Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

What Is Your Ethnic Origin?


Emme999

Recommended Posts

Emme999 Enthusiast

After reviewing my "Celiac Info Packet" mommida commented on my last name (shown in my email address): Larsen. She said something about being of Scandinavian descent and the higher incidence of celiac disease in those countries (Norway, Sweden, Denmark, Finland, Iceland, and the Faroe Islands). So - I'm wondering how many people in the forum are from Scandinavian countries. Then I started wondering where people here originated from in general :)

So - here's the newest poll: Where did your family originate? I'm really interested in seeing if there is any relevance (in the Forum) to the Scandinavian thing. In the book "Dangerous Grains" the author made a note about the "facial and hair features typical of celiac disease" They are: Blue eyes and fair hair, triangular face shape, and prematurely greying hair. That alone sounds like a description of a Scandinavian person!

Also - if anyone knows anything about this link, please fill me in ;)

Thanks!!

- Michelle :wub:


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



  • Replies 132
  • Created
  • Last Reply
Emme999 Enthusiast

BTW - I'm a Danish/German mix :)

Blonde hair, blue-green eyes. Square face shape though! And fortunately not greying yet ;)

VydorScope Proficient

My father's parents came over form Italy via ellis island, makeing me 2nd generation Italian on that side. My Mom's family pre-dates America with being here. Alot of "Native American" blood in me, plus dutch, etc. A turly American mix.

Olive skin, dark hair, hazel eyes, and "navtive american typical facial sturcture."

Guess I do not fit the prescription your looking for :)

frenchiemama Collaborator

British Isles Mutt with some German. Maternal Grandmother's family from England, Maternal Grandfather's family from Germany, Paternal Grandmother's family from Ireland and Paternal Grandfather's family from Scotland.

My mom, sister, brother, mom's 4 siblings and me are all redheads.

anewsprue Newbie

A bit of a mutt here too, Native American, Swedish, French and Jewish by my Grandfather (my sister and mother both have Crohn's disease which some claim is higher in Jewish folk).

Dark hair (cept for the large amt of gray), green eyes and a round face, medium complexion.

celiac3270 Collaborator

1/4 Swedish, 1/4 Swiss (Mom's side), and then a mix of Irish, Scottish, English on my Dad's side.

I'm your quintessential celiac...obvious symptoms and Northern European descent.

Brown hair, brown eyes, umm...don't know how to describe face shape and stuff... :lol: I'll put myself in an avatar this summer ;)

ianm Apprentice

Northern European mongrel. A mix of the Scandinavian and Germanic ethnic groups.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Carriefaith Enthusiast

Father's side: Scottish, Irish, English

Mother's side: Norwegian, Irish, English

The celiac gene is passed from my mothers side of the family since her mother has it. My grandmother's origian is mostly English.

I also have very fair skin, blue eyes (except I have one fairly large brown spot in my right eye), and dark blond hair.

Emme999 Enthusiast

Does anyone know of any good links concernng the epidemiology of Celiac Disease? I know there is a high rate of this disease in Irish & Scandinavian lines, but can't remember where I read that.. :huh:

I think it's really interesting that we've seen a lot of both of those already listed in these posts.

And I think it's cool that there are people who *don't* have that lineage who are showing that it *does* show up elsewhere!

Thanks everybody :)

- Michelle :wub:

mytummyhurts Contributor

I'm a whole bunch of stuff, I couldn't even begin to write it all here because I don't even know all what. But I usually say I'm English and German when people ask. I think those are the major parts. I have auburn hair and hazel eyes. :)

We had a post up a while back where somebody asked who was Irish because that seemed to be a heritage that had a lot of celiac and, if I remember correctly, almost everybody had some Irish in them somewhere. The people that posted that is.

skbird Contributor

I'm 3/4 Dutch and the last 1/4 is split between Welsh and Scottish.

When I got my gene test though I have DQ3-9 which is a big Mediterannean gene. When I Google it it comes up with all this info about Iranian women and even Brazillian women but none of my nationality. I thought that was interesting and asked EnteroLab about it - they said probably just a gene from someone of a different heritage floating around in there (must be that great great great great aunt... :) )

Anyway, I'm fair skinned, strawberry blond hair, blue gray eyes.

