Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Spreading The News?

lcharpen

Recommended Posts

lcharpen Newbie
lcharpen
Posted

I was just dx a month ago and have started on a gluten-free diet... but I'm having a really hard time telling people. I don't want to make a big deal of it and I almost feel embarassed. Which I know is silly, I can't help being gluten intolerant... I just have a hard time talking about it. And how do you bring it up anyway? "Oh hey, by the way... I just discovered wheat is the devil?"

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Black Sheep Apprentice
Black Sheep
Posted

Welcome to the board!

I've been g.f. for about 5 1/2 weeks, and if the situation comes up where someone's offering me stuff with gluten, wants to get together for pizza, etc., I just tell them, I can't eat gluten anymore. They usually ask a few questions about that, which I'm happy to answer, and so far about the worst reaction I've gotten is one of sympathy, or comments like, "Well, if you can stick to that type of diet, more power to you--but I sure couldn't!" To which--depending on my mood--I either smile understandingly and say nothing, or say something about how that's too bad....because gluten intolerance is so common, that millions of people have it and don't even know it, and so have no idea what's causing their auto-immune disorders and various "tummy troubles". That shuts them right up! :lol:

Not that I'm really trying to shut them up--heck, I'll talk to them as long as they want about the subject and it's symptoms, effects, etc., but....at that point, they just don't want to think about the possibility that they might have it. Just like me, in the very near past. But, I guess the bottom line is, as I said in another thread re. this subject: I really don't give a rat's rear end what people think. :rolleyes:

tmbarke Apprentice
tmbarke
Posted

I was just dx a month ago and have started on a gluten-free diet... but I'm having a really hard time telling people. I don't want to make a big deal of it and I almost feel embarassed. Which I know is silly, I can't help being gluten intolerant... I just have a hard time talking about it. And how do you bring it up anyway? "Oh hey, by the way... I just discovered wheat is the devil?"

My simple response is........I'm sorry, I can only eat at Olive Garden, Outback or Carrabas since I was just diagnosed with food allergies and those places have allergen menus.

Otherwise, I'd be happy to join you for drinks!

I don't want people to treat me differently (which they will) because I'm one in a million to them with THAT kind of allergy.

But my work has agreed to add fruits and veggies and dip for meetings now along with cookies and donuts for everyone else.

They don't and won't cater to me - but I'm ok with that.......since I truly trust only MY cooking and foods I put into my mouth.

Participate! Carry a salad dressing with you and have a salad......I also find that most potato skins are safe but you can ask to see the ingredients from the container or details about the process.....and feel no shame! But if anyone likes Italian! Olive Garden and Carrabas are to DIE FOR! I have the chicken kabobs with steamed veggies and salad (it's on the gluten-free menu!)

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,945
    • Most Online (within 30 mins)
      7,748
    Miyasato
    Newest Member
    Miyasato
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
    • DebJ14
      Does anyone here also have Afib

      By DebJ14 · Posted

    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      @DebJ14, You said "husband has low platelets, bruises easily and gets bloody noses just from Fish Oil  He suggested he take Black Cumin Seed Oil for inflammation.  He discovered that by taking the Black Seed oil, he can eat carbs and not go into A Fib, since it does such a good job of reducing inflammation."   I don't think black seed oil is lowering inflammation.  It's lowering blood glucose levels. Black cumin seed lowers blood glucose levels.  There's a connection between high blood glucose levels and Afib.    Has your husband been checked for diabetes?   Must Read: Associations of high-normal blood pressure and impaired fasting glucose with atrial fibrillation https://pubmed.ncbi.nlm.nih.gov/36750354/  
    • knitty kitty
      4.5 years into diagnosis, eating gluten-free and still struggling: would love support, tips, & stories

      By knitty kitty · Posted

      Healthy Omega Three fats.  Olive oil or flaxseed oil, oily fish, fatty cuts of meat.   Our bodies run much better on burning fats as fuel.  Diets based on carbohydrates require an increased amount of thiamine to process the carbs into fuel for the body.  Unfortunately, thiamine mononitrate is used to enrich rice.  Thiamine mononitrate is relatively unusable in the body.  So a high carb diet can further decrease thiamine stores in the body.  Insufficient thiamine in the body causes the body to burn body fat and muscle for fuel, so weight loss and muscle wasting occurs.  Those extra carbohydrates can lead to Candida (often confused with mold toxicity) and SIBO (Small Intestinal Bacterial Overgrowth).   Losing weight quickly is a symptom of thiamine insufficiency.  Muscle wasting is a symptom of thiamine insufficiency.  I lost sixty pounds in a month.   Having difficulty putting weight on and keeping it on is a symptom of thiamine insufficiency.   The AIP diet works because it eliminates all grains and grasses, rice, quinoa, all the carbs.  Without the carbs, the Candida and SIBO get starved and die off.  Easy way to change your microbiome is to change what you feed it.  With the rowdy neighbors gone, the intestine can heal and absorb more nutrients.   Supplementing with essential vitamins and minerals is beneficial.  Talk to your doctor and nutritionist.  Benfotiamine is a form of thiamine that promotes intestinal healing.  The eight B vitamins are water soluble, so if you don't need them, they can be gotten rid of easily.   Night shades are excluded on the AIP diet.  Potatoes, tomatoes, peppers and eggplant are not allowed on the AIP diet.  They contain alkaloids that promote "a leaky gut".  Benfotiamine can help here. Sweet potatoes are avoided because they contain thiaminases, chemicals that break thiamine so that the body cannot use it.   The AIP diet has helped me.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.