Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help Me Please!

shacon-bacon

Recommended Posts

shacon-bacon Apprentice
shacon-bacon
Posted

Ugh I need opinions!!

Apparently I have a b12 deficiency which was discovered after some numbness/tingling in my arms and feet...Ok. So, started taking b12 vitamins and also one a days...yah...have been VERY careful about what I've been eating...for the past 3 weeks I've had weird, celiac sounding but not quite feeling symptoms....literally, EVERY time I eat, no matter WHAT I eat, diarrhea (sorry...true)...once I go, I'm better...but its seriously 3 minutes after I finish a meal, I go, I'm better...besides that, I have had ZERO energy...like literally, sleeping 14 hours on the weekends, spending days in bed, on the couch, zero energy to get up, falling asleep at my desk at work..obviously, no energy b/c I have no food staying in my body!!

But, I haven't eaten ANYTHING bad that I'm aware of and normal celiac symptoms for me go away in about 3 days and this has been 3 weeks...Please...has anyone experienced anything like this or have any ideas? I've been to 4 diff docs (for the b12 symptoms) in the past 2 months and am simply tired of seeing doctors who tell me to take a xanax and move on!!!

I'm sad :( I'm hurting and I need help! Anyone?

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


GFinDC Veteran
GFinDC
Posted

Have you confirmed that the vitamin pills are gluten-free? Sometimes they put wheat grass or oat grass in them. It is probably something you are consuming every day that is affecting you. So check everything and if you can't figure it out, start eliminating things.

There is also the possibility of additional food intolerances developing over time. Like any of the top 8 including soy, dairy, etc.

Skylark Collaborator
Skylark
Posted

Sounds terrible. I bet it's the vitamins.

From oneaday.com:

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

One-A-Day vitamins are junk anyway. They mostly go straight through you because the vitamins are the cheapest sort possible that are poorly bioavailable. May I suggest you buy a good brand like Solgar that will confirm the gluten-free status of their products?

shacon-bacon Apprentice
shacon-bacon
Posted
  • Author

Thanks I have switched to a brand that says specifically "gluten free"...I have also eliminated just about everything from my diet except fresh fruit and veg juice, cottage cheese, and gluten free soups...I feel like I need to heal...I'll give it a few days and slowly add more things back in...

Tina B Apprentice
Tina B
Posted

Sounds terrible. I bet it's the vitamins.

From oneaday.com:

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

One-A-Day vitamins are junk anyway. They mostly go straight through you because the vitamins are the cheapest sort possible that are poorly bioavailable. May I suggest you buy a good brand like Solgar that will confirm the gluten-free status of their products?

NatureMade brand are all gluten free.

Skylark Collaborator
Skylark
Posted

NatureMade brand are all gluten free.

I specifically suggested Solgar because they're Albion Gold Medallion. You know what's in the pill. Not so much with a lot of other brands. Nature Made is a particularly worrisome brand.

Open Original Shared Link

LDJofDenver Apprentice
LDJofDenver
Posted

Thanks I have switched to a brand that says specifically "gluten free"...I have also eliminated just about everything from my diet except fresh fruit and veg juice, cottage cheese, and gluten free soups...I feel like I need to heal...I'll give it a few days and slowly add more things back in...

Have you confirmed the vegetable juice to be gluten free?

And, soups. What soups? Many Progresso soups that were gluten free last year are no longer safe. And the Health Valley Organic soups - if any list "natural flavors" the company says celiacs should avoid all those.

How about spices? Gluten can often show up in spices as well.

Many celiacs have trouble with dairy (cottage cheese!). A lot of folks on this forum, and some nutritionists, advise that you eliminate any dairy for the first year of your gluten free diet. If you've verified everything else, and are sure you're not getting cross contaminated (using old or shared toaster?), perhaps eliminate cottage for a few days and see if that changes anything.

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


Archived

This topic is now archived and is closed to further replies.

Go to topic listing

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate
  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):



    Celiac.com Sponsors (A17-M):



  • Recent Activity

    1. knitty kitty
      - knitty kitty replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1. There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine. In Thiamine deficiency, the body...
    2. Scott Adams
      0

      Inmate with Celiac Disease Wins $630,000 After Jail Denies Gluten-Free Food

    3. trents
      - trents replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an...
    4. pothosqueen
      - pothosqueen replied to pothosqueen's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      15

      Positive biopsy

      26F!
    5. pothosqueen
      - pothosqueen posted a topic in Post Diagnosis, Recovery & Treatment of Celiac Disease
      0

      Celiac for dummies

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
  • Celiac.com Sponsor (A19):

  • Member Statistics

    • Total Members
      133,012
    • Most Online (within 30 mins)
      7,748
    jsslynjnes25
    Newest Member
    jsslynjnes25
    Joined
  • Celiac.com Sponsor (A20):
  • Celiac.com Sponsor (A22):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A21):

  • Upcoming Events

  • Posts

    • knitty kitty
      Positive biopsy

      By knitty kitty · Posted

      @pothosqueen, Welcome to the tribe! You'll want to get checked for nutritional deficiencies and start on supplementation of B vitamins, especially Thiamine Vitamin B 1.   There's some scientific evidence that the fat pad that buffers the aorta which disappears in SMA is caused by deficiency in Thiamine.   In Thiamine deficiency, the body burns its stored fat as a source of fuel.  That fat pad between the aorta and digestive system gets used as fuel, too. Ask for an Erythrocyte Transketolace Activity test to look for thiamine deficiency.  Correction of thiamine deficiency can help restore that fat pad.   Best wishes for your recovery!  
    • trents
      Positive biopsy

      By trents · Posted

      Wow! You're pretty young to have a diagnosis of SMA syndrome. But youth also has its advantages when it comes to healing, without a doubt. You might be surprised to find out how your health improves and how much better you feel once you eliminate gluten from your diet. Celiac disease is an autoimmune disorder that, when gluten is consumed, triggers an attack on the villous lining of the small bowel. This is the section of the intestines where all our nutrition is absorbed. It is made up of billions of tiny finger-like projections that create a tremendous surface area for absorbing nutrients. For the person with celiac disease, unchecked gluten consumption generates inflammation that wears down these fingers and, over time, greatly reduces the nutrient absorbing efficiency of the small bowel lining. This can generate a whole host of other nutrient deficiency related medical problems. We also now know that the autoimmune reaction to gluten is not necessarily limited to the lining of the small bowel such that celiac disease can damage other body systems and organs such as the liver and the joints and cause neurological problems.  It can take around two years for the villous lining to completely heal but most people start feeling better well before then. It's also important to realize that celiac disease can cause intolerance to some other foods whose protein structures are similar to gluten. Chief among them are dairy and oats but also eggs, corn and soy. Just keep that in mind.
    • pothosqueen
      Positive biopsy

      By pothosqueen · Posted

      26F!
    • pothosqueen
      Celiac for dummies

      By pothosqueen · Posted

      I was just diagnosed at 26 after accidental finding. Any simple tips for newbies? Things a non celiac would never think of? I already went through my prescriptions and identified some medications that have gluten. Is there a beginners guide? Celiac for dummies?
    • trents
      Positive biopsy

      By trents · Posted

      Would it be rude to ask your age?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.