Stephanie

psawyer Proficient

One grandparent each of Scottish, English, Swedish and Norwegian ancestry.

Guest Viola

My mother was born in Hungury, my father was English descent. I'm fair skinned, blue eyes.

In Hungury, every few years the school children going into first grade are tested for Celiac, as there is a high rate of the disease there. Finland is also high. If a child is found to have Celiac, the whole family is tested.

It is believed that the earlier they are found, the cheaper it is to treat, as they don't usually get the secondary auto immune problems when caught early. Perhaps North America should learn from them :rolleyes:

Emme999 Enthusiast
It is believed that the earlier they are found, the cheaper it is to treat, as they don't usually get the secondary auto immune problems when caught early. Perhaps North America should learn from them  :rolleyes:

Good call Shirley!! ;)

Eliza13 Contributor

I am from Azorean (Portuguese) decent, but my grandfather had blue eyes and was very light indicating possible Irish background. There is a history of some Irish settlement on the island of Sao Miguel which is where my parents are from.

celiac3270 Collaborator

Here's the Irish ancestry topic: ;)

Open Original Shared Link

Emme999 Enthusiast

Thanks celiac3270!! :)

Wow, so many Scandinavians, Germans, and Irish!

I will have to tell my friend about this - his last name is "O'Conner" and when I told him about some of the symptoms associated with Celiac he said, "Hmm... Maybe I should be tested! I have a lot of those!"

With a name like O'Conner.. ;) Maybe he should!

bmorrow Rookie

Hi,

I am English, Irish and German. I have blue eyes, blonde hair and fair skin.

Emme999 Enthusiast

This is from the page: Open Original Shared Link

It's an article written in June 2003. I'll keep looking for something more recent ;)

Celiac disease is a disorder of Caucasians. It affects females slightly more often than males. It appears to be almost non-existent in African and Asian populations. It does occur in Asia among the populations of Indo-European heredity, for example, among the Punjabis of India. The prevalence of celiac disease in European countries is about 1 per 200 individuals, based on general population screening. It had been believed for years that prevalence in the North American population was much less

celiac3270 Collaborator

The article's okay except for two things, one of which is that it's supposedly a disorder of Caucasians. Although Caucasians are most commonly diagnosed, Dr. Green has said and I have read in other places (don't have links now) that the prevalence of celiac is thought to be highest in portions of Africa, where it reaches a prevalence of about 1/50.

The other thing is, the article says that we think it's 1/2000 in NA. Really, though, estimates were 1/5000 (which is about the current diagnosis rate) and it's now thought to be 1/133 Americans...don't know about Canada, but I suspect it's a similar figure.

Carriefaith Enthusiast

That's very interesting. I wonder why it's more common in Caucasians.

Emme999 Enthusiast

Okay, this is from Gastroenterology Online - April 2005 Open Original Shared Link

The proportion of people in a population who have celiac disease at a specified time (prevalence rate) depends of course on definition of the disease. Figure 3 illustrates prevalence of preclinical (latent), undiagnosed (largely silent), and diagnosed (mostly active) celiac disease in several European and US populations. Although the prevalence of diagnosed celiac disease varied widely among these populations, the estimates of combined undiagnosed and diagnosed (or silent and active) celiac disease were remarkably similar, between 0.7%

Emme999 Enthusiast

Oops, wanted to add this (from the same site):

The estimates based on seroepidemiologic studies suggest that, for each diagnosed case of celiac disease, there may be 3

Guest Eloisa

I'm spanish/french. I have light brown hair with green eyes. My skin is very fairskinned.

gf4life Enthusiast

Years ago I tried to figure out where our ansesters were from and I got the run around from my grandparents. It seems to be a mix of French, Welsh, German, Dutch, Irish, Scottich, and a bit of American Indian, and who knows what else... :rolleyes:

Now my kids have the added fun of being half Filipino, which for them means some Japanese, Chinese, Malay and Portuguese...

I have medium brown hair, greenish gold eyes, and a light skintone. My kids all have brown hair, various shades of brown eyes, and tan skin (which they get from their dad!).

