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Celiac?

hercules25

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hercules25 Apprentice
hercules25
Posted

I have been suffering for about 13 yrs now gastric and multiple other symptoms. My blood work is usually normal. Recently My Saccharomyces cerevisiae IgG came back 34.9 (above 25 is positive) and IgA 48.5. I am also positive for eosinophil's. My gastro diagnosed me with Chrons cause of the IgG and IgA but is confused cause I am positive for Eosinophil (which is an allergy) I have been Entocort for 2 months. It worked for a month and now I am sick again. My WBC is always normal, dont run a fever, rarely diarrhea, mostly constipation, never vomit, have vision problems, and so on. My stomach is bubbling all the time. Could this be Celiac and not Chron's?? What should I do next. Had all test including the capsule camera that never left my stomach for 8 hours so no luck with that. All other test come back negative beside minor inflammation where small intestine and large meet. (1 out of 5 colonoscopies reveled that). MRI of brain Neg. CT Scan and MRI of abdom neg. What next?

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Skylark Collaborator
Skylark
Posted

Has your doctor run a celiac panel?

There are people with gluten intolerance who do not have positive tests for celiac disease. Also going off gluten seems to help some people with other bowel problems. There is also a gluten-free, lactose-free diet called the "Specific Carbohydrate Diet" (SCD) that some people around here swear by. Once you have the celiac testing done, you can try either gluten-free or SCD and see if it helps.

ravenwoodglass Mentor
ravenwoodglass
Posted

You could also have both celiac and chrons. I would do as Skylark advised and try the gluten-free diet after you are done with celiac testing. You don't need to wait for the results as false negatives on celiac testing are unfortunately common. Being gluten free will only effect the testing for celiac. If there are other issues going on they can still be tested for.

hercules25 Apprentice
hercules25
Posted
  • Author

Weird thing is that I started a Gluten Free Diet and in the mist of moving 1500 miles this week I ate Gluten and woke up this morning fatigue as hell, cold sore in my mouth, and flu feeling. Per my primary dr the celiac panel was negative but I know that the test I took above can relate to Celiac and is specific for the small bowel. My gastro said from day one he thinks it from food allergy cause of the positive Esophinils but became confused after the positive blood test. I am a text book case. LOL. I am starting gluten free again today. Uuggg..

ravenwoodglass Mentor
ravenwoodglass
Posted

Weird thing is that I started a Gluten Free Diet and in the mist of moving 1500 miles this week I ate Gluten and woke up this morning fatigue as hell, cold sore in my mouth, and flu feeling. Per my primary dr the celiac panel was negative but I know that the test I took above can relate to Celiac and is specific for the small bowel. My gastro said from day one he thinks it from food allergy cause of the positive Esophinils but became confused after the positive blood test. I am a text book case. LOL. I am starting gluten free again today. Uuggg..

Glad to hear your starting back on the diet again. Don't be surprised if your tied to the bathroom in a day or two.

I hope you are feeling better soon. Some sublingual B12 may help a bit with the fatigue.

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