Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Venting.....feeling Like Crap Again!


looking4help

Recommended Posts

looking4help Apprentice

Well, I wanted to be able to vent and you all are the only ones that really "get" the frustration and pain.

Just a quick recap: Gluten free since April '10, had colonoscopy, endoscopy, CT scans, you name it been there done it. Fired 1st GI because it seemed I could be rich for the $ I was paying her to hear well, it's not for sure or I guess we could test for that. WHAT!!! 2nd GI ordered full panel of blood work and is taking a let's check it off approach. So, I am not to sure about that one either. At least he listens and gives me some pain killers for the horrible attacks I was having.

Anyways, 2nd GI wants to rule out endometreosis. So, I went for regular pap and have yet another UTI. Go figure I seem to have them more than not. I drink cranberry, flush with water, pee after sex all the tips. Just have always had them most of my life.

Went for the vaginal ultrasound today and listened as the tech said a bunch of hmmms and repeated apologies for having to push on my abdomen which was extremely painful.

The OB is now ordering that my hormones levels (follicles) thyroid and a CBC blood panel be done. I requested a B12 check as well. I have extremely low B12 and take shots and sublinguals. So, I figure anytime my arm is getting poked for blood they can check my B12 levels.

Ok, the venting part: I AM SICK OF THIS PAIN! I have actually had a few days now for the 1st time in a year w/o pain and after today I hurt so bad that I am in a ball on the bed ready to cry my eyes out. UGH!!!

Sharp, sharp pain in the left side is taking me to a place of anger and hurt that I can't describe. I wanted to vent here instead of taking it out on my poor kids.

Thanks for listening!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
GliadinX



Celiac.com Sponsor (A8-M):
Lakefront Brewery


Skylark Collaborator

((( hug )))

So sorry you're hurting.

GlutenFreeManna Rising Star

So sorry :( I had one of those icky ultrasounds once. They assured me it wouldn't hurt at all. I was in pain for days afterward. Not trying to scare you, just letting you know it's normal. I hope you can take a few days to rest and take care of yourself.

looking4help Apprentice
  On 7/1/2010 at 12:50 AM, GlutenFreeManna said:

So sorry :( I had one of those icky ultrasounds once. They assured me it wouldn't hurt at all. I was in pain for days afterward. Not trying to scare you, just letting you know it's normal. I hope you can take a few days to rest and take care of yourself.

You are all so sweet here! Thank you for the hugs and support!

The thing is that I remember them hurting much worse way back in the days when I was preg. Can't remember which kid it was but I had to have so many of these type ultrasounds it was something else.

The actual test itself was not hurting. The pushing on my abdomen was what hurt so badly. I was afraid of the pain so I had taken 1/2 of a hydrocodone before going in. Thank goodness I did. The tech said she was trying to move around some trapped gas so she could see my hiding right ovary.

Does this mean anything to anyone? Why would my ovary be hiding? The tech seemed a bit concerned throughout saying hmmmm, let me take another measurement, and things like that. Am I just freaking???

Skylark Collaborator

Nothing to worry about. A little gas in your intestine was showing up on the ultrasound and keeping the tech from visualizing your ovary clearly. That's what she meant by "hiding". I imagine a tech who was causing you obvious pain would be acting concerned.

I hope the pain goes away soon from all that prodding. :(

tmbarke Apprentice
  On 7/1/2010 at 1:04 AM, looking4help said:

You are all so sweet here! Thank you for the hugs and support!

The thing is that I remember them hurting much worse way back in the days when I was preg. Can't remember which kid it was but I had to have so many of these type ultrasounds it was something else.

The actual test itself was not hurting. The pushing on my abdomen was what hurt so badly. I was afraid of the pain so I had taken 1/2 of a hydrocodone before going in. Thank goodness I did. The tech said she was trying to move around some trapped gas so she could see my hiding right ovary.

Does this mean anything to anyone? Why would my ovary be hiding? The tech seemed a bit concerned throughout saying hmmmm, let me take another measurement, and things like that. Am I just freaking???

This sounds kinda like what I've experienced up into my 30's......a laproscopic 'look' inside was the answer I'd needed for so long.

I had an infection in my teens that created adhesions in my lower abdomen.

Everything was adhered together.....Everything!

Scar tissue grew my intestines and the reproductive organs together that became very painful during sex and bowel movements..........even grew up my tubes.....hence the reason I cannot have children.

When they did the laprosope......they cut it all away and I have not had the pain since......going on 15 yrs now.

It may be worth the same to you.......they NEVER found THAT during an ultrasound!

If your intestines are attached to your uterus........due to adhesions. Then this procedure would tell you for sure.

Something to ask your doctor about.....I was sent to a specialist after 15 yrs of this pain - now 15 yrs without......and diagnosis for Celiac just recently and didn't even compare to that pain I once experienced.

It's your body......defend it as you see fit..........with empowerment!

Big hugs to you doll..........always.

Tena

GlutenFreeManna Rising Star
  On 7/1/2010 at 1:04 AM, looking4help said:

The tech said she was trying to move around some trapped gas so she could see my hiding right ovary.

Does this mean anything to anyone? Why would my ovary be hiding? The tech seemed a bit concerned throughout saying hmmmm, let me take another measurement, and things like that. Am I just freaking???

