Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

At Summer Camp And Just Need To Vent


polarbearscooby

Recommended Posts

polarbearscooby Explorer

So I'm at Summer Bible camp with my little sister right? (She has medical needs and needs a family member with her to take care of them) And I had to pack my own food. I'm ok with that. I don't wanna eat anything cooked in a kitchen full of wheat by teens. But I hate that I have to take away my sisters time playing to rush back to my room (Not staying in the dorms) and cook some food and wolf it down (burning my tongue in the process) and hurry back to the lessons/games/w.e with everyone else.

I hate this.

I hate being gluten-free in the moment....

That is all


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



MissyJoy Rookie

I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

kareng Grand Master

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

polarbearscooby Explorer

I am glad you vented before you exploded - and I really hope it made you feel a bit better. Your sister is so blessed to have you there to take care of her and protect her. Don't let your sacrifices steal your joy! What you are doing there is so awesome, but you should slow down and take care of yourself too. You'll both be better off!

Thanks :) I really did just need to vent before I exploded... It sucks that she's not getting the 'dorm experience' but at least she's here. Right now I'm gonna rush and eat lunch....

AHHH

Yeah, this diet can be a big pain in the a$$. I hope your sis is having fun. Try to have some fun, too.

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

ravenwoodglass Mentor

Yes, yes it can. But CC and the questions are the worse

I think some of the adults are starting to think I have an eating disorder because they never see me eat.

Thank God this only goes till Wed.

It is great that you are there for your little sister. I know it is difficult for you but the fact that your are taking her needs before your own says a great deal about your character. You are to be commended, give yourself a pat on the back.

As to the questions, yea they are likely a bit annoying but if you answer them simply, "I have celiac and can't risk being sick while I am here" and people ask more detailed questions it may be because they suspect they may have it or a family member or friend does. You don't need to give them a course in 'Celiac 101' just give them the name of this website and tell them they can come here for more info because right now you want and need to be with your sister.

polarbearscooby Explorer

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

ravenwoodglass Mentor

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

As for my little sister, she's doing great, things are a little awkward for her but she gets why I have to eat different food (for the most part anyway) so that's good. She's worn out tho, (and I am too)

Ravenwoodglass: Thanks :) I don't mind the questions so much as the "eating disorder" look....where people try to get you to eat foods and don't believe you are eating.

I am so glad you are there for this other little girl. You will surely be a big help for her, she must feel so sad and isolated.

Funny the way things work out sometimes.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



kareng Grand Master

Well I am SHOCKED! There are over a 100 kids at this camp, and a girl in MY family group has CELIAC! I knew there was a reason I was supposed to be here THIS week, and I've been praying over it, I guess this was it...She's going through a really tough transition period and needs a friend who understands. Praise God. She's kinda feeling left out with everyone around her eating wheat so I think I'll talk to the Dean about letting her eat lunch with me or something...I've been just eating on the run, but I'm willing to sit at the table in the foyer and eat with her....

That's great news! Good for both of you to know there is someone else there with the same issues.

lucia Enthusiast

Oh, that's such a great story! She'll probably remember you her whole life, and your presence will make having this disease a lot more comfortable.

As a kid, my ex-boyfriend used to go to "diabetes camp" (actually Camp Joslin after the Boston diabetes center), where all the kids were diabetic. I think it is important for kids to meet others who have the same issues they do.

I googled "camp celiac" out of curiosity, and it turns out there are such things for celiac kids too!

Open Original Shared Link

TaniaR Newbie

I completely agree being gluten-free is the biggest pain in the ass, esp. when you just want to eat in a hurry and that is just never an option. Im sorry your having a rough time :(

polarbearscooby Explorer

Yeah she's having a really tough time and feeling very alone right now

And the bread everyone made today didn't help

If I had known they were gonna do that I would have brought stuff to make my own...

I didn't even go in the room it was horrible

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Wheatwacked replied to numike's topic in Food Intolerance & Leaky Gut
      4

      is my cleiac disease gone?

    2. - Peggy M commented on Scott Adams's article in Gluten-Free Foods & Beverages
      2

      Are Potato Chips Gluten Free? (+Video)

    3. - trents replied to numike's topic in Food Intolerance & Leaky Gut
      4

      is my cleiac disease gone?

    4. - numike replied to numike's topic in Food Intolerance & Leaky Gut
      4

      is my cleiac disease gone?

    5. - trents replied to numike's topic in Food Intolerance & Leaky Gut
      4

      is my cleiac disease gone?


