Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Tiredness Poll

Leper Messiah

Recommended Posts

Leper Messiah Apprentice
Leper Messiah
Posted

Just wondering if anyone gets seriously tired after eating foods which they know or think are triggers for them? And by seriously I mean like a sleepy/brain fog stupor.

From reading posts on the forum it seems digestive issues are the main problem people face. Whilst I get bloating/other issues this is secondary to the tiredness. I do have borderline weak adrenals though so this may be a contributing factor. Be interesting to hear others experiences as a bit of a straw poll.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


WheatChef Apprentice
WheatChef
Posted

Yes.

Last time I got glutened I was pretty much sapped for energy for the entire next day and decently drained the day after that.

jenngolightly Contributor
jenngolightly
Posted

This is one of my primary symptoms. I sleep for hours on end. Sometimes I have to call in sick so I can sleep all day. This is in addition to sleeping extra hours at night. Usually this lethargy/brain fog/sleepiness lasts for a week.

Mac55 Apprentice
Mac55
Posted

Do you mean trigger foods, as in gluten or other foods that cause issues? Exhaustion, brain fog, confusion, etc. are my worst complaints after I've been glutened. Well, my mood is up there too. It all seems to be getting worse the longer I'm gluten-free, which I've read is normal. I get to the point where I'm useless and thank God my kids still nap because I crash in the afternoon.

CeliacKate29 Newbie
CeliacKate29
Posted

Just wondering if anyone gets seriously tired after eating foods which they know or think are triggers for them? And by seriously I mean like a sleepy/brain fog stupor.

From reading posts on the forum it seems digestive issues are the main problem people face. Whilst I get bloating/other issues this is secondary to the tiredness. I do have borderline weak adrenals though so this may be a contributing factor. Be interesting to hear others experiences as a bit of a straw poll.

You are not alone!! My first symptom is always a terrible headache and then I immediately get lethargic and need to lie down. These symptoms can last up to 2 weeks for me as I am seriously sensitive to gluten. Hope this helps!

Ahorsesoul Enthusiast
Ahorsesoul
Posted

I get sleepy within 30 minutes and it can last for several days. If I'm thinking I'm so tired I need a nap just to have the energy to nap I know I've been poisoned with gluten.

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

kaki-clam Enthusiast
kaki-clam
Posted

when I first went gluten free, i found that after eating lunch i was sooo tired, i could barely keep my head up and my eyes open. It was all gluten free stuff, and stuff I knew was ok to eat, so, not trigger food, but still made me really tired...i car pool to work, thank god, because there were some nights that i wouldn't have been able to drive myself home.....after a few months, it stopped.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


newgfcali Rookie
newgfcali
Posted

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

You're too funny! :P

Yep, huge snoozer here, too. For me it only lasts a couple of days, but it's a MAJOR nap attack. I think one time I slept about 20 hours out of 24.

glutenfr3309 Rookie
glutenfr3309
Posted

yes! this is one of my symptoms!!

it will usually hit me days later but i'm wondering if i got glutened because i haven't felt this exhaustion since before i went gluten-free.

for work we out for lunch yesterday and i had a burger (no bun) and a side of steamed veggies. guess it was the burger cause i struggled waking up this morning and passed out early last night!

sandsurfgirl Collaborator
sandsurfgirl
Posted

The tiredness is awful for me.I got glutened yesterday and I'm SOOOOO tired. People have all sorts of symptoms with celiac, not just GI stuff. Probably another reason it's tough to diagnose. Neuro symptoms are pretty common, anxiety, depression, sleep disorders.

Anxiety became the bane of my existence for about 8 months before my diagnosis. It was so bad I would drive in the slow lane on the freeway in case I got too dizzy and had to pull over. After 2 days gluten free it went away, the first thing to go.

I have insomnia, which adds to my tiredness. I'm sure it's an unresolved celiac symptoms.

Leper Messiah Apprentice
Leper Messiah
Posted
  • Author

I get sleepy within 30 minutes and it can last for several days. If I'm thinking I'm so tired I need a nap just to have the energy to nap I know I've been poisoned with gluten.

I think we hear more about the intestinal problems because the other people are too tired to be on the forum.

:lol: Haha, cracking comment.

Thanks for your replies, nice to know I'm not alone in the land of nod zZz. I work as an accountant and have to pray to god no-one phones or comes over with a complex query when my symptoms come on, mainly after lunch. It's so funny (and of course frustrating) when remembering someone's friggin name who you probably spoke to just before lunch poses a challenge! I can see it in their eyes "Wat...a...dumb@ss" lol.

