Need Advice

[glutenfreegirl]

I hope someone here can help direct me. My son was tested via entrolab by my naturopathic Dr after years of not growing (for 3 yrs wore the same size)an outbreak of what she thought to be DH on flank of his body his, recurring bronchitis and sinus infections, test came back positive . Ok so he went gluten-free for a year, did not gain much but started to grow taller, bronchitis went away and no more DH. GP said if it is not blood tested it is not valid and wont recognize it as Celiac or Gluten intolerance etc. So went back on Gluten as we thought we where ridiculous after all the medical system did not recognize the bowel test right!!! has been back on gluten again for 2 months, constipated for 5 days and just came off antibiotics for pneumonia after 5 days. and now has wheezing in his chest. Has now been gluten-free again for 10 days with in 4 days gluten-free bowel movement went back to normal wheezing is taking some time...what am I doing, I do not know what to do, or who to believe, should i take him for a blod panel via GP? or will it show incorrect as been gluten-free for the past yr...then on for 2 months and now back off for 10 days?? I am not putting him back on Gluten to be tested he clearly gets to run down and his immune system cannot take it, but i am so tired of feeling like a crazy person because he has not been blood tested by the GP to know for sure if it is celiac....please help

[ravenwoodglass]

Did he get an outbreak of DH while back on gluten? If he did and he still has active lesions you could go the derm route. A diagnosis of DH is a diagnosis of celiac. You do have to be sure that the derm knows how to look for it. The biopsy needs to be done next to a lesion not on the lesion itself. This link to the NIH's celiac info may be helpful

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"A skin biopsy is the key tool in confirming a diagnosis of DH. Doctors take a skin sample from the area next to a lesion and, using a fluorescent dye that highlights antibodies, look for the presence of IgA deposits. Skin biopsies of people with DH are almost always positive for IgA."

You have seen improvement with the diet and you had a positive challenge, he became ill again. While it is helpful to have a 'firm' doctor defined diagnosis for young folks as it helps when dealing with school you don't need a doctors permission to keep him gluten free.