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Needing Advice!

MommyL

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MommyL Rookie
MommyL
Posted

Hi everyone

I am new here. I am 28 years old and I have had "IBS" for 10 years+. I have a brother with celiac. After having my second baby my IBS has continued along with extreme fatigue, depression and psoriasis. 7 years ago I had a biopsy and blood tests looking for celiac which were negative and last year again had a negative tTg-IgA and total IgA within the normal range.

I checked into Enterolab and got the following results- I just did the one test

Fecal Anti-gliadin IgA 35 Units (Normal Range is less than 10 Units)

so....

- try a gluten-free diet for 2-3 weeks to see if I feel better?

- stay off gluten forever?

- pursue more blood testing again- Genova labs can test for (tTg-IgA, tTg- IgG, total IgA and Anti-Endomysial IgA)

- do gene testing or more testing wit Enterolab?

I called my GI doctor and of course they made me feel like I was the crazy lady who sent my poop to Texas :)

They had never heard of Enterlab and had no suggestions at all.

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ciavyn Contributor
ciavyn
Posted

Hello! And welcome!

My story is that I have no insurance. But a friend kept bugging me to try the diet and see how I felt. He was so right. I went off gluten for one month, and that is all it took. Gone were the GI issues, the constant bathroom runs, the draggy feelings.

I recommend trying the diet. Since you test negative according to the medical tests, that is the next step (barring biopsy). So what the heck? It can't hurt. But give it a few months before making your decision. My first few weeks were not great, but part of it was just figuring out what I could and couldn't eat. So they certainly weren't perfect. But after a couple of months, it became routine, and now it just is.

Best of luck. Don't be afraid to ask questions or come here for support. You might find yourself more upset than you realize when you go off gluten -- whether from withdrawal or something as simply as pissed over not being able to eat bread! :) It happens, and we've been there. So come on back.

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      how much gluten do I need to eat before blood tests?

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    • catnapt
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      oh that's interesting... it's hard to say for sure but it has *seemed* like oats might be causing me some vague issues in the past few months. It's odd that I never really connect specific symptoms to foods, it's more of an all over feeling of unwellness after  eating them.  If it happens a few times after eating the same foods- I cut back or avoid them. for this reason I avoid dairy and eggs.  So far this has worked well for me.  oh, I have some of Bob's Red Mill Mighty Tasty Hot cereal and I love it! it's hard to find but I will be looking for more.  for the next few weeks I'm going to be concentrating on whole fresh fruits and veggies and beans and nuts and seeds. I'll have to find out if grains are truly necessary in our diet. I buy brown rice pasta but only eat that maybe once a month at most. Never liked quinoa. And all the other exotic sounding grains seem to be time consuming to prepare. Something to look at later. I love beans and to me they provide the heft and calories that make me feel full for a lot longer than a big bowl of broccoli or other veggies. I can't even tolerate the plant milks right now.  I have reached out to the endo for guidance regarding calcium intake - she wants me to consume 1000mgs from food daily and I'm not able to get to more than 600mgs right now.  not supposed to use a supplement until after my next round of testing for hyperparathyroidism.   thanks again- you seem to know quite a bit about celiac.  
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