Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scopes Tomorrow!

dermgirl

Recommended Posts

dermgirl Rookie
dermgirl
Posted

Tomorrow is my day for colonoscopy and endoscopy....I waited over 2 months to see a gastro, I was forunate he has openings this week for the scopes. He is a specialist in celiac and gluten sensitivity. I am so thankful, because my other doctor has not a clue. He didn't even run the correct celiac panel. He said it was negative, to eat more bananas & take calcium. OMG! I did testing through Enterolab, I have 1 celiac gene & tested positvie for gluten sensitivity. I will be glad when Dr. Fine publishes his studies. I have been eating gluten since yesterday. Now I am saying so long to gluten....I am beginning to think it is posion for all! I cleaned my kitchen out yesterday, bags going to the homeless shelter (I worry about them too!) I have been researching recipes, trying to gear up! I have a son in college who has some of the same issues I have. He stopped eating gluten--feels so much better! I have a supportive family, so I am blessed! I have to say I am starving today, right now I am sipping on yummy chicken broth. I have to start the laxitives at 4pm...which is so funny, I have chronic diarrea. For those of you who pray, I would covet your prayers for tomorrow, I am nervous. This is my first scope. I am thankful for this forum, up until a few months ago, I could not have told you what celiac or gluten problems were about. I just keep thinking, how many people are suffering every singe day??? How many people are actually willing to change their lifestyle to feel better? I know it is worth it to me....I can't wait to start feeling better!

Blessings!

Bev

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

Tomorrow is my day for colonoscopy and endoscopy....

Blessings!

Bev

I will be thinking of you! But don't be anxious, you will be fine :-)

Ana

AutumnSong Rookie
AutumnSong
Posted

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

dermgirl Rookie
dermgirl
Posted
  • Author

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

AutumnSong Rookie
AutumnSong
Posted

Praise God! I'm thankful everything went well. Yes, God is good!

Blessings,

Elizabeth

nutralady2001 Newbie
nutralady2001
Posted

Hi Bev I have Hashimoto's too. More than likely your tests will be positive. Both my blood tests and biopsy were positive. Let us know what happens !

Black Sheep Apprentice
Black Sheep
Posted

Thanks for the prayers...God is good :-)

Blessings!

Bev

Ah, that He is!!! B) I just saw this, sorry I was too late to pray for you, too, but happy to hear that you survived your ordeal, and with such a great attitude! Even though going g.f. is hard (it's been 1 month for me), it's such a blessing to finally have an answer, 'ya know? I mean, I don't know if gluten is the root of all my health issues, it's way too soon to know, but---it's obviously a huge part of my problem. As soon as we can afford it, my doc is going to test for food allergies, too.

Let us know how your tests turn out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

I am glad this went well. I was also told I had irritation in the esophagus and stomach. Personally I feel this was a reaction from the prep as I had no stomach pain previous, none after and only had pain while drinking that nasty stuff. My doc gave me a bunch of different acid blockers to try but I used Pepto the next day for the left over discomfort and didn't need anything after that. This may not be the case for you.

I am glad to hear you are going to stick with the diet and hope the biopsies show something definative.

AlysounRI Contributor
AlysounRI
Posted

He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons.

Bev, this happened to me too.

What do you mean I have acid reflux and small ulcers in my esophagus??

How come I have never felt it??

I'm on protonix now and my doc wants me to have a repeat scope in two months to see how the little ulcers are doing.

still waiting on the results of my endopscopy and blood tests too. Next week sometime.

I'm crossing all paws for you. Just getting off the poison once and for all was such a relief!!

Good luck with everything!!

Allison

sa1937 Community Regular
sa1937
Posted

Bev, I just had my endoscopy/biopsy on Fri. My GI doc diagnosed me with gastritis and duodenitis by visual examination. I need to wait 3 weeks for a follow-up appt. as he will be out of town for two weeks so I won't know the biopsy results until then, even through they'll be available in a week.

He did tell me to go gluten free until then. So here I am wondering where I stand. I do not have stomach pain, acid reflux or anything like that so the gastritis/duodenitis was a complete surprise to me.

So I don't know if I will be diagnosed with celiac or not. Nor do I know how long it will take to see if the gluten free diet will make a difference or if 3 weeks is long enough to see any results. I had a very positive celiac panel in Dec., which pretty well tells me I do have celiac regardless of biopsy results. It just seems to take so long while waiting for a referral to a GI doc and then scheduling the endoscopy. A colonoscopy is definitely in my future. I just want to get rid of the Big D.

I'm so glad everything went well for you!!! biggrin.gif

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,590
    • Most Online (within 30 mins)
      7,748
    uhlissuh
    Newest Member
    uhlissuh
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Potential celiac need advice

      By trents · Posted

      Welcome to the forum, @Ben98! If you have been consciously or unconsciously avoiding gluten because of the discomfort it produces then it is likely that your blood antibody testing for celiac disease has been rendered invalid. Valid testing requires regular consumption of generous amounts of gluten. The other strong possibility is that you have NCGS (Non Celiac Gluten Sensitivity) which shares many of the same symptoms with celiac disease but does not have the autoimmune component and thus does not damage the small bowel lining. It is 10x mor common than celiac disease. There is currently no test for NCGS. Celiac disease must first be ruled out. Some experts in the field believe it can be a precursor to the development of celiac disease. Having one or both of the primary genes for developing celiac disease does not imply that you will develop active celiac disease. It simply establishes the potential for it. About 40% of the population has the genetic potential but only about 1% develop active celiac disease. 
    • Ben98
      Potential celiac need advice

      By Ben98 · Posted

      TTG blood test and total IGA tested on many occasions which have always remained normal, upper GI pain under my ribs since 2022. I had an endoscopy in 2023 which showed moderate gastritis. no biopsy’s were taken unfortunately. genetic test was positive for HLADQ2. extreme bloating after eating gluten, it’ll feel like I’ve got bricks in my stomach so uncomfortably full. the pain is like a dull ache under the upper left almost like a stitch feeling after a long walk. I am just wanting some advice has anyone here experienced gastritis with a gluten issue before? thank you  
    • Wheatwacked
      Unusual bright yellow but odourless discharge

      By Wheatwacked · Posted

      "Conclusions: The urinary iodine level was significantly lower in women with postmenopausal osteoporosis, and iodine replacement may be important in preventing osteoporosis"  Body iodine status in women with postmenopausal osteoporosis Low iodine can cause thyroid problems, but Iodine deficiency will not show up in thyroid tests.  Iodine is important for healing, its job is to kill off defective and aging cells (Apoptosis). Skin, brain fog, nails, muscle tone all inproved when I started taking 600 mcg (RDA 150 - 1000 mcg) of Liquid Iodine drops. Some with dermatitis herpetiformis, Iodine exacerbates the rash.  I started at 1 drop (50 mcg) and worked up to 12 drops, but I don't have dermatitis herpetiformis.
    • cristiana
      How long does it take to gain weight?

      By cristiana · Posted

      That's great news, you can do this.  Let us know how things go and don't hesitate to ask if you have any more questions. Cristiana 😊
    • petitojou
      How long does it take to gain weight?

      By petitojou · Posted

      Thank you so much for sharing your experience and I found myself giggling with happiness as I read how your body reached such spring! And I hope that your current journey is also successful!! Definitely starting the food diary! So many amazing advices. And it’s very scary. It really hits all our soft spots as well as our confidence system. Most doctors I went thought I was underage despite being in my late 20s. Right now I look like am I twelve, but is also this body that’s taking so much, so I might as well love it too! Going to make the necessary changes and stay in this path. Thank you again! 🫶
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.