Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared!


Rachel W

Recommended Posts

Rachel W Apprentice

Ok so I have always been nervous about getting pregnant , and now even more so ! I have a few concerns..

. How much harder is it going to be for me to even GET preggo

. how much harder is it going to be on me being a Celiac patient then a normal pregnancy.

. what about my child? I just feel like if i learned they were affected I would feel awful ! I have alot of damage, I have been severe since childhood but never taken to the doctor as a child , so needless to say 23 yrs of fried Villi!!!

Does anybody worry about this or am I just neurotic lol


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



stef-the-kicking-cuty Enthusiast

I've had the same problem. Got diagnosed in 2004, 5 days before my 28th birthday. Couldn't get pregnant until November 2006. I was 30.5 years at that point, so it took me a while. I had a dream pregnancy, just speaking of being nauseous. I only really had an about two week period, where I felt a little blah, but nothing worth mentioning. I slightly spit a little bit for about 5 minutes during that time period and on one day I threw up heavily for like 15-20 minutes and that was it. For the ENTIRE pregnancy. Then the other physical ailments or pain were like non-exitent. The only major insident I had at about 6 months was that I almost miscarried. And even THEN no pain or anything, just slight pressure. If not for some co-incidental visit at the ObGyn the exact same day AND my own doc being on vacation I would be typing these words with both hands free ;)

My son was born without any birth defects, and my worries about him being damaged or anything were not necessary in the end. My own body showed a muscular problem at times, like I have it, when I get glutened, but without actually being glutened. Like when I almost lost him, that was due to my uterus muscles not functioning properly. At delivery, when it was time to push, I almost passed out, because my muscles just stopped working.

It all worked out in the end though.

Stef

Ok so I have always been nervous about getting pregnant , and now even more so ! I have a few concerns..

. How much harder is it going to be for me to even GET preggo

. how much harder is it going to be on me being a Celiac patient then a normal pregnancy.

. what about my child? I just feel like if i learned they were affected I would feel awful ! I have alot of damage, I have been severe since childhood but never taken to the doctor as a child , so needless to say 23 yrs of fried Villi!!!

Does anybody worry about this or am I just neurotic lol

NicoleAJ Enthusiast

I'm 32 weeks pregnant now, and it was no harder to get pregnant for me than it is for anyone else (I went completely gluten free almost 6 years ago). I've had celiac symptoms since having a serious illness that landed me in the hospital for 6 weeks during my infancy, but I was not diagnosed until I was 24, so my damage was pretty severe. My OB told me that as long as I follow the gluten free diet as carefully as I always have, I shouldn't have any complications due to celiac. For the most part this has been true. We've had to stay on top of my vitamin D, B-12, and iron/ferritin levels because I've developed deficiencies here and there that have needed to be taken care of, but actually the slowed down GI tract during pregnancy has been a welcome side effect for me. Because we knew that I might be more susceptible to deficiencies, we've kept a closer eye on things and have always caught everything with plenty of time to take additional supplements (beyond my regular prenatals and DHA)so that the baby can get what she needs.

Good luck and don't stress yourself out too much.

tarnalberry Community Regular

I'm 38 weeks preggo at the moment, and everything is looking just fine so far. (Including the baby being very consistent about kicking the midwives most every time they check her position. :P) I'm 31.5years old and we got pregnant on our first try. I've been gluten-free for 7 years, and have been extra anal about not getting glutened during the pregnancy. (I usually don't get glutened more than once or twice a year, as far as I can tell, anyway.)

As long as you are gluten free, stay gluten free, and address any nutritional deficiencies (either celiac induced, or not, as anemia is a very common, "normal", deficiency during pregnancy), there's no reason to suggest that you'll experience any more difficult of a pregnancy than if you weren't celiac. If you've JUST been diagnosed (dr or self), you might want to give yourself a few months before trying to get pregnant in order to let the villi heal and better absorb the nutrients you need, but I wouldn't worry about it if you're newly gluten-free and also newly pregnant. Just stay gluten-free.

