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LoveHateTragedy

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LoveHateTragedy Newbie
LoveHateTragedy
Posted

Hi, my names Hollie. My mums been suffering with very bad celiac disease for roughly 3 years now. Could i have some help in finding some snacky products that my mum can have without having to worry about having a reaction to anything? Any help would be appreciated, thanks in advance.

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kareng Grand Master
kareng
Posted

Look around on this website as we have had lots of posts about this. You can try putting snacks and lunch in the search box. There are a lot of candy & you can find a list - M&Ms, Dove chocolate are 2,

Skylark Collaborator
Skylark
Posted

If she has a lot of trouble, it's best to stick to unprocessed, naturally gluten-free foods. Fresh fruits, fresh vegetables, dried fruits, plain nuts and seeds, and cheese are all naturally gluten-free, healthy snack foods. I love apples and peanut butter. :) For sweets, most good chocolate is naturally gluten-free, or get an ice cream without a lot of ingredients like Breyer's.

The more processing, the more risk of gluten cross-contamination. Larabars, Kind bars, Lay's Stax, and the Nature Valley nut crunch bars (the box is marked gluten-free now) are some processed foods I can tolerate well. Lundburg rice cakes are pretty good and gluten-free, and the Whole Foods brand rice crackers are affordable and haven't give me any problems.

LDJofDenver Apprentice
LDJofDenver
Posted

Hi, my names Hollie. My mums been suffering with very bad celiac disease for roughly 3 years now. Could i have some help in finding some snacky products that my mum can have without having to worry about having a reaction to anything? Any help would be appreciated, thanks in advance.

Hi Hollie

A few months after I was diagnosed I discovered these grocery shopping guides. Made my life much easier when shopping.

Gluten-Free Grocery Shopping Guides. Aside from these, our local GIG Celiac Div. has a smaller gluten-free groc. guide that includes a lot of local items, so you may look for a local Celiac Chapter in your area.

Open Original Shared Link

Open Original Shared Link

There another out that can also be downloaded to your PDA device, etc., by Clan Thompson.

I bought the Cecilas guide, it was about $25 and worth every dollar. Put an end to standing in the aisle and reading packages!

Many grocery stores and food manufacturers (Kraft, Hormel etc) now have their own gluten free product lists as well, some online and some will mail you list.

Here is a link to Gluten Intolerance Group NA's page where you can search for certified gluten free items:

Open Original Shared Link

Juliebove Rising Star
Juliebove
Posted

What about things that are naturally gluten free? Like fresh vegetables and fruit, nuts and seeds.

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  • Recent Activity

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    • GlorietaKaro
      Am I nuts?

      By GlorietaKaro · Posted

      Thanks to both of you for your responses!  Sadly, even after several years of very strict gluten avoidance, I remember the symptoms well enough that I am too frightened to risk a gluten challenge— heartbeat and breathing problems are scary— Scott, thank you for the specific information— I will call around in the new year to see if I can find anyone. In the meantime, I will carry on has I have been— it’s working! Thanks also for the validation— sometimes I just feel crushed by disbelief. Not enough to make me eat gluten though—
    • trents
      Am I nuts?

      By trents · Posted

      Welcome to the celiac.com community, @GlorietaKaro! As Scott indicated, without formal testing for celiac disease, which would require you to have been consuming generous amounts of gluten daily for weeks, it would be not be possible to distinguish whether you have celiac disease or NCGS (Non Celiac Gluten Sensitivity). Their symptoms overlap. The difference being that celiac disease is an autoimmune disorder that damages the lining of the small bowel. We actually no more about celiac disease than we do about NCGS, the mechanism of the latter being more difficult to classify. There are specific antibody tests for celiac disease diagnosis and there is also the endoscopy/biopsy of the small bowel lining. Currently, there are no tests to diagnose NCGS. Celiac disease must first ruled out. Researchers are working on developing testing methods to diagnose celiac disease that do not require a "gluten challenge" which is just out of the question for so many because it poses serious, even life-threatening, health risks. But we aren't there yet.
    • lalan45
      My journey is it gluten or fiber?

      By lalan45 · Posted

      That’s really frustrating, I’m sorry you went through that. High fiber can definitely cause sudden stomach issues, especially if your body isn’t used to it yet, but accidental gluten exposure can feel similar. Keeping a simple food/symptom journal and introducing new foods one at a time can really help you spot patterns. You’re already doing the right things with cleaning and separating baking—also watch shared toasters, cutting boards, and labels like “may contain.”
    • Russ H
      Anti-endomysial Antibody (EMA) Testing

      By Russ H · Posted

      I thought this might be of interest regarding anti-EMA testing. Some labs use donated umbilical cord instead of monkey oesophagus. Some labs just provide a +ve/-ve test result but others provide a grade by testing progressively diluted blood sample. https://www.aesku.com/index.php/ifu-download/1367-ema-instruction-manual-en-1/file Fluorescence-labelled anti-tTG2 autoantibodies bind to endomysium (the thin layer around muscle fibres) forming a characteristic honeycomb pattern under the microscope - this is highly specific to coeliac disease. The binding site is extracellular tTG2 bound to fibronectin and collagen. Human or monkey derived endomysium is necessary because tTG2 from other mammals does not provide the right binding epitope. https://www.mdpi.com/1422-0067/26/3/1012
    • Scott Adams
      Just diagnosed today

      By Scott Adams · Posted

      First, please know that receiving two diagnoses at once, especially one you've never heard of, is undoubtedly overwhelming. You are not alone in this. Your understanding is correct: both celiac disease and Mesenteric Panniculitis (MP) are considered to have autoimmune components. While having both is not extremely common, they can co-occur, as chronic inflammation from one autoimmune condition can sometimes be linked to or trigger other inflammatory responses in the body. MP, which involves inflammation of the fat tissue in the mesentery (the membrane that holds your intestines in place), is often discovered incidentally on scans, exactly as in your case. The fact that your medical team is already planning follow-up with a DEXA scan (to check bone density, common after a celiac diagnosis) and a repeat CT is a very proactive and prudent approach to monitoring your health. Many find that adhering strictly to the gluten-free diet for celiac disease helps manage overall inflammation, which may positively impact MP over time. It's completely normal to feel uncertain right now. Your next steps are to take this one day at a time, focus on the gluten-free diet as your primary treatment for celiac, and use your upcoming appointments to ask all your questions about MP and what the monitoring plan entails. This dual diagnosis is a lot to process, but it is also the starting point for a managed path forward to better health. This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
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