My inquisitive nature wants to try and figure this out...I mean why do we get so tired? What is happening to our bodies on ingestion? Is the gluten/casein/etc causing leaky gut or so much inflammation that our adrenals struggle to cope? Hmmm...any ideas? As an aside it does seem to be getting better the longer I'm avoiding gluten, dairy and eggs, I'm still very much a newb to the diet though.

proud-armywife Rookie
proud-armywife
Posted

I have seriously thought I may suffer from narcalepsy (At home. I feel like I could just pass out, like slow motion, sometimes my time perception feels distorted. It is hard to explain. It comes and goes I never have it for days only hours and the extreme reaction passes I drag after that. I find this to be the only thing that makes me want to adhear to the gluten free diet. Trying to keep the house clean running after kids, it is so hard for me to not be able to finish what I need to get done, and many times as silly as this sounds I feel so useless. But since I have found out this is what it is, I am trying to do right. I also feel like my body is shutting down during these times. I literally have called my mom an RN and told her I don't know what is going on with me, but I feel like it is struggling to operate. I swore I would die before they found out what was going on. Crazy HUH? All these things that Gluten does.It is still hard for my to believe that this could cause so many problems, and it makes me sad for people who are struggling and have no answers.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Scott Adams
      0

      Celiac Diner Sues Olive Garden After Gluten Mix-Up Leads to Medical Emergency (+Video)

    2. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed. Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    3. knitty kitty
      - knitty kitty replied to Jordan Carlson's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      1

      Fruits & Veggies

      Hello, @Jordan Carlson, So glad you're feeling better. Tecta is a proton pump inhibitor. PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12. Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the...
    4. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      16

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    5. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,040
    • Most Online (within 30 mins)
      7,748
    marlee h
    Newest Member
    marlee h
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      In the study linked above, the little girl switched to a gluten free diet and gained enough weight that that fat pad was replenished and surgery was not needed.   Here's the full article link... Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pmc.ncbi.nlm.nih.gov/articles/PMC6476019/
    • knitty kitty
      Fruits & Veggies

      By knitty kitty · Posted

      Hello, @Jordan Carlson, So glad you're feeling better.   Tecta is a proton pump inhibitor.  PPI's also interfere with the production of the intrinsic factor needed to absorb Vitamin B12.  Increasing the amount of B12 you supplement has helped overcome the lack of intrinsic factor needed to absorb B12. Proton pump inhibitors also reduce the production of digestive juices (stomach acids).  This results in foods not being digested thoroughly.  If foods are not digested sufficiently, the vitamins and other nutrients aren't released from the food, and the body cannot absorb them.  This sets up a vicious cycle. Acid reflux and Gerd are actually symptoms of producing too little stomach acid.  Insufficient stomach acid production is seen with Thiamine and Niacin deficiencies.  PPI's like Tecta also block the transporters that pull Thiamine into cells, preventing absorption of thiamine.  Other symptoms of Thiamine deficiency are difficulty swallowing, gagging, problems with food texture, dysphagia. Other symptoms of Thiamine deficiency are symptoms of ADHD and anxiety.  Vyvanse also blocks thiamine transporters contributing further to Thiamine deficiency.  Pristiq has been shown to work better if thiamine is supplemented at the same time because thiamine is needed to make serotonin.  Doctors don't recognize anxiety and depression and adult onset ADHD as early symptoms of Thiamine deficiency. Stomach acid is needed to digest Vitamin C (ascorbic acid) in fruits and vegetables.  Ascorbic acid left undigested can cause intestinal upsets, anxiety, and heart palpitations.   Yes, a child can be born with nutritional deficiencies if the parents were deficient.  Parents who are thiamine deficient have offspring with fewer thiamine transporters on cell surfaces, making thiamine deficiency easier to develop in the children.  A person can struggle along for years with subclinical vitamin deficiencies.  Been here, done this.  Please consider supplementing with Thiamine in the form TTFD (tetrahydrofurfuryl disulfide) which helps immensely with dysphagia and neurological symptoms like anxiety, depression, and ADHD symptoms.  Benfotiamine helps with improving intestinal health.  A B Complex and NeuroMag (a magnesium supplement), and Vitamin D are needed also.
    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!   Interesting Reading: Superior Mesenteric Artery Syndrome in a 6-Year-Old Girl with Final Diagnosis of Celiac Disease https://pubmed.ncbi.nlm.nih.gov/31089433/#:~:text=Affiliations,tissue and results in SMAS.  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.