Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Scared


Scaredandworried87

Recommended Posts

ravenwoodglass Mentor

so i am also reading about how people are allergic to other things like soy and vegatables and other thing right now im so worried about what i can and can't eat i could handle going breadless but to me it feels like if i go gluten free it will end up revealing other allergies im a security guard i can't afford buying all the other things and i live in a hick town i might as well just drink myself to death

Sorry about calling you a 'she'. It is hard to know whether we are she's or he's often times from out board names. There are a couple of folks here that I assumed were men and then found out after a couple years they were women so I make the mistake the other way too. :D

Right now just be concerned about the gluten. If after you have been gluten-free for a couple months you are still having issues then explore the possiblity of other intolerances.

There are some convience foods that are gluten free like Hormel Beef stew and their scalloped potatoes and ham that you can find in a regular grocery store. I know this seems like it is going to be a horrendous change but it becomes easier in time. I don't know where you are but if there is a Wegmans within driving distance they label all their gluten free food with a circle G. Hopefully you have one close by to shop at but even if you don't it won't be too long before you learn what 'regular' grocery items are safe. There are some good gluten free breads, Kinnickinnick and Grainless Baker are both good, Ener-g makes crackers and pretzels etc that you can find on line if not at a store near you. You don't have to cut them out of your life completely just eat the high calorie stuff in moderation.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



farmwife67 Explorer

I found I was gaining weight because I was buying all of the gluten free processed crap! I decided to go completely grain free, especially after watching the videos on www.(Company Name Removed - They Spammed This Forum and are Banned). Dr. Osborne says all grains contain gluten, even rice and corn. So I made the switch and have been losing a pound or two a week ever since. I eat all of the fruits, veggies, meats and nuts and seeds I want. There are flours you can use to make things, like almond flour, tapiocca flour. You have to make most of your foods because you can't even have corn syrup or corn starch but I feel much better than when I was just eating traditional gluten free.

If you are getting tested I would keep eating gluten or you will test negative. Then, I would get back on the gluten-free wagon and live healthy! :rolleyes:

Good Luck,

Lori

MartialArtist Apprentice

I know this is so hard to take, but it's best if you start to look at bread and pasta as a treat you have every once in a while instead of a staple of your diet. There are gluten free breads and pastas out there that are good, but they will not be what you are used to. They are also expensive, much more expensive than regular gluten food. Finally gluten-free baked goods are usually higher in carbs than non-gluten free. If you want to lose weight you don't want to eat gluten-free bread for every meal.

At first, I totally ignored any nutritional info about the gluten-free bread, pasta, dessert, and pancake (especially those) replacement products and went totally on TASTE (i.e. which one tasted the most like my favorite gluten version). But I have discovered that what you say here is very right -- that they are higher in carbs (including sugar) and by extension calories than their gluten counterparts. So I'm going to have to discipline myself b/c I really WANT them.

That said, I disagree about the gluten-free pastas not being what one might be used to. I have found the Tinkyada brown rice pastas to be almost perfect replacements for my old pastas in all cases. They don't have all the shapes I used, but as far as taste and texture, by the time they're in a dish with a sauce, I don't notice the difference at all. That's true whether it's a tomato sauce or a cheese sauce.

psawyer Proficient

I have found the Tinkyada brown rice pastas to be almost perfect replacements for my old pastas in all cases. They don't have all the shapes I used, but as far as taste and texture, by the time they're in a dish with a sauce, I don't notice the difference at all. That's true whether it's a tomato sauce or a cheese sauce.

I love Tinkyada brown rice pasta! :)

Korwyn Explorer

im not a diagnosed celiac but i have been developing problems that fit the bill, just last week i got my blood test results and now the doctor wants an upper endoscopy, i was prepared to go gluten free and help my self get healthy in fact im avoiding already breads and watching products that have gluten, but now that i've read that when you go gluten free you will gain weight it nearly drove me to tears i was a skinny kid all my life and had gained 200 pounds from the ages of 19-21, lost the weight (nearly 80 lbs) mostly from what i thought was hard work diet and exercise. im so scared because the thought of being my old self i couldn't stand it please someone help me....