Every pregnancy is different - from woman to woman and even with different children for the same pregnancy - so there's no way to say what *YOUR'S* will be like. I had nausea pretty much the entire first trimester fairly significantly, but only threw up once, the day I suspect implantation, when I was hiking out the last day of a 5 day backpacking trip. I've had the usual fatigue, the shortness in breath, pubic symphysis pain, breast tenderness, strange changes to appetite (both up and down), some heartburn and hip pain (especially this late in the pregnancy), but it's all quite standard. :) It's helped I've kept teaching yoga and walking the dog just about every day of the week. :D

As for the kid, celiac is genetic, so you have the chance of passing the genes on to him/her, but having celiac disease (or gluten intolerance) isn't the end of the world. You not eating gluten won't hurt him/her during pregnancy or breastfeeding either.

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,260
    • Most Online (within 30 mins)
      7,748

    HaleighA
    Newest Member
    HaleighA
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Jmartes71
      Hello, I just wanted to share with the frustration of skin issues and seeing dermatologist and medications not working for years, I did my own healing experiment. As of last week I have been taking a drop internally under the tongue of Vetiver and putting on topically on sores Yellow/Pom.I am seeing a extreme difference at a rapid time.Im also noticing my nails a little harder. Ive always been into natural properties because I feel its safer for the body.I know short time, but really seeing a difference. I also feel the the trapped gases that causes bloating helps break down as well.Curious if any body else can benefit from and has tried. Products is made by Doterra by Dr Hill
    • Scott Adams
      We have a category of articles on this topic if you really want to dive into it: https://www.celiac.com/celiac-disease/miscellaneous-information-on-celiac-disease/gluten-free-diet-celiac-disease-amp-codex-alimentarius-wheat-starch/
    • Scott Adams
      I agree with @trents, and the rash you described, especially its location and resistance to steroids, sounds highly characteristic of dermatitis herpetiformis, which is the skin manifestation of celiac disease. The severe and prolonged reaction you're describing five days after a small exposure is, while extreme, not unheard of for those with a high sensitivity; the systemic inflammatory response can absolutely last for several days or even weeks, explaining why you still don't feel right. Your plan to avoid a formal gluten challenge is completely understandable given the severity of your reactions, and many choose the same path for their well-being. While experiences with GliadinX (they are a sponsor here) are mixed, some people do report a reduction in the severity of their symptoms when taken with accidental gluten, though it is crucial to remember it is not a cure or a license to eat gluten and its effectiveness can vary from person to person. For now, the absolute best advice is to continue being hyper-vigilant about cross-contamination—buffets are notoriously high-risk, even with good intentions. Connecting with a gastroenterologist and a dermatologist who specialize in celiac disease is essential for navigating diagnosis and management moving forward. Wishing you a swift recovery from this last exposure. If you have DH you will likely also want to avoid iodine, which is common in seafoods and dairy products, as it can exacerbate symptoms in some people. This article may also be helpful as it offers various ways to relieve the itch:  
    • Scott Adams
      So just to be cautious, there is a big difference between cured, and responding to their medication. I assume you mean that your daughter responded well while taking KAN-101 during the trial, but the drug would not cure celiac disease, but may manage it while you are taking it. Let me know if I got this right.
    • trents
      Welcome to the forum, @Godfather! "Gluten-free" is not the same as zero gluten. The FDA standard for allowing the food industry to us the gluten-free label on a product is that it cannot exceed 20 ppm of gluten. That is safe for most celiacs but not for the subset of celiacs/gltuen sensitive people who are super sensitive. "Gluten-free" wheat starch products have been processed in such a way to remove enough of the protein gluten to comply with the FDA regulation but usually do retain some gluten and we usually get reports from some people on this forum who fall in the more sensitive range that such products cause them to react. Hope this helps. So, you may just have to experiment for yourself.
×
×
  • Create New...