Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Negative Ecg Biopsy

Ihv2gratkids

Recommended Posts

Ihv2gratkids Newbie
Ihv2gratkids
Posted

Hi everyone, I am new to these boards. I have found some very beneficial information here.

I would like to get some opinions on my situation.

I have had chronic diarrhea for the last 13 years following the removal of my gallbladder. I

was told that this is just what happens. Off and on over these last few years I would wake up

with what felt like a rock in my stomach and I could tell that my food was not digesting

properly. Also on occasion I have had severe heartburn but the doctors just said take tums

and lay of the spicy foods.

In Oct of 09 went to the Urgent Care with severe pain in my stomach

and chest. They were just sure that I was having a heart attack and rushed me to the emergency

room(of course it wasn't). I was told it was acid reflux and I needed to take prilosec for the

rest of my life. Symptoms continued even with the medicine and my throat actually began to close

up. I have also began having severe pain under my ribs and all through my back. After several months

on medicine my GI decided to do and endoscopy. He found that I have gastritis and esophogitis but biopsy was negative for Celiac. He says the medicines I'm on should be working. I take 60mg Kapidex twice a day and a

perscription strength pepcid before bed with no changes. The last time I went to GI he threw his hands

up and said he had no clue what was wrong with me. (Makes me feel helpless) With no other ideas he sent

me for a full body CAT scan. They found a few spots on my lungs which sent me to see a Pulmonologist.

He is running a series of blood tests for auto immune diseases but didn't test for Celiac because

my biopsy came back negative. Should I just let this go or try to find a doctor that will pursue my

concerns. This constant pain in my chest and back is so bad that I don't know how much more I can take. I will

try anything. I am so frustrated with doctors right now. My faith in God is what is getting my through all

of this.

I have been eating gluten free for about a week and can tell a very slight decrease in my

symptoms. Should I keep going?

Thanks everyone

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Olenaideole's topic in Gluten-Free Foods, Products, Shopping & Medications
      17

      What apps or tech tools help you manage celiac disease?

      "lots of celiacs ... already find it very difficult to afford specifically gluten free products. We here this all the time on this online community. If prices go up more because of increasing regulation, many will not be able to afford it any longer." --> Maybe that itself is a great comment to submit. If you could flesh it out with numbers, facts...
    2. Scott Adams
      - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      24

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      Vit K2 (MK7) also helps prevent calcium buildup (arterial sclerosis) in arteries. I added it last year to my daily vitamin intake. NOTE: Vitamin K: Excess vitamin K from supplements can interfere with blood thinning medications and cause issues in some individuals.
    3. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to xxnonamexx's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      I am working on a response to this FDA request for comments on gluten. Part of it will be my suggestions, like yours, but a big part of it will be my collected stories of navigating products with ambiguous gluten disclosures, like your Lubriderm story. I plan to name the brands not to shame them but to give the regulators clear facts they can check and evaluate...
    4. knitty kitty
      - knitty kitty replied to Jmartes71's topic in Related Issues & Disorders
      3

      Keytones

      @Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes. Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin. Try incorporating Tallow balm (I use Ancient...
    5. Aretaeus Cappadocia
      - Aretaeus Cappadocia replied to Known1's topic in Introduce Yourself / Share Stuff
      7

      Diagnosed Marsh stage 3C in January 2026

      You may want to consider getting a food dehydrator for your motorcycle touring. I evaluated getting one but decided against it because my personal business case didn't justify the costs (I occasionally travel by car and food bulk is not as much of an issue). However, if I wanted to travel by motorcycle as often as you I probably would have gotten one.
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,418
    • Most Online (within 30 mins)
      7,748
    Eve K
    Newest Member
    Eve K
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • Aretaeus Cappadocia
      What apps or tech tools help you manage celiac disease?

      By Aretaeus Cappadocia · Posted

      "lots of celiacs ... already find it very difficult to afford specifically gluten free products. We here this all the time on this online community. If prices go up more because of increasing regulation, many will not be able to afford it any longer." --> Maybe that itself is a great comment to submit. If you could flesh it out with numbers, facts about this website, etc. Affordability is a real issue and one component of getting a celiac diagnosis is to have a surcharge levied on your food bill. (I am not arguing against changing/improving the regulations - I am suggesting that people should share the challenges they face in avoiding gluten.) One possible way to bridge the gap of increased benefit causing increased cost might be for the Government to provide incentives like tax deductions for these efforts. Of course, the FDA can't regulate tax law but they can speak up and advise other parts of the government. 
    • Scott Adams
      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

      By Scott Adams · Posted

      Vit K2 (MK7) also helps prevent calcium buildup (arterial sclerosis) in arteries. I added it last year to my daily vitamin intake. NOTE: Vitamin K: Excess vitamin K from supplements can interfere with blood thinning medications and cause issues in some individuals.
    • Aretaeus Cappadocia
      FDA looking for input on Celiac Gluten sensitivity labeling PLEASE READ and submit your suggestions

      By Aretaeus Cappadocia · Posted

      I am working on a response to this FDA request for comments on gluten. Part of it will be my suggestions, like yours, but a big part of it will be my collected stories of navigating products with ambiguous gluten disclosures, like your Lubriderm story. I plan to name the brands not to shame them but to give the regulators clear facts they can check and evaluate.
    • knitty kitty
      Keytones

      By knitty kitty · Posted

      @Jmartes71, Talk to your doctor and dietician about checking for nutritional deficiencies and supplementing with essential vitamins, minerals and Omega threes.   Vitamins like Niacin B3, Thiamine B 1, Vitamin C, Vitamin D and Omega three fats are important to maintaining the protective layer of skin.  Try incorporating Tallow balm (I use Ancient Traditions Tallow Balm) to help nourish your skin's need for fats.   Thiamine supplementation helps control SIBO bacteria and other bacterial or viral infections.  Taking a combination of Thiamine B 1 with Cobalamine B 12 and Pyridoxine B6 helps alleviate pain.  These vitamins together work as well as over the counter pain relievers.  Taken with pain relievers, the analgesic effects are increased. I'm concerned about the ketones.  Our bodies burn stored fat when we're stressed and when we're low in thiamine.  Do talk to your doctor about whether you can start taking Thiamine and B vitamins again soon.  Thiamine deficiency can be life threatening.  A state of confusion is also indicative of a Thiamine deficiency.   Tannins in black and green teas break down Thiamine making it unavailable to the body.  Avoid drinking large amounts of teas with tannins.  Try herbal teas like chamomile, peppermint or ginger teas instead.  I like drinking mineral water.   I hope you feel better soon.  Keep us posted on your progress!
    • Aretaeus Cappadocia
      Diagnosed Marsh stage 3C in January 2026

      By Aretaeus Cappadocia · Posted

      You may want to consider getting a food dehydrator for your motorcycle touring. I evaluated getting one but decided against it because my personal business case didn't justify the costs (I occasionally travel by car and food bulk is not as much of an issue). However, if I wanted to travel by motorcycle as often as you I probably would have gotten one.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.