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Cross Contamination Issues

Jacky

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Jacky Rookie
Jacky
Posted

Hi there. I was diagnosed 2 months ago and went gluten free at that time, however, it seems like all I keep getting sick from hidden gluten or cross contamination. I go about 5 days at a time and then something gets me again! I don't know much about this. Am I being too daring with my food choices? Is it because my gut is not healed?

I ate a Healthy Choice frozen dinner Wednesday pm and am still sick on Saturday. I've learned about hydrolyzed vegetable protein and dextrin and there was none in it.

Please help!

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dilettantesteph Collaborator
dilettantesteph
Posted

You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet.

Jacky Rookie
Jacky
Posted
  • Author

You could try to only eat gluten free food that is processed in gluten free facilities. That cuts down on CC and is what some celiacs do. Personally, I avoid processed foods in general. I don't think that you need to go that far yet.

Thanks! I agree. I've decided to stop with unknown "mainstream" foods for now. I may be trying things too quickly. This whole thing is pretty complicated. Thanks for the feedback.

T.H. Community Regular
T.H.
Posted

so far, my daughter and I are sensitive enough that we've had to make everything from scratch or we get ill. My father and brother, on the other hand, have no trouble at all, so I think a lot depends on individual sensitivity too. good luck!

Thanks! I agree. I've decided to stop with unknown "mainstream" foods for now. I may be trying things too quickly. This whole thing is pretty complicated. Thanks for the feedback.

Lily127 Rookie
Lily127
Posted

I share your angst. I'm feeling pretty awful tonight and I'm not sure if it's something I ate. I had Amy's Low Sodium Lentil with Vegetables (and it tasted really good, I'll give it that) but I started to feel sick afterwards. It felt more like an MSG type feeling but given that I have CFS and Fibro and Gluten issues I sometimes don't know what is causing what. It could also be that it was very spicy. Even spice can make me feel shaky so I just don't know where to start sometimes other than really going simple. Baked Chicken Breast, Veggies, Rice for awhile.

I wonder if stuff that low sodium has something extra in it to make it tasty?

frogrun Apprentice
frogrun
Posted

I can't eat anything from Amy's due to cc. I spoke to the dietitian at a recent gluten free gala and she said a lot of people can't eat Amy's.

Juliebove Rising Star
Juliebove
Posted

Did you go through your kitchen and get rid of anything that might have lurking gluten? Like non-stick cookware, colanders and the like? That was the first thing I did when daughter was diagnosed. Also got rid of the obvious foods like wheat flour and scrubbed out the cupboards. I don't use cutting boards except to put under the paper plates that I cut on. So I felt those were safe.

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    • lizzie42
      Son's legs shaking

      By lizzie42 · Posted

      Neither of them were anemic 6 months after the Celiac diagnosis. His other vitamin levels (d, B12) were never low. My daughters levels were normal after the first 6 months. Is the thiamine test just called thiamine? 
    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      Yes, I do think they need a Thiamine supplement at least. Especially since they eat red meat only occasionally. Most fruits and vegetables are not good sources of Thiamine.  Legumes (beans) do contain thiamine.  Fruits and veggies do have some of the other B vitamins, but thiamine B 1 and  Cobalamine B12 are mostly found in meats.  Meat, especially organ meats like liver, are the best sources of Thiamine, B12, and the six other B vitamins and important minerals like iron.   Thiamine has antibacterial and antiviral properties.  Thiamine is important to our immune systems.  We need more thiamine when we're physically ill or injured, when we're under stress emotionally, and when we exercise, especially outside in hot weather.  We need thiamine and other B vitamins like Niacin B 3 to keep our gastrointestinal tract healthy.  We can't store thiamine for very long.  We can get low in thiamine within three days.  Symptoms can appear suddenly when a high carbohydrate diet is consumed.  (Rice and beans are high in carbohydrates.)  A twenty percent increase in dietary thiamine causes an eighty percent increase in brain function, so symptoms can wax and wane depending on what one eats.  The earliest symptoms like fatigue and anxiety are easily contributed to other things or life events and dismissed.   Correcting nutritional deficiencies needs to be done quickly, especially in children, so their growth isn't stunted.  Nutritional deficiencies can affect intelligence.  Vitamin D deficiency can cause short stature and poor bone formation.   Is your son taking anything for the anemia?  Is the anemia caused by B12 or iron deficiency?  
    • lizzie42
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      Thank you! That's helpful. My kids eat very little processed food. Tons of fruit, vegetables, cheese, eggs and occasional red meat. We do a lot of rice and bean bowls, stir fry, etc.  Do you think with all the fruits and vegetables they need a vitamin supplement? I feel like their diet is pretty healthy and balanced with very limited processed food. The only processed food they eat regularly is a bowl of Cheerios here and there.  Could shaking legs be a symptom of just a one-time gluten exposure? I guess there's no way to know for sure if they're getting absolutely zero exposure because they do go to school a couple times a week. We do homeschool but my son does a shared school 2x a week and my daughter does a morning Pre-K 3 x a week.  At home our entire house is strictly gluten free and it is extremely rare for us to eat out. If we eat at someone else's house I usually just bring their food. When we have play dates we bring all the snacks, etc. I try to be really careful since they're still growing. They also, of course, catch kids viruses all the time so I  want to make sure I know whether they're just sick or they've had gluten. It can be pretty confusing when they're pretty young to even be explaining their symptoms! 
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    • knitty kitty
      Son's legs shaking

      By knitty kitty · Posted

      @lizzie42, You're being a good mom, seeking answers for your son.  Cheers! Subclinical thiamine deficiency commonly occurs with anemia.  An outright Thiamine deficiency can be precipitated by the consumption of a high carbohydrate meal.   Symptoms of Thiamine deficiency include feeling shakey or wobbly in the legs, muscle weakness or cramps, as well as aggression and irritability, confusion, mood swings and behavior changes.  Thiamine is essential to the production of neurotransmitters like serotonin and dopamine which keep us calm and rational.   @Jsingh, histamine intolerance is also a symptom of Thiamine deficiency.  Thiamine is needed to prevent mast cells from releasing histamine at the slightest provocation as is seen in histamine intolerance.  Thiamine and the other B vitamins and Vitamin C are needed to clear histamine from the body.  Without sufficient thiamine and other B vitamins to clear it, the histamine builds up.  High histamine levels can change behavior, too.  High histamine levels are found in the brains of patients with schizophrenia.  Thiamine deficiency can also cause extreme hunger or conversely anorexia.   High carbohydrate meals can precipitate thiamine deficiency because additional thiamine is required to process carbohydrates for the body to use as fuel.  The more carbohydrates one eats daily, the more one needs additional thiamine above the RDA.  Thiamine is water soluble, safe and nontoxic even in high doses. Keep in mind that gluten-free processed foods like cookies and such are not required to be fortified and enriched with vitamins and minerals like their gluten containing counterparts are.  Limit processed gluten-free foods.  They are often full of empty calories and unhealthy saturated fats and additives, and are high in histamine or histamine release triggers.  It's time you bought your own vitamins to supplement what is not being absorbed due to malabsorption of Celiac disease.  Benfotiamine is a form of Thiamine that has been shown to improve intestinal health as well as brain function. Do talk to your doctors and dieticians about supplementing with the essential vitamins and minerals while your children are growing up gluten free.  Serve nutritionally dense foods.  Meats and liver are great sources of B vitamins and minerals. Hope this helps!  Keep us posted on your progress!
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