Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Have You Ever Felt Like This?

conniebky

Recommended Posts

conniebky Collaborator
conniebky
Posted

Today is my second day of being gluten free.

I was wondering if anyone has felt like this - ? Since February, I get up in the morning, feel ok, then while eating breakfast, this icky feeling washes over me, like dizziness and nausea - just a icky gross weak feeling.

Then, when I walk, I feel "tilted" and like I'm going to fall over. I was dx'd with positional vertigo and given all kinds of drugs that I have since quit taking.

Then, every time after I ate, I'd get that dizzy gross weak feeling again. So, I looked it up and it said that eating can make vertigo worse which made no sense to me.

But everything I was eating was that good ol' healthy whole grain and whole wheat...so......

I was wondering if anyone has experienced that feeling I'm trying to describe. B)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


gary'sgirl Explorer
gary'sgirl
Posted

I have had times in my life - prior to being gluten free - when I have felt that same way. I can't remember for sure if it was after I ate breakfast, but it seems like it was, and I know it was in the mornings.

Wish I had some advice or something for you, but I at least wanted to say that I had experienced the same thing before.

Hopefully you figure out your health issues soon. Good luck!

SLB5757 Enthusiast
SLB5757
Posted

Today is my second day of being gluten free.

I was wondering if anyone has felt like this - ? Since February, I get up in the morning, feel ok, then while eating breakfast, this icky feeling washes over me, like dizziness and nausea - just a icky gross weak feeling.

Then, when I walk, I feel "tilted" and like I'm going to fall over. I was dx'd with positional vertigo and given all kinds of drugs that I have since quit taking.

Then, every time after I ate, I'd get that dizzy gross weak feeling again. So, I looked it up and it said that eating can make vertigo worse which made no sense to me.

But everything I was eating was that good ol' healthy whole grain and whole wheat...so......

I was wondering if anyone has experienced that feeling I'm trying to describe. B)

Morning is the worst for me. I do not know if it ties into what you are dealing with at all - but I absolutely dread mornings and how my tummy will react. It definitely gets better throughout the day but I feel nauseus and and dizzy before and sometimes after I eat in the AM as well.

RESO Apprentice
RESO
Posted

Yes, vertigo was one of my symptoms when I was still eating gluten. It cleared up not long after starting a true gluten-free diet (it took a while for me to figure out what was truly gluten-free). Hopefully, this will happen for you too. :-)

bridgetm Enthusiast
bridgetm
Posted

When I first started reacting to gluten, I would get full-body tremors and chills and often vertigo and tunnel-vision. Once I was trying to get to the bathroom to throw some cold water on my face and I was so out of it that I walked into the men's room by mistake. I had to take a minute to regroup in the hallway before I could get to the ladies one door down.

conniebky Collaborator
conniebky
Posted
  • Author

When I first started reacting to gluten, I would get full-body tremors and chills and often vertigo and tunnel-vision. Once I was trying to get to the bathroom to throw some cold water on my face and I was so out of it that I walked into the men's room by mistake. I had to take a minute to regroup in the hallway before I could get to the ladies one door down.

Oh, that makes me feel AWFUL for you. I soooo know that feeling. I'm sorry that happened to you.

sick of being ill Newbie
sick of being ill
Posted

Today is my second day of being gluten free.

I was wondering if anyone has felt like this - ? Since February, I get up in the morning, feel ok, then while eating breakfast, this icky feeling washes over me, like dizziness and nausea - just a icky gross weak feeling.

Then, when I walk, I feel "tilted" and like I'm going to fall over. I was dx'd with positional vertigo and given all kinds of drugs that I have since quit taking.

Then, every time after I ate, I'd get that dizzy gross weak feeling again. So, I looked it up and it said that eating can make vertigo worse which made no sense to me.

But everything I was eating was that good ol' healthy whole grain and whole wheat...so......

I was wondering if anyone has experienced that feeling I'm trying to describe. B)

yes!!! i know exactly what your saying, i feel like that most days a really icky weak feeling in the morning and then by late afternoon early evening i tend to feel a lot better, is s strange, sometimes when at work i feel all lopsided as if im going to walk into something is awful! I havent been diagnosed as yet waiting to see gastro but searching for answers in the meantime! :)

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


anabananakins Explorer
anabananakins
Posted

is s strange, sometimes when at work i feel all lopsided as if im going to walk into something is awful! I havent been diagnosed as yet waiting to see gastro but searching for answers in the meantime! :)

Oh wow, I can relate. I hate it when I'm walking down a corridor and people are walking towards me because it's so hard not to walk into them. And if I have to walk past something and then turn, I frequently hit it as I go. I first noticed this when I was 20 and I always managed to hit the photocopier as I turned to go into the store room, even though there was plenty of room on my other side. It's that lopsided, tilted feeling and it's so weird. I haven't been diagnosed yet either.

