Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Ecg Biopsy

Ihv2gratkids

Recommended Posts

Ihv2gratkids Newbie
Ihv2gratkids
Posted

Hi everyone, I am new to these boards. I have found some very beneficial information here.

I would like to get some opinions on my situation.

I have had chronic diarrhea for the last 13 years following the removal of my gallbladder. I

was told that this is just what happens. Off and on over these last few years I would wake up

with what felt like a rock in my stomach and I could tell that my food was not digesting

properly. Also on occasion I have had severe heartburn but the doctors just said take tums

and lay of the spicy foods.

In Oct of 09 went to the Urgent Care with severe pain in my stomach

and chest. They were just sure that I was having a heart attack and rushed me to the emergency

room(of course it wasn't). I was told it was acid reflux and I needed to take prilosec for the

rest of my life. Symptoms continued even with the medicine and my throat actually began to close

up. I have also began having severe pain under my ribs and all through my back. After several months

on medicine my GI decided to do and endoscopy. He found that I have gastritis and esophogitis but biopsy was negative for Celiac. He says the medicines I'm on should be working. I take 60mg Kapidex twice a day and a

perscription strength pepcid before bed with no changes. The last time I went to GI he threw his hands

up and said he had no clue what was wrong with me. (Makes me feel helpless) With no other ideas he sent

me for a full body CAT scan. They found a few spots on my lungs which sent me to see a Pulmonologist.

He is running a series of blood tests for auto immune diseases but didn't test for Celiac because

my biopsy came back negative. Should I just let this go or try to find a doctor that will pursue my

concerns. This constant pain in my chest and back is so bad that I don't know how much more I can take. I will

try anything. I am so frustrated with doctors right now. My faith in God is what is getting my through all

of this.

I have been eating gluten free for about a week and can tell a very slight decrease in my

symptoms. Should I keep going?

Thanks everyone

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten. Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8. Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification. Maize...
    2. Scott Adams
      - Scott Adams replied to Colleen H's topic in Coping with Celiac Disease
      3

      Barilla gluten free pasta

      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the...
    3. knitty kitty
      - knitty kitty replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Pain in the right side of abdomen

      @Heatherisle, Newly diagnosed people often suffer from nutritional deficiencies. Thiamine B1 stores can be depleted within a few weeks. Thiamine deficiency can be localized in the gastrointestinal tract causing Gastrointestinal Beriberi. It is under diagnosed by doctors! Dysfunction of the gallbladder can be seen in Gastrointestinal Beriberi...
    4. knitty kitty
      - knitty kitty replied to hjayne19's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      31

      Insomnia help

      Thiamine and other B vitamins are available without a prescription, but it's always best to discuss supplementing with your doctor and dietician. I take Thiamine Hydrochloride, Benfotiamine, and Thiamine TTFD. (Avoid Thiamine Mononitrate because it's not well absorbed or used by brain f bodies.) Benfotiamine especially helps heal the gastrointestinal...
    5. Scott Adams
      - Scott Adams replied to Mihai's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      13

      Pain in the right side of abdomen

      So far, current research does not show that celiac disease directly “destroys” the gallbladder or routinely causes it to need removal. What we do know is that undiagnosed or untreated celiac disease can affect digestion in several ways, including changes in bile flow and fat absorption, which may increase the risk of gallstones in some people. That said, ga...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,467
    • Most Online (within 30 mins)
      7,748
    denisediane072
    Newest Member
    denisediane072
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Barilla gluten free pasta

      By knitty kitty · Posted

      @Scott Adams, You're right about corn and wheat not sharing similarities in the 33-mer peptide segment of gluten.  Corn has a completely different peptide that causes an autoimmune reaction because it attaches to HLA-DQ8.  Casein in dairy shares with wheat similarities in the33-mer peptide chain. Sorry about the oversimplification.  Maize Prolamins Could Induce a Gluten-Like Cellular Immune Response in Some Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC3820067/
    • Scott Adams
      Barilla gluten free pasta

      By Scott Adams · Posted

      I just want to mention that corn and wheat do both contain storage proteins (corn has zein, wheat has gliadin and other gluten proteins), and there are some small similarities in certain amino acid sequences. However, those similarities are not considered medically equivalent, and corn proteins do not trigger the autoimmune response of celiac disease in the vast majority of people with celiac. Celiac disease specifically involves an immune reaction to gluten peptides found in wheat, barley, and rye. Corn is classified as gluten-free because its proteins do not activate that same immune pathway in most individuals. Although corn intolerance is very real, the explanation about the proteins being the same is oversimplified to the point where it's not accurate.
    • knitty kitty
      Pain in the right side of abdomen

      By knitty kitty · Posted

      @Heatherisle, Newly diagnosed people often suffer from nutritional deficiencies.  Thiamine B1 stores can be depleted within a few weeks.  Thiamine deficiency can be localized in the gastrointestinal tract causing Gastrointestinal Beriberi.  It is under diagnosed by doctors!  Dysfunction of the gallbladder can be seen in Gastrointestinal Beriberi.   Have your daughter mention the possibility of Gastrointestinal Beriberi to her dietician!  Gastrointestinal Beriberi will be improved with high dose Thiamine administration, orally or by IV.  It's important to have thiamine deficiency corrected as quickly as possible to prevent life threatening health problems and risk permanent damage.   I had Gastrointestinal Beriberi but my doctors did not recognize it.  My thiamine deficiency progressed to Wernickes Encephalopathy.  My doctors diagnosed me as "depressed".   I corrected the thiamine deficiency at home with over the counter Thiamine Hydrochloride tablets.  I'm very thankful I studied Nutrition.   See if the symptoms match:  Thiamine, gastrointestinal beriberi and acetylcholine signaling https://pmc.ncbi.nlm.nih.gov/articles/PMC12014454/ Gastrointestinal Beriberi Presenting With Chronic Diarrhea: A Case Report https://pmc.ncbi.nlm.nih.gov/articles/PMC12794365/
    • knitty kitty
      Insomnia help

      By knitty kitty · Posted

      Thiamine and other B vitamins are available without a prescription, but it's always best to discuss supplementing with your doctor and dietician.   I take Thiamine Hydrochloride, Benfotiamine, and Thiamine TTFD.  (Avoid Thiamine Mononitrate because it's not well absorbed or used by brain f bodies.)  Benfotiamine especially helps heal the gastrointestinal tract.  Thiamine TTFD is great for improving brain function and mood.  They all work to improve everything, but Thiamine TTFD through the blood brain barrier the easiest, so the brain starts working to control everything better. Every form of Thiamine needs magnesium to make enzymes.  I like Magnesium Threonate which enters the brain more easily than other forms.  Low magnesium contributes to anxiety and depression.  The eight B vitamins all work together, so a B Complex is a good idea.  Don't worry if it already has thiamine in it.  The B vitamins are water soluble and easily excreted.   I get mine online.
    • Scott Adams
      Pain in the right side of abdomen

      By Scott Adams · Posted

      So far, current research does not show that celiac disease directly “destroys” the gallbladder or routinely causes it to need removal. What we do know is that undiagnosed or untreated celiac disease can affect digestion in several ways, including changes in bile flow and fat absorption, which may increase the risk of gallstones in some people. That said, gallbladder disease is also very common in the general population, particularly among women, and many people have their gallbladders removed for reasons unrelated to celiac disease. In some cases, digestive symptoms from undiagnosed celiac may be mistaken for gallbladder problems, which can complicate the picture. So while there may be overlap, it is not accurate to say that celiac disease routinely destroys the gallbladder or that most people with celiac will need it removed.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.