Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Getting Tested, Am I Doing This Right?

MrCoffee

Recommended Posts

MrCoffee Newbie
MrCoffee
Posted

I am having an endoscopy w/biopsy done on the 20th of may to test for celiac. However, I have been gluten-free since mid/late december, or maybe before... I can't remember. I mentioned this to the GI doctor, and he said that this wouldn't be an issue. I've been told that for a proper diagnosis of celiac disease, you must not be on a gluten free diet for a certain period of time. So, what gives here? Is my GI doctor a nut or have things changed? He seemed pretty knowledgeable to me about other things, and he claims to have quite a few celiac patients.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


ravenwoodglass Mentor
ravenwoodglass
Posted

He doesn't know what he is doing. Hopefully you are back on gluten and have been for a while. If not if you want any chance of an accurate diagnosis you need to be back on the full gluten diet for 3 months. Even then there is a chance of a false negative. How did you feel gluten free?

Korwyn Explorer
Korwyn
Posted

I'm sorry, but raven is right. For a endoscopic biopsy for celiac disease to be effective you have to be on a gluten containing diet. And if you have been off gluten for a while it needs to be an extensive, intensive diet. Your GI is flat out wrong. You need to change doctors.

MrCoffee Newbie
MrCoffee
Posted
  • Author

I'll have to call up the doctor's office and question them about it again. I'll post the response. Thanks for the responses.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,937
    • Most Online (within 30 mins)
      7,748
    VNelson
    Newest Member
    VNelson
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • trents
      Is this celiac?

      By trents · Posted

      But you didn't answer my question. When you consume gluten, is there an identifiable reaction within a short period of time, say a few hours?
    • Scott Adams
      Is this celiac?

      By Scott Adams · Posted

      You can still have celiac disease with negative blood test results, although it's not very common:  Clinical and genetic profile of patients with seronegative coeliac disease: the natural history and response to gluten-free diet: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC5606118/  Seronegative Celiac Disease - A Challenging Case: https://www.ncbi.nlm.nih.gov/pmc/articles/PMC9441776/  Enteropathies with villous atrophy but negative coeliac serology in adults: current issues: https://pubmed.ncbi.nlm.nih.gov/34764141/   
    • Scott Adams
      Help I’m cross contaminating myself,

      By Scott Adams · Posted

      I am only wondering why you would need to cut out rice? I've never heard of rice being any issue in those with DH.
    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      My mother has celiac disease and was diagnosed with Afib around 8 months ago. She's 81 and around 2 months ago had ablation therapy done, which is a very common procedure to treat this, and has been out of Afib 95% of the time since then. Apparently the full effects of this treatment don't kick in for 90 days, so the doctors expect her recovery to possibly reach 100%. Be sure to discuss this with your doctor.
    • Wheatwacked
      Help I’m cross contaminating myself,

      By Wheatwacked · Posted

      The discovery of the vitamin D receptor in multiple immune cell lineages, such as monocytes, dendritic cells, and activated T cells credits vitamin D with a novel role in modulating immunological functions and its subsequent role in the development or prevention of autoimmune diseases.  The Implication of Vitamin D and Autoimmunity: a Comprehensive Review
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.