Do you ever feel - not sure how to describe it exactly - but kind of super aware of your body and what's around you because you're struggling to stop feeling spaced out and tilted? I feel like everyone else just walks around at ease while I'm always concentrating hard on it. My GP did some neurological tests, things like me tapping my finger on my nose and then reaching for her finger, which kept moving, and she said I did fine but I was concentrating very hard :-)

conniebky Collaborator
conniebky
Posted
  • Author

Well, the good news is I don't feel like that anymore since I'm gluten-free. But it's when I start feeling like that that I know I've been glutened. Like today I had that coffee at work and I felt that feeling coming over me, sure enough.

I would equate that feeling with true misery. I went into Walgreens one day to get some cigarettes ( i know, i know ;) and they are right up front and I thought I'd never make it outta that store without falling over. It was just misery feeling like that. Also, I noticed that I hold my head up correctly now. I noticed before that I was holding my chin down and turned to the left.

And I was so "jealous" of all these people walking around like there was nothin' to it! I went to the grocery last night and walked clear back to the restroom without a basket - but then I got one, cuz I think I've become dependent on them.

anabananakins Explorer
anabananakins
Posted

Well, the good news is I don't feel like that anymore since I'm gluten-free. But it's when I start feeling like that that I know I've been glutened. Like today I had that coffee at work and I felt that feeling coming over me, sure enough.

I would equate that feeling with true misery. I went into Walgreens one day to get some cigarettes ( i know, i know ;) and they are right up front and I thought I'd never make it outta that store without falling over. It was just misery feeling like that. Also, I noticed that I hold my head up correctly now. I noticed before that I was holding my chin down and turned to the left.

And I was so "jealous" of all these people walking around like there was nothin' to it! I went to the grocery last night and walked clear back to the restroom without a basket - but then I got one, cuz I think I've become dependent on them.

That's awesome that being gluten fre makes it go away, though I'm sorry you had to go through it again after being glutened :-( I hope you feel better soon.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. lizzie42
      - lizzie42 posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Son's legs shaking

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin. He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her...
    2. trents
      - trents replied to Paulaannefthimiou's topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified...
    3. trents
      - trents replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you...
    4. Paulaannefthimiou
      - Paulaannefthimiou posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      1

      Bob red mill gluten free oats

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    5. jenniber
      - jenniber replied to jenniber's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      Disaccharide deficient, confusing biopsy results, no blood test

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks! i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me b...
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      132,851
    • Most Online (within 30 mins)
      7,748
    Mamabear66
    Newest Member
    Mamabear66
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      My 5yo was diagnosed with celiac last year by being tested after his sister was diagnosed. We are very strict on the gluten-free diet, but unsure what his reactions are as he was diagnosed without many symptoms other than low ferritin.  He had a school party where his teacher made gluten-free gingerbread men. I almost said no because she made it in her kitchen but I thought it would be ok.  Next day and for a few after his behavior is awful. Hitting, rude, disrespectful. Mainly he kept saying his legs were shaking. Is this a gluten exposure symptom that anyone else gets? Also the bad behavior? 
    • trents
      Bob red mill gluten free oats

      By trents · Posted

      Not necessarily. The "Gluten Free" label means not more than 20ppm of gluten in the product which is often not enough for super sensitive celiacs. You would need to be looking for "Certified Gluten Free" (GFCO endorsed) which means no more than 10ppm of gluten. Having said that, "Gluten Free" doesn't mean that there will necessarily be more gluten than "Certified Gluten" in any given batch run. It just means there could be. 
    • trents
      Disaccharide deficient, confusing biopsy results, no blood test

      By trents · Posted

      I think it is wise to seek a second opinion from a GI doc and to go on a gluten free diet in the meantime. The GI doc may look at all the evidence, including the biopsy report, and conclude you don't need anything else to reach a dx of celiac disease and so, there would be no need for a gluten challenge. But if the GI doc does want to do more testing, you can worry about the gluten challenge at that time. But between now and the time of the appointment, if your symptoms improve on a gluten free diet, that is more evidence. Just keep in mind that if a gluten challenge is called for, the bare minimum challenge length is two weeks of the daily consumption of at least 10g of gluten, which is about the amount found in 4-6 slices of wheat bread. But, I would count on giving it four weeks to be sure.
    • Paulaannefthimiou
      Bob red mill gluten free oats

      By Paulaannefthimiou · Posted

      Are Bobresmill gluten free oats ok for sensitive celiacs?
    • jenniber
      Disaccharide deficient, confusing biopsy results, no blood test

      By jenniber · Posted

      thank you both for the insights. i agree, im going to back off on dairy and try sucraid. thanks for the tip about protein powder, i will look for whey protein powder/drinks!   i don’t understand why my doctor refused to order it either. so i’ve decided i’m not going to her again, and i’m going to get a second opinion with a GI recommended to me by someone with celiac. unfortunately my first appointment isn’t until February 17th. do you think i should go gluten free now or wait until after i meet with the new doctor? i’m torn about what i should do, i dont know if she is going to want to repeat the endoscopy, and i know ill have to be eating gluten to have a positive biopsy. i could always do the gluten challenge on the other hand if she does want to repeat the biopsy.    thanks again, i appreciate the support here. i’ve learned a lot from these boards. i dont know anyone in real life with celiac.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.