Hi Scaredandworried,

Not everyone gains weight, that depends on a lot of factors. I lost 45 pounds in the last year. The problem for a lot of people is that if they have the nutritional malabsorption issues, when they go gluten free and they continue eating carbs and refined grains that are gluten free, their bodies start healing and they start absorbing nutrients they were not getting before. This impacts their insulin levels, hormones, and the triglyceride fat storage cycle.

One of the things that I have suggested to people I've had this conversation is that once you go gluten free, move to a whole (unprocessed, mostly raw) foods diet, rich in protein, meat broths, and lots of veggies (especially green, but very few grains at all including corn), avocados and unrefined coconut oil. Then, once your body begins to heal up, you can being adding grains and things back into your diet - assuming you want to! :)

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    2. - knitty kitty replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

    3. - knitty kitty replied to Scott Adams's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      50

      Supplements for those Diagnosed with Celiac Disease

    4. - Florence Lillian replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      11

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    5. - catnapt replied to catnapt's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      results from 13 day gluten challenge - does this mean I can't have celiac?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,355
    • Most Online (within 30 mins)
      7,748

    Amy Immerman
    Newest Member
    Amy Immerman
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • Wheatwacked
      Raising you vitamin D will increase absorption of calcium automatically without supplementation of calcium.  A high PTH can be caused by low D causing poor calcium absorption; not insuffient calcium intake.  With low D your body is not absorbing calcium from your food so it steals it from your bones.  Heart has priority over bone. I've been taking 10,000 IU D3 a day since 2015.  My doctor says to continue. To fix my lactose intolerance, lots of lactobacillus from yogurts, and brine fermented pickles and saurkraut and olives.  We lose much of our ability to make lactase endogenosly with maturity but a healthy colony of lactobacillus in our gut excretes lactase in exchange for room and board. The milk protein in grass fed milk does not bother me. It tastes like the milk I grew up on.  If I drink commercial milk I get heartburn at night. Some experts estimate that 90% of us do not eat Adequite Intake of choline.  Beef and eggs are the principle source. Iodine deficiency is a growing concern.  I take 600 mcg a day of Liquid Iodine.  It and NAC have accelerated my healing all over.  Virtually blind in my right eye after starting antihypertensive medication and vision is slowly coming back.  I had to cut out starches because they drove my glucose up into the 200+ range.  I replaced them with Red Bull for the glucose intake with the vitamins, minerals and Taurine needed to process through the mitochodria Krebs Cycle to create ATP.  Went from A1c 13 down to 7.9.  Work in progress. Also take B1,B2,B3,B5,B6. Liquid Iodine, Phosphatidyl Choline, Q10, Selenium, D and DHEA.     Choline supplemented as phosphatidylcholine decreases fasting and postmethionine-loading plasma homocysteine concentrations in healthy men +    
    • knitty kitty
      @catnapt, Wheat germ has very little gluten in it.  Gluten is  the carbohydrate storage protein, what the flour is made from, the fluffy part.  Just like with beans, there's the baby plant that will germinate  ("germ"-inate) if sprouted, and the bean part is the carbohydrate storage protein.   Wheat germ is the baby plant inside a kernel of wheat, and bran is the protective covering of the kernel.   Little to no gluten there.   Large amounts of lectins are in wheat germ and can cause digestive upsets, but not enough Gluten to provoke antibody production in the small intestines. Luckily you still have time to do a proper gluten challenge (10 grams of gluten per day for a minimum of two weeks) before your next appointment when you can be retested.    
    • knitty kitty
