Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Newly Gluten Free And Need Some Tips


sfsassy

Recommended Posts

sfsassy Rookie

Hi everyone,

I am in the beginning stages of this process. I figured out the gluten intolerance after doing an elimination diet.

After that, my GI did a genetic test that confirmed I had one of the Celiac genes, but not necessarily the disease. He said the gold standard is to get a biopsy. I had a biopsy a year ago that found H Pylori (no Celiac) but all my major symptoms started 6 months after the H Pylori.

So question 1: Can H Pylori trigger Celiac Disease (if you have the gene)?

In any case, my body is reacting pretty well to a gluten free diet. I am about 3 weeks in now. I am also coming slowly off my elimination diet. I am adding some other things back in.

Question 2. Since adding dairy and soy back into my diet I have noticed some slight discomfort (nothing like eating gluten though). Are these good things to add in later? Should your body heal more before adding these back?

Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



ciavyn Contributor

I'll hit up question 2, and let someone else answer number 1. If you are having some discomfort, I would drop the dairy and soy back out of your diet, and add only one at a time after a few months. Some say 6 months. I added them back after about 4-5 month gluten free, and it's been hit or miss until recently. Now I can have a few ounces of dairy per day, and I'm fine. Soy -- there's all new debates and old about soy and whether or not it is good for us. I try to limit my exposure to it, as I make all my own food for the most part.

sfsassy Rookie

I'll hit up question 2, and let someone else answer number 1. If you are having some discomfort, I would drop the dairy and soy back out of your diet, and add only one at a time after a few months. Some say 6 months. I added them back after about 4-5 month gluten free, and it's been hit or miss until recently. Now I can have a few ounces of dairy per day, and I'm fine. Soy -- there's all new debates and old about soy and whether or not it is good for us. I try to limit my exposure to it, as I make all my own food for the most part.

Thanks for the info. I was thinking I needed to wait a bit longer. I have also heard recently that soy is under great debate too.

Skylark Collaborator

There is an association between celiac and H. pylori but I did a search and didn't turn up reports of H. pylori triggering celiac disease in the medical literature. That doesn't mean it didn't happen to you, of course.

It took me a full year eating gluten-free before I could tolerate soy and milk without GI symptoms.

sfsassy Rookie

There is an association between celiac and H. pylori but I did a search and didn't turn up reports of H. pylori triggering celiac disease in the medical literature. That doesn't mean it didn't happen to you, of course.

It took me a full year eating gluten-free before I could tolerate soy and milk without GI symptoms.

I did read somewhere that sometimes a traumatic event or illness sometimes triggers it. (Meaning you always had it, but without symptoms) I was trying to figure out how this all started. It's been a crazy year.

But from what I have seen, it sometimes takes a lot longer to figure out, so I am thankful. Both my reg Doc and GI looked at Celiac very quickly.

RideAllWays Enthusiast

I've been dairy free for 7 years(ish) and now after one year gluten free I am able to tolerate little bits of dairy here and there, like in chocolate. I'm scared to fully try a real milk product but I'm thinking of doing it soon just to see.. I assume it will be a different time frame for anybody and some people may not outgrow the intolerances as they heal.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to Matthias's topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    2. - Matthias posted a topic in Coping with Celiac Disease
      1

      Unexpected gluten exposure risk from cultivated mushrooms

    3. - trents replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      9

      how much gluten do I need to eat before blood tests?

    4. - Scott Adams replied to SilkieFairy's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      2

      IBS-D vs Celiac

    5. - Scott Adams replied to Amy Barnett's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Question

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,323
    • Most Online (within 30 mins)
      7,748

    bttyknight83
    Newest Member
    bttyknight83
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Upcoming Events

