Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Excessive Weight Gain Since Starting Diet


glutenfree mom

Recommended Posts

glutenfree mom Newbie

My 14 daughter was diagnosed 3 years ago. Although she has been glutennfree She has gained over 100lbs in three years. Her doctor doesn't see concerned But we both are. she is constantly hungry all the time and extremely exhausted!! Please if anyone has any ideasI would be greatful. Also I have been told at her last visit tha her levels are elevated I can't find out where contamination is coming from??


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Looking for answers Contributor

I would suggest they test her thyroid to make sure that it's not contributing to the weight gain. I was SUPER DUPER hungry all the time until I made many changes to my diet. I cut out processed foods, now I eat A LOT of healthy fats (two avocados a day, tons of olive and coconut oils, seeds, etc) along with plenty of healthy proteins and veggies with each meal. My appetite is normal now, I stay satisfied between meals and I don't snack. I've also gone from a size 10-12 to a size 0, and I'm 31 so my metabolism isn't all that great. I've stayed this way for three years now.

Oh, I would also suggest a good liquid vitamin. I take an isotonic vitamin I mix with water, it's supposed to be the easiest to absorb. My naturo-doc said regular vitamins are no good for us folks because we just don't digest and absorb nutrients well. He said without the basic vitamins and minerals, your body will feel hungry most of the time and your metabolism will slow.

Hope this helps...

Jestgar Rising Star

What is she eating? Maybe there are other foods she should be avoiding.

missy'smom Collaborator

I would get a new doctor. That's very concerning. Both symptoms could be from elevated blood sugar levels. Has she been tested for diabetes? If and when she is please know what the numbers mean. It's not quite so cut and dried as the doctors make it-don't just accept and answer of she has or doesn't have diabetes. It's a spectum. Know where her numbers fall on the spectrum. Depending on what the cause is it can sometimes go away if it's treated-for some, weigh loss can be the trick, for others, eliminating allergens-foods that trigger an immune response can make a big difference.

nyctexangal Rookie

I'd look into food intolerance's and vitamin/mineral deficiencies. I was starving until I had a food dietitian check my vitamin/mineral levels and got on the correct supplements.

jmd3 Contributor

My 14 daughter was diagnosed 3 years ago. Although she has been glutennfree She has gained over 100lbs in three years. Her doctor doesn't see concerned But we both are. she is constantly hungry all the time and extremely exhausted!! Please if anyone has any ideasI would be greatful. Also I have been told at her last visit tha her levels are elevated I can't find out where contamination is coming from??

Do you know if she was dx with celiac and gluten sensitivity? Did they do a gene panel - this would give you that answer.... A light bulb while watching Dr. Osborne's video went off for me because gluten sensitivity is ALL gluten.... in wheat, rye, barley, oats, millet, corn, rice and sorghum.... they ALL have gluten, so if you have the sensitivity to gluten - well that would be ALL... So gluten free would be really gluten free to all those proteins. (This is only my synopsis from watching the video related to understanding my own health issues.) Her blood levels shouldn't be elevated if they were only tested for gliadins.

okay, I hope I don't make anyone mad, just food for thought.... hoping for some to have ahh haa moments.

Rondar2001 Apprentice

We are going throught pretty much the same thing. My daughter's BMI jumped 3% in 3 months. I would go back to the doctor's and ask for her weight to be followed closely, including tests for cholesterol (my daughter's is elevated even though she is only 9) and as mentioned before, blood sugar, thyroid, and vitamin deficiencies. Doctor's are sometimes reluctant to deal with weight issues unless pushed by the patients, but if he still doesn't recognize that it is an issue, I would find a new doctor.

Ask for suggestions on some good books to read on adding exercise as well as diet involving the whole family. We have also found a pediatric obesity clinic in town; they have a pediatrician, nutritionist (very familiar with celiac), trainer, and physcologist. Ask if they have any studies going on soon to help cover the costs. We are meeting with them today so I will let you know if they have any great suggestions that may help. Your town's YMCA or other facilities may also offer a similar program.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Rogol72 replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    2. - Scott Adams replied to Butch68's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?

    3. - MogwaiStripe replied to Midwestern's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      15

      Gluten Issues and Vitamin D

    4. - Butch68 posted a topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Guinness, can you drink it?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,218
    • Most Online (within 30 mins)
      7,748

    tiffhorn14
    Newest Member
    tiffhorn14
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • Rogol72
      Hey @Butch68, I also have dermatitis herpetiformis but don't suffer from it anymore. I used to drink Guinness too but I drink Cider now when out on social occasions. I assume you are in Ireland or the UK. If it's any good to you ... 9 White Deer based in Cork brew a range of gluten-free products including a gluten-free Stout. I'm not sure if they are certified though. https://www.9whitedeer.ie/ I haven't come across any certified gluten-free stouts this side of the pond.
    • Scott Adams
      This is a very common question, and the most important thing to know is that no, Guinness is not considered safe for individuals with coeliac disease. While it's fascinating to hear anecdotes from other coeliacs who can drink it without immediate issues, this is a risky exception rather than the rule. The core issue is that Guinness is brewed from barley, which contains gluten, and the standard brewing process does not remove the gluten protein to a level safe for coeliacs (below 20ppm). For someone like you who experiences dermatitis herpetiformis, the reaction is particularly significant. DH is triggered by gluten ingestion, even without immediate gastrointestinal symptoms. So, while you may not feel an instant stomach upset, drinking a gluten-containing beer like Guinness could very well provoke a flare-up of your skin condition days later. It would be a gamble with a potentially uncomfortable and long-lasting consequence. Fortunately, there are excellent, certified gluten-free stouts available now that can provide a safe and satisfying alternative without the risk.
    • MogwaiStripe
      Interestingly, this thought occurred to me last night. I did find that there are studies investigating whether vitamin D deficiency can actually trigger celiac disease.  Source: National Institutes of Health https://pmc.ncbi.nlm.nih.gov/articles/PMC7231074/ 
    • Butch68
      Before being diagnosed coeliac I used to love Guinness. Being made from barley it should be something a coeliac shouldn’t drink. But taking to another coeliac and they can drink it with no ill effects and have heard of others who can drink it too.  is this everyone’s experience?  Can I drink it?  I get dermatitis herpetiformis and don’t get instant reactions to gluten so can’t try it to see for myself. 
    • trents
      NCGS does not cause damage to the small bowel villi so, if indeed you were not skimping on gluten when you had the antibody blood testing done, it is likely you have celiac disease.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.