Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scopes Tomorrow!

dermgirl

Recommended Posts

dermgirl Rookie
dermgirl
Posted

Tomorrow is my day for colonoscopy and endoscopy....I waited over 2 months to see a gastro, I was forunate he has openings this week for the scopes. He is a specialist in celiac and gluten sensitivity. I am so thankful, because my other doctor has not a clue. He didn't even run the correct celiac panel. He said it was negative, to eat more bananas & take calcium. OMG! I did testing through Enterolab, I have 1 celiac gene & tested positvie for gluten sensitivity. I will be glad when Dr. Fine publishes his studies. I have been eating gluten since yesterday. Now I am saying so long to gluten....I am beginning to think it is posion for all! I cleaned my kitchen out yesterday, bags going to the homeless shelter (I worry about them too!) I have been researching recipes, trying to gear up! I have a son in college who has some of the same issues I have. He stopped eating gluten--feels so much better! I have a supportive family, so I am blessed! I have to say I am starving today, right now I am sipping on yummy chicken broth. I have to start the laxitives at 4pm...which is so funny, I have chronic diarrea. For those of you who pray, I would covet your prayers for tomorrow, I am nervous. This is my first scope. I am thankful for this forum, up until a few months ago, I could not have told you what celiac or gluten problems were about. I just keep thinking, how many people are suffering every singe day??? How many people are actually willing to change their lifestyle to feel better? I know it is worth it to me....I can't wait to start feeling better!

Blessings!

Bev

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

Tomorrow is my day for colonoscopy and endoscopy....

Blessings!

Bev

I will be thinking of you! But don't be anxious, you will be fine :-)

Ana

AutumnSong Rookie
AutumnSong
Posted

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

dermgirl Rookie
dermgirl
Posted
  • Author

I am praying for you, Bev. God is good and I am asking Him to give you peace and your doctors wisdom and to work all things out for His glory.

Blessing in Christ Jesus,

Elizabeth

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

AutumnSong Rookie
AutumnSong
Posted

Praise God! I'm thankful everything went well. Yes, God is good!

Blessings,

Elizabeth

nutralady2001 Newbie
nutralady2001
Posted

Hi Bev I have Hashimoto's too. More than likely your tests will be positive. Both my blood tests and biopsy were positive. Let us know what happens !

Black Sheep Apprentice
Black Sheep
Posted

Thanks for the prayers...God is good :-)

Blessings!

Bev

Ah, that He is!!! B) I just saw this, sorry I was too late to pray for you, too, but happy to hear that you survived your ordeal, and with such a great attitude! Even though going g.f. is hard (it's been 1 month for me), it's such a blessing to finally have an answer, 'ya know? I mean, I don't know if gluten is the root of all my health issues, it's way too soon to know, but---it's obviously a huge part of my problem. As soon as we can afford it, my doc is going to test for food allergies, too.

Let us know how your tests turn out!

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

Thanks so much! I survived! I had a rough night...with the prep. I am certain I was dehydrated! I could not drink the rest of the prep this morning. I knew there was nothing left in me. I get my results in two weeks. He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons. I occasionally remember feeling like I can't swallow. He thinks it is food allergies. My colon looked good, and small intestine too :-) At least to the eye...we will see. I am gluten free as of today. I am sure I will have allergy tests soon. Since I have Hashimotos and the genetic marker for celiac...I think I will be smart to stick to the gluten-free diet. I think I will have grits for breakfast! Thanks for the prayers...God is good :-)

Blessings!

Bev

I am glad this went well. I was also told I had irritation in the esophagus and stomach. Personally I feel this was a reaction from the prep as I had no stomach pain previous, none after and only had pain while drinking that nasty stuff. My doc gave me a bunch of different acid blockers to try but I used Pepto the next day for the left over discomfort and didn't need anything after that. This may not be the case for you.

I am glad to hear you are going to stick with the diet and hope the biopsies show something definative.

AlysounRI Contributor
AlysounRI
Posted

He did say I have Esophagitis...I was shocked. I have never had any reflux or gerd symptons.

Bev, this happened to me too.

What do you mean I have acid reflux and small ulcers in my esophagus??

How come I have never felt it??

I'm on protonix now and my doc wants me to have a repeat scope in two months to see how the little ulcers are doing.

still waiting on the results of my endopscopy and blood tests too. Next week sometime.

I'm crossing all paws for you. Just getting off the poison once and for all was such a relief!!

Good luck with everything!!

Allison

sa1937 Community Regular
sa1937
Posted

Bev, I just had my endoscopy/biopsy on Fri. My GI doc diagnosed me with gastritis and duodenitis by visual examination. I need to wait 3 weeks for a follow-up appt. as he will be out of town for two weeks so I won't know the biopsy results until then, even through they'll be available in a week.

He did tell me to go gluten free until then. So here I am wondering where I stand. I do not have stomach pain, acid reflux or anything like that so the gastritis/duodenitis was a complete surprise to me.

So I don't know if I will be diagnosed with celiac or not. Nor do I know how long it will take to see if the gluten free diet will make a difference or if 3 weeks is long enough to see any results. I had a very positive celiac panel in Dec., which pretty well tells me I do have celiac regardless of biopsy results. It just seems to take so long while waiting for a referral to a GI doc and then scheduling the endoscopy. A colonoscopy is definitely in my future. I just want to get rid of the Big D.

I'm so glad everything went well for you!!! biggrin.gif

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,040
    • Most Online (within 30 mins)
      7,748
    marlee h
    Newest Member
    marlee h
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.