Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Could I Have Dh


Mack the Knife

Recommended Posts

Mack the Knife Explorer

I was diagnosed with Coeliac at the end of 2009 and I had the classic gastro-intestinal issues. I never had any issues with rashes.

But over the last few months I have developed an itchy rash on my scalp that flares and recedes but never entirely seems to go away. It's a bit like eczema. I get little bubbles of fluids that are really itchy and I end up scratching them until they burst and my scalp bleeds and then gets all scabby. I've had a bit on my elbows occasionally too but my scalp is the main location.

I figured it couldn't be DH because I never had a rash prior to diagnosis. So why would I get it know when I am strictly following a gluten free diet?

However, I haven't gotten better on a gluten free diet. I went and saw my specialist and he re-did the blood tests and gastroscopy. These showed that I still have active coeliac disease and that I'm not getting better like I should. He suspects I am still accidentally ingesting gluten so I am trying to track that down now. So I probably have been eating small amounts of gluten over the last six months or so.

So, do my symptoms sound like DH? And is it possible to develop DH after diagnosis if I've never had it before? Or is it something else?

I have tried changing hair products, etc but nothing seems to help.

  • 3 weeks later...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Tucson Karen and Wayne Newbie

Hows the scalp now?

I wanted to say that I too had the itchy scalp for years and year, only at the base of the back of my neck but into the hair, not on the neck. Drove me crazy and once in a while it happens again, but I started using Horsehair shampoo, and it's gone. After years of itching. You can find it in the normal walgreens type store in the shampoo isle. good luck on this.

ChemistMama Contributor

But over the last few months I have developed an itchy rash on my scalp that flares and recedes but never entirely seems to go away. It's a bit like eczema. I get little bubbles of fluids that are really itchy and I end up scratching them until they burst and my scalp bleeds and then gets all scabby. I've had a bit on my elbows occasionally too but my scalp is the main location.

I have heard that DH can flare once you start a gluten-free diet...it did for me reaaaaaly bad. My breakouts worsened before they got better, I eventually went on dapsone to clear things up (note; NASTY drug). Make sure you're watching your iodine intake and stay away from NSAIDs for awhile. Don't eat out AT ALL for awhile. Don't just read labels, check web sites of everything you eat. No TV dinners, packaged foods, or take out for awhile. Check your medications, in the US they don't have to label them with allergens, so you may be ingesting some there. DH is nasty and can take time to go away. Good luck!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - sc'Que? commented on Scott Adams's article in Product Labeling Regulations
      1

      Global Experts Recommend Gluten Reference Dose: What It Means for Celiac Safety (+Video)

    2. - xxnonamexx posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      What's your daily meals? Protein bars?

    3. - trents replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    4. - Seabeemee replied to Seabeemee's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      3

      Labs ? Awaiting in person follow up with my GI

    5. - xxnonamexx replied to xxnonamexx's topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      45

      My journey is it gluten or fiber?

  • Celiac.com Sponsor (A19):
  • Member Statistics

    • Total Members
      133,170
    • Most Online (within 30 mins)
      7,748

    Charlotta Herte
    Newest Member
    Charlotta Herte
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):
  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):
  • Who's Online (See full list)

    • There are no registered users currently online
  • Upcoming Events

  • Posts

    • xxnonamexx
      What are your daily meals? Guilty pleasure snacks? Protein bars? I feel when looking for gluten free foods they are filled with sugar cholesterol. Looking for healthy gluten-free protein bars. Something to fill since sometimes I feel like not to eat anything. Especially if on vacation and unsure of cross contamination I figure go with a salad and protein bar to fill and play it safe.
    • trents
      Unfortunately, there is presently no test for NCGS. Celiac disease must first be ruled out. NCGS is thought to be much more common than celiac disease. We know that celiac disease is an autoimmune disorder but the mechanism of NCGS is less clear. Both call for an elimination of gluten from the diet.
    • Seabeemee
      Thanks for your reply Trents…most appreciated.  I am unfamiliar with celiac labs terminology so I wanted to know if the presence of HLA variants (DA:101, DA:105, DQB1:0301 and DQB1:0501) that the labs detected had any merit in predisposing one to be more sensitive to gluten/carbs than the general population?  Also,  I found what you said about NCGS very interesting and I appreciate you mentioning that.  I’ve worked hard to research and advocate for myself with my Hematologist and now with a new GI, since my bowel surgery and to maintain my Vitamin B12 health concurrent with keeping my levels of Iron in the optimal range. I’ve been tested for SIBO (do not have it), biopsy showed negative for HPylori, and have had Fecal studies done (nothing showed up) and I understand how a loss of a large amount of bowel could be highly impacting re: SIBO, malabsorption and motility issues. So I’ve managed pretty well diet and elimination-wise until just recently. That said, this new problem with extreme bloating, distention and upper girth, NAFLD just occured over the last 4 months so it is new for me and I thought celiac might be a possible issue. I’ll probably just continue on in this less gluten/carbs seem to be better for me and see how reintroducing certain foods go.  Thanks again.    
    • xxnonamexx
      Thanks bumped it up and now take all 3 vitamins 2 capsules each with the super b complex at breakfast. I will give it some time to see if I notice a difference. I am going to track my eating daily diary on a myfitness pal app to see if the "claimed" gluten free foods bother me or not.
    • JoJo0611
      Please can anyone help. I was diagnosed on 23rd December and I am trying my best to get my head around all the things to look out for. I have read that yeast extract is not to be eaten by coeliacs. Why? And is this all yeast extract. Or is this information wrong. Thanks. 
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.