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Gluten Sensitivity Dx & Relative Testing


sb2178

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sb2178 Enthusiast

Recently diagnosed with non-celiac gluten sensitivity based on a motley assortment of test results and response to diet (see signature). Including the assorted helpful comments of "Well, it can be patchy so you may have damage further down your intestines or we just missed it" and "You may be able to eat small amounts of gluten later in life." Argggg...

But, the relevent question is whether to get my parents to take themselves off to a doctor to get bloodwork done. If it were celiac disease, the guidelines say absolutely. But... gluten sensitivity? Any thoughts? No genetic testing done yet. I may or may not pay for it at some later date.

And it will take work. My mother probably hasn't been to a doctor in 15 years. Father has digestive issues and shellfish allergy, but denies any digestive issues. No siblings or children. Suggestions welcome & needed!

  • 3 weeks later...

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Mari Contributor

I would encourage you to have the DNA genetic marker tests. A Dr. said she thought I had celiac disease and ordered a Celiac Panel, anti gliadin antibodies, ttg and allergies to food common in celiac disease. Only the anti gliadin was elevated along with allergies to cow's milk and hot peppers. I definatly felt better after a few days gluten-free, but the Dr became confused because only one test was positive. I immediately ordered the DNA test from Enterolab and have never regreted the cost. I inherited the predisposition from both parents, had developed symptoms by age 4, had osteoporosis and skin problems and have a brother with Type 1 Diabetes.

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    • Fayeb23
      Thank you that’s really helpful, hopeful won’t have to have a biopsy.
    • RMJ
      That means the normal range (i.e. not celiac disease) would be a result less than 14.99.  Your result is WAY above that. Some gastroenterologists would diagnose that as celiac disease even without a confirming biopsy because it is more than ten times the top of the normal range.
    • Redanafs
      Hi everyone. Back in 2022 I had blood work drawn for iga ext gliadin. Since then I’ve developed worse stomach issues and all other health issues. My doctor just said cut out gluten. He did no further testing. Please see my test results attached. I just need some direction cause I feel so ill and the stomach pain is becoming worse. Can this test show indications for other gastrointestinal diseases?
    • Fayeb23
      Thank you. These were the results TTG ABS NUMERICAL: > 250.0 U/mL [< 14.99]  Really don’t understand the results!
    • Scott Adams
      Clearly from what you've said the info on Dailymed is much more up to date than the other site, which hasn't been updated since 2017. The fact that some companies might be repackaging drugs does not mean the info on the ingredients is not correct.
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