Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.


  • Celiac.com Sponsor (A1):
    Celiac.com Sponsor (A1-M):
  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help..please


CarolinaKip

Recommended Posts

CarolinaKip Community Regular

Help, please! I found out a month ago that I have Celiac after 7 months of tests and scans. I'm learning alot, but still in pain. I went to a wonderful dietition who helped alot, but I'm still making mistakes. I have some pain free hours and I'd like to make them days. Right now I'm getting the handle on food, but want to go gluten free with my cosmetics, lotions etc. If anyone knows of a good line to try, could you please let me know. Any other advice, help, or suggestions would be welcomed. Thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

Don't worry - it gets easier! I was accidentally glutened 3 times in my first 3 weeks of trying to be gluten-free. I'd start to feel better, then - bam! - stomach cramps for the next 5 days. There is a learning curve. It sounds like you have a really positive attitude, and that's great.

I just have one suggestion: look out for food intolerances. Since your digestive system has been severely strained after eating gluten for so long, it may be hard for your body to digest other foods. It could be that you're reacting to something else in your diet, especially as your body starts to detox from gluten. That doesn't mean that you'll need to avoid it forever, but you may need a recovery period before you can eat it again.

You can keep a food diary and track how you feel alongside what you eat, to identify if you're reacting to other foods. Common intolerances include dairy, soy, corn, and nightshades including tomatos and eggplant, but everyone is different.

best to you, lucia

CarolinaKip Community Regular

Thanks for your response! I'm going to start the food diary today. Right now, I'm working on cosmetics. I have been having some numbness on my face and icky skin. Thanks again.

Kip

bluebonnet Explorer

burt's bees tinted lip balms have fun color and gluten free. i also like their baby bee body lotion. (target) bare minerals and smash box are gluten free too. (sephora) if you tend to wash your hands a lot nutragena hand cream is nice. (target) for hair i've been using "surface" line from shampoo/conditioner to the gel and hairspray. (available in salons only though i believe they have a website).

i think a lot of people use the garnier facial cream but i haven't tried it yet. i think changing to gluten free products have helped me. early on i pinpointed i got cc from my hand lotion while eating popcorn, so i believe they can make a difference. good luck! :)

CarolinaKip Community Regular

Thank You!!

Tina B Apprentice

Check things like vitamins and supplements for starch fillers. Same for yogurts. I use Nature Made vitamins because they specifically say "gluten free," I did check One a Day on line in the past and are gluten free also.

gflooser Contributor

for things like shampoos etc. i to use garnier fructese, it smells GREAT! i also use suave from time to time. their deoderants, hand soaps, hand creams, they are made by unilever and they will disclose any glutens. dove is also a good product that will list glutens.

i like nutregena for things like facial soaps and hand cream!!!

dial is a good one for hand and body soap, dove, and irsh spring too.

tide for laundry det. and snuggle and bounce for fabric softener.

i tend to stay with revlon and burts bees for make up. they will list any glutens.

crest, colgate, and toms of maine for toothpaste.

as you can see, i try to buy all my products at the wallmart/target type stores. the gluten free food is so expensive that i can't be buying the pricey shampoos, soaps and lotions!

plus, I'm a cheap-o :)

good luck!!!!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



SuperMolly Apprentice

Cross Contamination (CC) can make being gluten free tricky. Here are some things I've learned:

  • Get your own peanut butter jar, jelly, butter, and toaster.
  • Get your own cooking utensils and serving spoons.(Mine are red so we can tell easily they are gluten free).
  • I keep my lunchmeat and cheese in well marked bags away from the family supply. I no longer get sick from their wheat-covered fingers dipping in the bags.
  • Be careful with food that is made in facilities that also use wheat.
  • "Gluten Free Oats" make me very ill. Many can handle them, but not all of us can. (I hope you are one of the lucky ones that can!)
  • Be careful at restaurants. I bring a cooler of safe food with me if I know I'm going to be away for a meal.

    I'm glad you found this forum early on. I wish I would have. Nobody understands celiac disease better than those who live it day in and day out.

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    2. - Jane02 replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    3. - knitty kitty replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

    4. 0

      Penobscot Bay, Maine: Nurturing Gluten-Free Wellness Retreat with expert celiac dietitian, Melinda Dennis

    5. - Scott Adams replied to Jane02's topic in Gluten-Free Foods, Products, Shopping & Medications
      9

      Desperately need a vitamin D supplement. I've reacted to most brands I've tried.

