involves two stages.  The first stage involves a simple blood test that looks for antibodies that are pretty specific to celiac disease. Celiac disease is an autoimmune disorder that attacks the lining of the small bowel which produces antibodies that can be detected in the blood with tests specifically designed for this purpose. There are a number of these tests that can be run. Some are more specific for celiac disease and thus more reliable than others. The two most common antibody tests ordered by physicians when diagnosing celiac disease are the "total IGA" and the "tTG-IGA" test. At least these two should always be ordered. Here is a an article outlining the subject matter of celiac antibody tests:  If the tTG-IGA levels are 10x normal then it is becoming common practice in some countries to grant a celiac diagnosis on the bloodwork alone. The second stage involves an endoscopy with biopsy of the small bowel lining to look for the damage to the small bowel lining typically caused by celiac disease's inflammatory process over time. This is usually done in response to one or more positives from the blood antibody testing and constitutes confirmation of the antibody testing to eliminate the possibility of false positives. 
    • Izelle
      Anyone From South Africa

      By Izelle · Posted

      Hi there, Please can you tell me exactly how this disease is diagnosed? I am also from South Africa Regards Izelle
×
×
  • Create New...