I think now a days, with all the various racial mixes it is impossible to say that any disease is specific to a certain race. One of my children spent 7 years without a diagnosis of a genetic disease (called Familial Mediteranean Fever) because most of the doctors he saw wouldn't conscider this since neither my husband or I had the apparent genetic background. But if you conscider the French (and who knows what else) in my background, and the Portuguese in my husband, you get enough mediteranean to conscider the disease. We had one open-minded doctor finally figure out that one. I had narrowed my diagnosis(through my own research) to that disease and one other, which was unlikely since my husband doesn't seem to have any Dutch in him...Anyhow, I'm just saying that it isn't impossible to be Celiac and be one of the appearantly low-risk racial groups.

God bless,

Mariann

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - AlwaysLearning replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    2. - Colleen H replied to Colleen H's topic in Coping with Celiac Disease
      3

      Gluten related ??

    3. - Jmartes71 replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof

    4. - AlwaysLearning replied to Jmartes71's topic in Coping with Celiac Disease
      4

      My only proof


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,089
    • Most Online (within 30 mins)
      7,748

    Clare Durham
    Newest Member
    Clare Durham
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • AlwaysLearning
      Get tested for vitamin deficiencies.  Though neuropathy can be a symptom of celiac, it can also be caused by deficiencies due to poor digestion caused by celiac and could be easier to treat.
    • Colleen H
      Thank you so much for your response  Yes it seems as though things get very painful as time goes on.  I'm not eating gluten as far as I know.  However, I'm not sure of cross contamination.  My system seems to weaken to hidden spices and other possibilities. ???  if cross contamination is possible...I am in a super sensitive mode of celiac disease.. Neuropathy from head to toes
    • Jmartes71
      EXACTLY! I was asked yesterday on my LAST video call with Standford and I stated exactly yes absolutely this is why I need the name! One, get proper care, two, not get worse.Im falling apart, stressed out, in pain and just opened email from Stanford stating I was rude ect.I want that video reviewed by higher ups and see if that women still has a job or not.Im saying this because I've been medically screwed and asking for help because bills don't pay itself. This could be malpratice siit but im not good at finding lawyers
    • AlwaysLearning
      We feel your pain. It took me 20+ years of regularly going to doctors desperate for answers only to be told there was nothing wrong with me … when I was 20 pounds underweight, suffering from severe nutritional deficiencies, and in a great deal of pain. I had to figure it out for myself. If you're in the U.S., not having an official diagnosis does mean you can't claim a tax deduction for the extra expense of gluten-free foods. But it can also be a good thing. Pre-existing conditions might be a reason why a health insurance company might reject your application or charge you more money. No official diagnosis means you don't have a pre-existing condition. I really hope you don't live in the U.S. and don't have these challenges. Do you need an official diagnosis for a specific reason? Else, I wouldn't worry about it. As long as you're diligent in remaining gluten free, your body should be healing as much as possible so there isn't much else you could do anyway. And there are plenty of us out here who never got that official diagnosis because we couldn't eat enough gluten to get tested. Now that the IL-2 test is available, I suppose I could take it, but I don't feel the need. Someone else not believing me really isn't my problem as long as I can stay in control of my own food.
    • AlwaysLearning
      If you're just starting out in being gluten free, I would expect it to take months before you learned enough about hidden sources of gluten before you stopped making major mistakes. Ice cream? Not safe unless they say it is gluten free. Spaghetti sauce? Not safe unless is says gluten-free. Natural ingredients? Who knows what's in there. You pretty much need to cook with whole ingredients yourself to avoid it completely. Most gluten-free products should be safe, but while you're in the hypersensitive phase right after going gluten free, you may notice that when something like a microwave meal seems to not be gluten-free … then you find out that it is produced in a shared facility where it can become contaminated. My reactions were much-more severe after going gluten free. The analogy that I use is that you had a whole army of soldiers waiting for some gluten to attack, and now that you took away their target, when the stragglers from the gluten army accidentally wander onto the battlefield, you still have your entire army going out and attacking them. Expect it to take two years before all of the training facilities that were producing your soldiers have fallen into disrepair and are no longer producing soldiers. But that is two years after you stop accidentally glutening yourself. Every time you do eat gluten, another training facility can be built and more soldiers will be waiting to attack. Good luck figuring things out.   
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.