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,331
    • Most Online (within 30 mins)
      7,748

    Kristy2026
    Newest Member
    Kristy2026
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.6k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

  • Upcoming Events

  • Posts

    • knitty kitty
      @Jane02, I hear you about the kale and collard greens.  I don't do dairy and must eat green leafies, too, to get sufficient calcium.  I must be very careful because some calcium supplements are made from ground up crustacean shells.  When I was deficient in Vitamin D, I took high doses of Vitamin D to correct the deficiency quickly.  This is safe and nontoxic.  Vitamin D level should be above 70 nmol/L.  Lifeguards and indigenous Pacific Islanders typically have levels between 80-100 nmol/L.   Levels lower than this are based on amount needed to prevent disease like rickets and osteomalacia. We need more thiamine when we're physically ill, emotionally and mentally stressed, and if we exercise like an athlete or laborer.  We need more thiamine if we eat a diet high in simple carbohydrates.  For every 500 kcal of carbohydrates, we need 500-1000 mg more of thiamine to process the carbs into energy.  If there's insufficient thiamine the carbs get stored as fat.  Again, recommended levels set for thiamine are based on minimum amounts needed to prevent disease.  This is often not adequate for optimum health, nor sufficient for people with absorption problems such as Celiac disease.  Gluten free processed foods are not enriched with vitamins like their gluten containing counterparts.  Adding a B Complex and additional thiamine improves health for Celiacs.  Thiamine is safe and nontoxic even in high doses.  Thiamine helps the mitochondria in cells to function.  Thiamine interacts with each of the other B vitamins.  They are all water soluble and easily excreted if not needed. Interesting Reading: Clinical trial: B vitamins improve health in patients with coeliac disease living on a gluten-free diet https://pubmed.ncbi.nlm.nih.gov/19154566/ Safety and effectiveness of vitamin D mega-dose: A systematic review https://pubmed.ncbi.nlm.nih.gov/34857184/ High dose dietary vitamin D allocates surplus calories to muscle and growth instead of fat via modulation of myostatin and leptin signaling https://pubmed.ncbi.nlm.nih.gov/38766160/ Safety of High-Dose Vitamin D Supplementation: Secondary Analysis of a Randomized Controlled Trial https://pubmed.ncbi.nlm.nih.gov/31746327/ Vitamins and Celiac Disease: Beyond Vitamin D https://pmc.ncbi.nlm.nih.gov/articles/PMC11857425/ Investigating the therapeutic potential of tryptophan and vitamin A in modulating immune responses in celiac disease: an experimental study https://pubmed.ncbi.nlm.nih.gov/40178602/ Investigating the Impact of Vitamin A and Amino Acids on Immune Responses in Celiac Disease Patients https://pmc.ncbi.nlm.nih.gov/articles/PMC10814138/
    • Jane02
      Thank you so much @knitty kitty for this insightful information! I would have never considered fractionated coconut oil to be a potential source of GI upset. I will consider all the info you shared. Very interesting about the Thiamine deficiency.  I've tracked daily averages of my intake in a nutrition software. The only nutrient I can't consistently meet from my diet is vitamin D. Calcium is a hit and miss as I rely on vegetables, dark leafy greens as a major source, for my calcium intake. I'm able to meet it when I either eat or juice a bundle of kale or collard greens daily haha. My thiamine intake is roughly 120% of my needs, although I do recognize that I may not be absorbing all of these nutrients consistently with intermittent unintentional exposures to gluten.  My vitamin A intake is roughly 900% (~6400 mcg/d) of my needs as I eat a lot of sweet potato, although since it's plant-derived vitamin A (beta-carotene) apparently it's not likely to cause toxicity.  Thanks again! 
    • knitty kitty
      Hello, @Jane02,  I take Naturewise D 3.  It contains olive oil.   Some Vitamin D supplements, like D Drops, are made with fractionated coconut oil which can cause digestive upsets.  Fractionated coconut oil is not the same as coconut oil used for cooking.  Fractionated coconut oil has been treated for longer shelf life, so it won't go bad in the jar, and thus may be irritating to the digestive system. I avoid supplements made with soy because many people with Celiac Disease also react to soy.  Mixed tocopherols, an ingredient in Thornes Vitamin D, may be sourced from soy oil.  Kirkland's has soy on its ingredient list. I avoid things that might contain or be exposed to crustaceans, like Metagenics says on its label.  I have a crustacean/shellfish/fish allergy.  I like Life Extension Bioactive Complete B Complex.  I take additional Thiamine B 1 in the form Benfotiamine which helps the intestines heal, Life Extension MegaBenfotiamine. Thiamine is needed to activate Vitamin D.   Low thiamine can make one feel like they are getting glutened after a meal containing lots of simple carbohydrates like white rice, or processed gluten free foods like cookies and pasta.   It's rare to have a single vitamin deficiency.  The water soluble B Complex vitamins should be supplemented together with additional Thiamine in the form Benfotiamine and Thiamine TTFD (tetrahydrofurfuryl disulfide) to correct subclinical deficiencies that don't show up on blood tests.  These are subclinical deficiencies within organs and tissues.  Blood is a transportation system.  The body will deplete tissues and organs in order to keep a supply of thiamine in the bloodstream going to the brain and heart.   If you're low in Vitamin D, you may well be low in other fat soluble vitamins like Vitamin A and Vitamin K. Have you seen a dietician?
    • Scott Adams
      I do not know this, but since they are labelled gluten-free, and are not really a product that could easily be contaminated when making them (there would be not flour in the air of such a facility, for example), I don't really see contamination as something to be concerned about for this type of product. 
    • trents
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.