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,279
    • Most Online (within 30 mins)
      7,748

    Celiac and Salty
    Newest Member
    Celiac and Salty
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • Wheatwacked
      Your high lactulose test, indicating out of control Small Itenstinal Bacterial O,vergrowth is one symptom.  You likely have low vitamin D, another symptom.  Unless you get lots of sun.   Celiac Disease is a disease of malabsorption, often leading to subclinical vitamin deficiencies.  A lot of people have these symptoms just before an acute phase of Celiac Disease.  Each of the symptoms can have multiple causes that are not celiac disease,  but when you start having multiple symptoms,  and each symptom is treated as a separate disease,  you have to think, maybe these are all one cause. celiac disease. There is a misconception that Celiac Disease is  a gastrointestinal disease and symptoms are only gastro related.  Wrong.  It is an autoimmune disease and has many symptoms that usually are disregarded.  I made that mistake until 63 y.o.  It can cause a dermatitis herpetiformis rash,  white spots on the brain.  It caused my alcoholism, arthritis, congested sineses, protein spots on my contacts lenses, swollen prostate, symptoms that are "part of aging". You may be tolerating gluten, the damage will happen. Of curiosity though, your age, sex, are you outside a lot without sunscreen?  
    • trents
      It would be interesting to see if you were tested again for blood antibodies after abandoning the gluten free diet for several weeks to a few months what the results would be. Don't misunderstand me. I'm not necessarily suggesting you do this but it is an option to think about. I guess I'm saying there is a question in my mind as to whether you actually ever had celiac disease. As I said above, the blood antibody testing can yield false positives. And it is also true that celiac-like symptoms can be produced by other medical conditions.
    • numike
      Thank you for the reply In the early 2000's I did not have the endoscopy nor the biopsy I do not have those initial records I have only consulted a GI drs in the USA 
    • trents
      Welcome to the forum, @numike! We sometimes get reports like yours from community members who believe their celiac disease has "gone away." We think there can sometimes be cases of remission but not long term healing and that continued consumption of gluten will eventually result in a relapse. This is the state of our knowledge at this point but there is still a lot we don't know and celiac disease continues to surprise us with new findings on a frequent basis. So, we would not advise you to abandon a strict gluten-free diet. Perhaps you can draw consolation from the fact that at the present time you seem to be able to consume gluten without consequences when in situations where you do not have the option to eat gluten-free. But I would advise you to not generalize your recent experience such that you throw caution to the wind. But I want to go back to what you said about being diagnosed by blood test in the early 2000's. Did you not also have that confirmed with an endoscopy and biopsy of the small bowel lining? Normally, a celiac disease diagnosis is not concluded based on a blood test alone because there can be false positives. What kind of doctor did this testing? Was it done in the U.S. or overseas? In the last few years, it has become common in the U.K. to grant a celiac diagnosis from blood testing alone if the antibody test scores are 10x normal or greater. But that practice has not caught on in the U.S. yet and was not in place internationally in the early 2000's. Do you have a record of the tests that were done, the scores and also the reference ranges for negative vs. positive for the tests?
    • numike
      Check out this celiac story  I was diagnosed early 2000s with the blood test  since then I have for the most part maintained a gluten-free diet  Recently (August 2025) I drove from Southern Illinois to Lake Erie Ohio On the drive back I was extremely hungry and I had a coupon at a hamburger chain and I stopped and forgot to request gluten-free bun etc and quickly consumed two hamburgers. I promptly ate both of them and had absolutely no problem since then I've been eating plenty of gluten  Is my celiac gone?  Insert: No, celiac disease cannot just end because there is no cure for it; however, a strict, lifelong gluten-free diet allows the small intestine to heal and symptoms to go away. To manage the condition effectively, you must strictly avoid all sources of gluten, including wheat, barley, and rye, which are common in the American diet. Sticking to the diet can lead to significant symptom improvement and intestinal healing, but it requires ongoing commitment and monitoring with a healthcare professional  Regarding medical test I had My stools analyzed Giardia Ag Cryptosporidium Ag and they came back negative  I had the lactulose test and it came back high so I'm on two weeks of heavy antibiotics That still has not stopped me from eating gluten. Here's what I think is going on and I hope to have your opinion regarding it  Since I've been gluten-free for so long my intestinal tract has repaired itself consequently anything I eat with gluten now just bounces right off with no damage to my gut  however  when I asked AI what was going on the reply was celiac has not gone away and  if I continue to eat gluten I'm going to have problems   I look forward to your sage advice as to what the heck is going on with me Thank you for reading Mike 09112025
×
×
  • Create New...