Yep, that's pretty much the same thing my ultrasound tech said to me. It must be pretty standard for them to have to move things around to get a better shot. I wouldn't read anything into it.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Holidaily Brewing Co.
GliadinX



Celiac.com Sponsor (A8-M):
Food for Life


looking4help Apprentice
  On 7/1/2010 at 1:38 AM, tmbarke said:

This sounds kinda like what I've experienced up into my 30's......a laproscopic 'look' inside was the answer I'd needed for so long.

I had an infection in my teens that created adhesions in my lower abdomen.

Everything was adhered together.....Everything!

Scar tissue grew my intestines and the reproductive organs together that became very painful during sex and bowel movements..........even grew up my tubes.....hence the reason I cannot have children.

When they did the laprosope......they cut it all away and I have not had the pain since......going on 15 yrs now.

It may be worth the same to you.......they NEVER found THAT during an ultrasound!

If your intestines are attached to your uterus........due to adhesions. Then this procedure would tell you for sure.

Something to ask your doctor about.....I was sent to a specialist after 15 yrs of this pain - now 15 yrs without......and diagnosis for Celiac just recently and didn't even compare to that pain I once experienced.

It's your body......defend it as you see fit..........with empowerment!

Big hugs to you doll..........always.

Tena

Thanks for all the responses thus far.

Yes, my new OB is FANTASTIC! I love her already! She already said we need to think about laproscope and I told her no need to think let's get to it! She wanted the ultrasound first and we are moving forward with the laproscopy.

I sure hope they find something. I am thinking maybe I have scar tissue from the many infections I have had through the years. I dunno! I am desperate!

sandsurfgirl Collaborator

No advice, just HUGS and prayers that you get answers and relief.

sickchick Community Regular

Wipe those tears of that pretty face and BREATHE :) We're all here for you.

I am so sorry you have to deal with that. I used to have to have a lot of bloodwork done (I was diagnosed with Eptein-Barr @ 15). It was hard at first but after I got used to it I was a trooper.

Think about all the gluten free cookies you get to eat after ;) lol

be well! :)

xoxo

dilettantesteph Collaborator

Being gluten free made my UTI's stop happening. Hope the same will happen to you.

looking4help Apprentice

Thank you so much for your post sickchick. I took your advice and wiped the tears and breathed a bunch! I am now beginning to feel a little better.

((Hugs))

  On 7/1/2010 at 5:50 PM, sickchick said:

Wipe those tears of that pretty face and BREATHE :) We're all here for you.

I am so sorry you have to deal with that. I used to have to have a lot of bloodwork done (I was diagnosed with Eptein-Barr @ 15). It was hard at first but after I got used to it I was a trooper.

Think about all the gluten free cookies you get to eat after ;) lol

be well! :)

xoxo

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,410
    • Most Online (within 30 mins)
      7,748

    Nicola mcculloch
    Newest Member
    Nicola mcculloch
    Joined

  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Food for Life



  • Upcoming Events

  • Posts

    • Pablohoyasaxa
      I feel your pain. Grain and gluten intolerant. Hang in there. This forum is very helpful
    • ElisaL
      IDK how common it is but it does happen. I'm celiac, allergic, and intolerant to the fiber in grains. (Fodmaps) So not only do I get sick from cross contamination, also gluten free wheat statch/fiber, and beauty products with wheat will get me. While I don't stop breathing the full body hives and short breath are not fun. Then once I make through that me and the bathroom become reacquaint. Sigh if I didn't feel so much better with the restrictions on my diet I'd feel sorry for myself. Least it makes for some good jokes about how the gremlin that lives in my gut really hates wheat. 
    • Wends
      Hi Dora77. “Questions I Need Help With” “1. Is it realistically safe to eat food my mom cooks…” YES - you wouldn’t be here if it wasn’t for your mother. Trust she still knows how to take the best care of you in her own way. Mishaps and cross contamination may happen - will happen on occasion, in fact - that’s life. But for the bulk of it as long as you’re aware of cc and try to avoid it for the most part, don’t sweat the small stuff! See the gluten free diet as a process. Own the process, Do Not let the process own you! “2. Do I need to worry about touching doorknobs, fridge handles, light switches, etc. that family members touched after eating gluten? What about public places like bus handles or...
    • maryannlove
      Unfortunately not going to be able to let you know how Amneal is working because I still have almost 3 month supply of Mylan.  Had annual appointment with endocrinologist last week (though get scripts for blood work more often) and since was on my last refill, she sent new script to pharmacist.  Staying on my Mylan until it's gone.  (I tend to build up a supply because after trying a couple of endocrinologists for my Hashimotos, one finally got my thyroid regulated by my taking only six days a week instead of adjusting the strength which had me constantly up and down.  Will be forever grateful to her.  Apparently high percentage of folks with Celiac also have Hashimotos so all this...
    • KimMS
      Thanks for sharing this! Have you started taking the Amneal? I'm curious how it's going for you. My pharmacy gave me the option of Accord, Macleod or Amneal. I didn't realize that Amneal was formerly Lannett, or I might have chosen that one. However, I did read some anecdotal reports that some people had side effects with Amneal, so I chose Accord. I have been taking it for 3-4 weeks and the past 10 days I have developed extreme fatigue/sluggishness, joint pain and some brain fog. I don't know if it is the new levo med, but nothing else has changed. Has anyone else taken Accord levo? Any issues? It seems to fall into the "no gluten ingredients, but we...
×
×
  • Create New...