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Entero Results, Gluton Senstive? What Do I Do Now?

bahstonsox

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bahstonsox Newbie
bahstonsox
Posted

I had a blood test come back that was described by my doctor as "Borderline Celiac" .. He had me come back for more blood test and then said everything was fine. Strangely enough I have been having some symptoms that could be Gluton related which was why I took a blood test in the first place (Numbness in legs, foggy brain, stomach issues).

I had an EntroLab test done and my results are as follows:

Fecal Anti-Gliadin IGA: 14 Units (Normal is less than 10)

Fecal Transglutaminase IGA: 11 Units (Normal is less than 10)

Fecal Anti-casein IGA: 11 Units (Normal range is lees than 10)

HLA-DQB 1 Molecular Allele 1 0202

HLA-DQB 1 Molecular Alele 2 0609

Seroligcal equivalent HLA-DQ 2,1 (Subtype 2,6)

I read the interpretations by Enterolab but am not sure what this means and what to do now. It indicates I am Gluton Sensitive but does that mean I just sensitive and not Celiac?.

Confused and need help:)..

Thanks

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ravenwoodglass Mentor
ravenwoodglass
Posted

What you do now is get on the diet strictly. It makes no difference whether you are 'celiac' or 'gluten intolerant' both need to be just as strict. In additon you do have one of the main celiac associated genes, DQ2.

Skylark Collaborator
Skylark
Posted

Stop eating gluten. I bet you feel 100% better off the stuff.

You're not celiac... yet. It's possible for folks who are gluten-sensitive and continue to eat wheat to develop full-blown celiac disease which you don't want. The celiac autoimmunity predisposes you to other autoimmune problems.

bahstonsox Newbie
bahstonsox
Posted
  • Author

Stop eating gluten. I bet you feel 100% better off the stuff.

You're not celiac... yet. It's possible for folks who are gluten-sensitive and continue to eat wheat to develop full-blown celiac disease which you don't want. The celiac autoimmunity predisposes you to other autoimmune problems.

So your saying I am not yet Celiac based on these results?..

What do my results indicate outside of what the report says?

Do I need to be 100% strict or can I be flexible as my results don't indicate a severe case?

ravenwoodglass Mentor
ravenwoodglass
Posted

So your saying I am not yet Celiac based on these results?..

What do my results indicate outside of what the report says?

Do I need to be 100% strict or can I be flexible as my results don't indicate a severe case?

I had an EntroLab test done and my results are as follows:

Fecal Anti-Gliadin IGA: 14 Units (Normal is less than 10)

Fecal Transglutaminase IGA: 11 Units (Normal is less than 10)

Fecal Anti-casein IGA: 11 Units (Normal range is lees than 10)

HLA-DQB 1 Molecular Allele 1 0202

HLA-DQB 1 Molecular Alele 2 0609

Seroligcal equivalent HLA-DQ 2,1 (Subtype 2,6)

While your numbers are not sky high your numbers are positive. Yes you could be celiac as you do have one of the main celiac genes. No you should not be 'flexible' with the diet. A postive is a positive. Whether you are gluten intolerant, boy I do hate that term as it makes people feel it is less serious, or you are celiac doesn't matter. You do need to be on the diet and you should also eliminate casein, milk protein, as well.

You could also give Enterolab a call or an email for clarification if you need to.

Skylark Collaborator
Skylark
Posted

So your saying I am not yet Celiac based on these results?..

What do my results indicate outside of what the report says?

Do I need to be 100% strict or can I be flexible as my results don't indicate a severe case?

Your doctor was actually very clear when he said "borderline celiac". Celiac disease is a process. You start with a genetic gluten sensitivity, and over time your body develops autoimmunity from the gluten sensitivity. The autoimmunity damages your gut and you get lots of chronic health problems from malabsorption and autoimmune damage.

Your test results suggest you are early in the process of developing celiac disease. The only way to make it stop is go off gluten completely and permanently. Continuing to eat it has a very real possibility of giving you a lot of nasty autoimmunity and pushing you from "borderline celiac" to "unquestionably celiac".

bahstonsox Newbie
bahstonsox
Posted
  • Author

Thanks,

I appreciate the candor.

How certain can I be that my results are correct based on the enterolab results?

Also would any suggest doing a biospsy so the answer is more clear?

I have never had a health issue so this is all new to me and somewhat scary.

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WheatChef Apprentice
WheatChef
Posted

Thanks,

I appreciate the candor.

How certain can I be that my results are correct based on the enterolab results?

Also would any suggest doing a biospsy so the answer is more clear?

I have never had a health issue so this is all new to me and somewhat scary.

There's no real concise answer to your first question. They're mainly used as a guideline as opposed to a definite result.

A biopsy might give you more concrete yes answer yet at this point it's likely as a "weak" celiac the damage may not be sufficient enough at this point to be observable through just a few biopsies. A biopsy may buy you some piece of mind but based on your genes even if you get a negative result on the biopsy you should consider doing a trial of the gluten-free diet.

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