  • Posts

    • trents
      Welcome to the celiac.com communiuty, @Matthias! Yes, we have been aware that this can be an issue with mushrooms but as long as they are rinsed thoroughly it should not be a problem since the mushrooms don't actually incorporate the gluten into their cellular structure. For the same reason, one needs to be careful when buying aged cheeses and products containing yeast because of the fact that they are sometimes cultured on gluten-containing substrate.
    • Matthias
      The one kind of food I had been buying and eating without any worry for hidden gluten were unprocessed veggies. Well, yesterday I discovered yet another pitfall: cultivated mushrooms. I tried some new ones, Shimeji to be precise (used in many asian soup and rice dishes). Later, at home, I was taking a closer look at the product: the mushrooms were growing from a visible layer of shredded cereals that had not been removed. After a quick web research I learned that these mushrooms are commonly cultivated on a cereal-based medium like wheat bran. I hope that info his helpful to someone.
    • trents
      I might suggest you consider buckwheat groats. https://www.amazon.com/Anthonys-Organic-Hulled-Buckwheat-Groats/dp/B0D15QDVW7/ref=sr_1_4_pp?crid=GOFG11A8ZUMU&dib=eyJ2IjoiMSJ9.bk-hCrXgLpHqKS8QJnfKJLKbKzm2BS9tIFv3P9HjJ5swL1-02C3V819UZ845_kAwnxTUM8Qa69hKl0DfHAucO827k_rh7ZclIOPtAA9KjvEEYtaeUV06FJQyCoi5dwcfXRt8dx3cJ6ctEn2VIPaaFd0nOye2TkASgSRtdtKgvXEEXknFVYURBjXen1Nc7EtAlJyJbU8EhB89ElCGFPRavEQkTFHv9V2Zh1EMAPRno7UajBpLCQ-1JfC5jKUyzfgsf7jN5L6yfZSgjhnwEbg6KKwWrKeghga8W_CAhEEw9N0.eDBrhYWsjgEFud6ZE03iun0-AEaGfNS1q4ILLjZz7Fs&dib_tag=se&keywords=buckwheat%2Bgroats&qid=1769980587&s=grocery&sprefix=buchwheat%2Bgroats%2Cgrocery%2C249&sr=1-4&th=1 Takes about 10 minutes to cook. Incidentally, I don't like quinoa either. Reminds me and smells to me like wet grass seed. When its not washed before cooking it makes me ill because of saponins in the seed coat. Yes, it can be difficult to get much dietary calcium without dairy. But in many cases, it's not the amount of calcium in the diet that is the problem but the poor uptake of it. And too much calcium supplementation can interfere with the absorption of vitamins and minerals in general because it raises gut pH.
    • Scott Adams
      What you’re describing really does not read like typical IBS-D. The dramatic, rapid normalization of stool frequency and form after removing wheat, along with improved tolerance of legumes and plant foods, is a classic pattern seen in gluten-driven disease rather than functional IBS. IBS usually worsens with fiber and beans, not improves. The fact that you carry HLA-DQ2.2 means celiac disease is absolutely possible, even if it’s less common than DQ2.5, and many people with DQ2.2 present later and are under-diagnosed. Your hesitation to reintroduce gluten is completely understandable — quality of life matters — and many people in your position choose to remain strictly gluten-free and treat it as medically necessary even without formal biopsy confirmation. If and when you’re ready, a physician can help you weigh options like limited gluten challenge, serology history, or documentation as “probable celiac.” What’s clear is that this wasn’t just random IBS — you identified the trigger, and your body has been very consistent in its response.
    • Scott Adams
      Here are some results from a search: Top Liquid Multivitamin Picks for Celiac Needs MaryRuth's Liquid Morning Multivitamin Essentials+ – Excellent daily choice with a broad vitamin/mineral profile, easy to absorb, gluten-free, vegan, and great overall value. MaryRuth's Liquid Morning Multivitamin – Classic, well-reviewed gluten-free liquid multivitamin with essential nutrients in a readily absorbable form. MaryRuth's Morning Multivitamin w/ Hair Growth – Adds beauty-supporting ingredients (biotin, B vitamins), also gluten-free and easy to take. New Chapter Liquid Multivitamin and New Chapter Liquid Multivitamin Orange Mango – Fermented liquid form with extra nutrients and good tolerability if you prefer a whole-food-based formula. Nature's Plus Source Of Life Gold Liquid – Premium option with a broad spectrum of vitamins and plant-based nutrients. Floradix Epresat Adult Liquid Multivitamin – Highly rated gluten-free German-made liquid, good choice if taste and natural ingredients matter. NOW Foods Liquid Multi Tropical Orange – Budget-friendly liquid multivitamin with solid nutrient coverage.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.