      Hello, @asaT, I'm curious to know whether you are taking other B vitamins like Thiamine B1 and Niacin B3.  Malabsorption in Celiac disease affects all the water soluble B vitamins and Vitamin C.  Thiamine and Niacin are required to produce energy for all the homocysteine lowering reactions provided by Folate, Cobalamine and Pyridoxine.   Weight gain with a voracious appetite is something I experienced while malnourished.  It's symptomatic of Thiamine B1 deficiency.   Conversely, some people with thiamine deficiency lose their appetite altogether, and suffer from anorexia.  At different periods on my lifelong journey, I suffered this, too.   When the body doesn't have sufficient thiamine to turn food, especially carbohydrates, into energy (for growth and repair), the body rations what little thiamine it has available, and turns the carbs into fat, and stores it mostly in the abdomen.  Consuming a high carbohydrate diet requires additional thiamine to process the carbs into energy.  Simple carbohydrates (sugar, white rice, etc.) don't contain thiamine, so the body easily depletes its stores of Thiamine processing the carbs into fat.  The digestive system communicates with the brain to keep eating in order to consume more thiamine and other nutrients it's not absorbing.   One can have a subclinical thiamine insufficiency for years.  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so the symptoms can wax and wane mysteriously.  Symptoms of Thiamine insufficiency include stunted growth, chronic fatigue, and Gastrointestinal Beriberi (diarrhea, abdominal pain), heart attack, Alzheimer's, stroke, and cancer.   Thiamine improves bone turnover.  Thiamine insufficiency can also affect the thyroid.  The thyroid is important in bone metabolism.  The thyroid also influences hormones, like estrogen and progesterone, and menopause.  Vitamin D, at optimal levels, can act as a hormone and can influence the thyroid, as well as being important to bone health, and regulating the immune system.  Vitamin A is important to bone health, too, and is necessary for intestinal health, as well.   I don't do dairy because I react to Casein, the protein in dairy that resembles gluten and causes a reaction the same as if I'd been exposed to gluten, including high tTg IgA.  I found adding mineral water containing calcium and other minerals helpful in increasing my calcium intake.   Malabsorption of Celiac affects all the vitamins and minerals.  I do hope you'll talk to your doctor and dietician about supplementing all eight B vitamins and the four fat soluble vitamins because they all work together interconnectedly.  
    • Florence Lillian
      Hi Jane: You may want to try the D3 I now take. I have reactions to fillers and many additives. Sports Research, it is based in the USA and I have had no bad reactions with this brand. The D3 does have coconut oil but it is non GMO, it is Gluten free, Soy free, Soybean free and Safflower oil free.  I have a cupboard full of supplements that did not agree with me -  I just keep trying and have finally settled on Sports Research. I take NAKA Women's Multi full spectrum, and have not felt sick after taking 2 capsules per day -  it is a Canadian company. I buy both from Amazon. I wish you well in your searching, I know how discouraging it all is. Florence.  
    • catnapt
      highly unlikely  NOTHING and I mean NOTHING else has ever caused me these kinds of symptoms I have no problem with dates, they are a large part of my diet In fact, I eat a very high fiber, very high vegetable and bean diet and have for many years now. It's considered a whole foods plant based or plant forward diet (I do now eat some lean ground turkey but not much) I was off dairy for years but recently had to add back plain yogurt to meet calcium needs that I am not allowed to get from supplements (I have not had any problem with the yogurt)   I eat almost no processed foods. I don't eat out. almost everything I eat, I cook myself I am going to keep a food diary but to be honest, I already know that it's wheat products and also barley that are the problem, which is why I gradually stopped eating and buying them. When I was eating them, like back in early 2024, when I was in the middle of moving and ate out (always had bread or toast or rolls or a sub or pizza) I felt terrible but at that time was so busy and exhausted that I never stopped to think it was the food. Once I was in my new place, I continued to have bread from time to time and had such horrible joint pain that I was preparing for 2 total knee replacements as well as one hip! The surgery could not go forward as I was (and still am) actively losing calcium from my bones. That problem has yet to be properly diagnosed and treated   anyway over time I realized that I felt better when I stopped eating bread. Back at least 3 yrs ago I noticed that regular pasta made me sick so I switched to brown rice pasta and even though it costs a lot more, I really like it.   so gradually I just stopped buying and eating foods with gluten. I stopped getting raisin bran when I was constipated because it made me bloated and it didn't help the constipation any more (used to be a sure bet that it would in the past)   I made cookies and brownies using beans and rolled oats and dates and tahini and I LOVE them and have zero issues eating those I eat 1 or more cans of beans per day easily can eat a pound of broccoli - no problem! Brussels sprouts the same thing.   so yeh it's bread and related foods that are clearly the problem  there is zero doubt in my mind    
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.