Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Frustrated And Mad At Doctors!

sandiz

By sandiz
in Doctors

Recommended Posts

sandiz Apprentice
sandiz
Posted

Went to the doctor the other day for ct scan results for lower right abdominal pain. Nothing was wrong he said. Had mentioned to him about this site and was wondering about the itchy bumps I have been getting. I asked him if it was gluten coming out in my system, he laughed at me and said that was not possible. Gluten passes thru your system it doesn't stay there, he also said don't believe everything I read.

Talk about bad "bed side" manners. He offered no answers. I felt so pissed off when I left. Have searched and there are no doctors in my area that deal with this. Doctors are very scarse so have no where to turn.

No wonder people turn to sites like this with no help or support from there doctors.

Feeling frustrated and mad!!!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mushroom Proficient
mushroom
Posted

I am sorry you live in an underserved medical area :( It is true that the most common reaction celiacs receive from the medical profession is skepticism and put-downs. Doctors should believe more of what they read!! Then they would be more educated. The trouble is that most of them do not read their own medical journals and keep up to date. Any doctor who graduated before 1995 is probably under-educated about celiac. However, fortunately not all doctors believe that they are God, their patients idiots or headcases, or sometimes both!

Do you have a state Celiac Society who could recommend a doctor within driving distance of where you live? It would be well worth the trip!

sandiz Apprentice
sandiz
Posted
  • Author

I am sorry you live in an underserved medical area :( It is true that the most common reaction celiacs receive from the medical profession is skepticism and put-downs. Doctors should believe more of what they read!! Then they would be more educated. The trouble is that most of them do not read their own medical journals and keep up to date. Any doctor who graduated before 1995 is probably under-educated about celiac. However, fortunately not all doctors believe that they are God, their patients idiots or headcases, or sometimes both!

Do you have a state Celiac Society who could recommend a doctor within driving distance of where you live? It would be well worth the trip!

I live on Vancouver Island, BC, Canada and the closest doctor is in the next province hundreds of miles away. Thank you.

mushroom Proficient
mushroom
Posted

I live on Vancouver Island, BC, Canada and the closest doctor is in the next province hundreds of miles away. Thank you.

How about a ferry trip to Vancouver? :D

T'is is a pleasant voyage if I recall, from Nanaimo, if the sea is right :)

sandiz Apprentice
sandiz
Posted
  • Author

How about a ferry trip to Vancouver? :D

T'is is a pleasant voyage if I recall, from Nanaimo, if the sea is right :)

Is there a doctor in Vancouver that deals with gluten? I know there is a support group in Nanaimo, which is half hour from me. It is hard to get to things because of work and days off. Not to mention the fact that I can't afford to take time off work.

mushroom Proficient
mushroom
Posted

Is there a doctor in Vancouver that deals with gluten? I know there is a support group in Nanaimo, which is half hour from me. It is hard to get to things because of work and days off. Not to mention the fact that I can't afford to take time off work.

I would think the Nanaimo support group would probably have some good information for you - worth a try anyway! They might meet in the evenings even.

ravenwoodglass Mentor
ravenwoodglass
Posted

Do you have access to a dermatologist? The itchy bumps could be DH and a diagnosis of DH is a diagnosis of celiac. It isn't the gluten coming out through the skin, your doctor was correct about that. It is an antibody reaction in the skin. A dermatologist can do a biopsy of the sking next to the lesions to find it.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Have Tru Joy Sweets Choco Chews been discontinued??

      Please read the original post--they are looking for a gluten and milk-free treat to replace Tootsie Rolls for their child who loves Tootsie Rolls, but can no longer have them due to a dairy issue--they are not looking for M&M's.
    2. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Have Tru Joy Sweets Choco Chews been discontinued??

      They both do. The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less...
    3. Scott Adams
      - Scott Adams replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Have Tru Joy Sweets Choco Chews been discontinued??

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    4. Jmartes71
      - Jmartes71 replied to chrish42's topic in Doctors
      7

      Doctors and Celiac.com

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets...
    5. Wheatwacked
      - Wheatwacked replied to MauraBue's topic in Gluten-Free Foods, Products, Shopping & Medications
      5

      Have Tru Joy Sweets Choco Chews been discontinued??

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values. Both are made with sugar, not high fructose corn syrup. I use them as a gluten free substitute...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,271
    • Most Online (within 30 mins)
      7,748
    A Payne
    Newest Member
    A Payne
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      Please read the original post--they are looking for a gluten and milk-free treat to replace Tootsie Rolls for their child who loves Tootsie Rolls, but can no longer have them due to a dairy issue--they are not looking for M&M's.
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      They both do.  The peanuts add nutrients to the treat. Tootsie Roll: Sugar, Corn Syrup, Palm Oil, Condensed Skim Milk, Cocoa, Whey, Soy Lecithin, Artificial and Natural Flavors. M&M Peanut: milk chocolate (sugar, chocolate, skim milk, cocoa butter, lactose, milkfat, peanuts, soy lecithin, salt, natural flavor), peanuts, sugar, cornstarch; less than 1% of: palm oil, corn syrup, dextrin, colors (includes blue 2 lake, blue 1 lake, red 40, yellow 6 lake, yellow 5, yellow 6, blue 1, yelskim milk contains caseinlow 5 lake, blue 2, red 40 lake), carnauba wax, gum acacia. glycemic index of Tootsie Rolls ~83 gycemic index of M&M Peanuts ~33   The composition of non-fat solids of skim milk is: 52.15% lactose, 38.71% protein (31.18% casein, 7.53% whey protein), 1.08% fat, and 8.06% ash.   https://onlinelibrary.wiley.com/doi/10.1002/9781118810279.ch04  Milkfat carries the fat soluble vitamins A, D, E, and K. The solids-not-fat portion [of milk] consists of protein (primarily casein and lactalbumin), carbohydrates (primarily lactose), and minerals (including calcium and phosphorus). https://ansc.umd.edu/sites/ansc.umd.edu/files/files/documents/Extension/Milk-Definitions.pdf
    • Scott Adams
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Scott Adams · Posted

      But M&M's contain milk, and would not be at all like a Tootsie Roll.
    • Jmartes71
      Doctors and Celiac.com

      By Jmartes71 · Posted

      I appreciate you validating me because medical is an issue and it's not ok at all they they do this. Some days I just want to call the news media and just call out these doctors especially when they are supposed to be specialist Downplaying when gluten-free when they should know gluten-free is false negative. Now dealing with other issues and still crickets for disability because I show no signs of celiac BECAUSE IM GLUTENFREE! Actively dealing with sibo and skin issues.Depression is the key because thats all they know, im depressed because medical has caused it because of my celiac and related issues. I should have never ever been employed as a bus driver.After 3 years still healing and ZERO income desperately trying to get better but no careteam for celiac other than stay away frim wheat! Now im having care because my head is affected either ms or meningioma in go in tomorrow again for more scans.I know im slowly dying and im looking like a disability chaser
    • Wheatwacked
      Have Tru Joy Sweets Choco Chews been discontinued??

      By Wheatwacked · Posted

      M&M Peanuts. About the same calories and sugar while M&M Peanuts have fiber, potassium, iron and protein that Tootsie Rolls ("We are currently producing more than 50 million Tootsie Rolls each day.") don't. Click the links to compare nutritional values.  Both are made with sugar, not high fructose corn syrup.  I use them as a gluten free substitute for a peanut butter sandwich.  Try her on grass fed, pasture fed milk. While I get heartburn at night from commercial dairy milk, I do not from 'grassmilk'.     
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.