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Help Me Please!

shacon-bacon

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shacon-bacon Apprentice
shacon-bacon
Posted

Ugh I need opinions!!

Apparently I have a b12 deficiency which was discovered after some numbness/tingling in my arms and feet...Ok. So, started taking b12 vitamins and also one a days...yah...have been VERY careful about what I've been eating...for the past 3 weeks I've had weird, celiac sounding but not quite feeling symptoms....literally, EVERY time I eat, no matter WHAT I eat, diarrhea (sorry...true)...once I go, I'm better...but its seriously 3 minutes after I finish a meal, I go, I'm better...besides that, I have had ZERO energy...like literally, sleeping 14 hours on the weekends, spending days in bed, on the couch, zero energy to get up, falling asleep at my desk at work..obviously, no energy b/c I have no food staying in my body!!

But, I haven't eaten ANYTHING bad that I'm aware of and normal celiac symptoms for me go away in about 3 days and this has been 3 weeks...Please...has anyone experienced anything like this or have any ideas? I've been to 4 diff docs (for the b12 symptoms) in the past 2 months and am simply tired of seeing doctors who tell me to take a xanax and move on!!!

I'm sad :( I'm hurting and I need help! Anyone?

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GFinDC Veteran
GFinDC
Posted

Have you confirmed that the vitamin pills are gluten-free? Sometimes they put wheat grass or oat grass in them. It is probably something you are consuming every day that is affecting you. So check everything and if you can't figure it out, start eliminating things.

There is also the possibility of additional food intolerances developing over time. Like any of the top 8 including soy, dairy, etc.

Skylark Collaborator
Skylark
Posted

Sounds terrible. I bet it's the vitamins.

From oneaday.com:

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

One-A-Day vitamins are junk anyway. They mostly go straight through you because the vitamins are the cheapest sort possible that are poorly bioavailable. May I suggest you buy a good brand like Solgar that will confirm the gluten-free status of their products?

shacon-bacon Apprentice
shacon-bacon
Posted
  • Author

Thanks I have switched to a brand that says specifically "gluten free"...I have also eliminated just about everything from my diet except fresh fruit and veg juice, cottage cheese, and gluten free soups...I feel like I need to heal...I'll give it a few days and slowly add more things back in...

Tina B Apprentice
Tina B
Posted

Sounds terrible. I bet it's the vitamins.

From oneaday.com:

Q. How much gluten does this contain?

A. We do not add any gluten to our products. However, we cannot guarantee that all raw materials are 100% gluten-free.

One-A-Day vitamins are junk anyway. They mostly go straight through you because the vitamins are the cheapest sort possible that are poorly bioavailable. May I suggest you buy a good brand like Solgar that will confirm the gluten-free status of their products?

NatureMade brand are all gluten free.

Skylark Collaborator
Skylark
Posted

NatureMade brand are all gluten free.

I specifically suggested Solgar because they're Albion Gold Medallion. You know what's in the pill. Not so much with a lot of other brands. Nature Made is a particularly worrisome brand.

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LDJofDenver Apprentice
LDJofDenver
Posted

Thanks I have switched to a brand that says specifically "gluten free"...I have also eliminated just about everything from my diet except fresh fruit and veg juice, cottage cheese, and gluten free soups...I feel like I need to heal...I'll give it a few days and slowly add more things back in...

Have you confirmed the vegetable juice to be gluten free?

And, soups. What soups? Many Progresso soups that were gluten free last year are no longer safe. And the Health Valley Organic soups - if any list "natural flavors" the company says celiacs should avoid all those.

How about spices? Gluten can often show up in spices as well.

Many celiacs have trouble with dairy (cottage cheese!). A lot of folks on this forum, and some nutritionists, advise that you eliminate any dairy for the first year of your gluten free diet. If you've verified everything else, and are sure you're not getting cross contaminated (using old or shared toaster?), perhaps eliminate cottage for a few days and see if that changes anything.

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      Great advise there I agree with the aniexty part, and the aura migraine has I suffer both, I've also read some great books that have helped I'm going too look the one you mentioned up too thankyou for that, I find a camomile tea just a small one and a gentle wind down before bed has helped me too, I suffer from restless leg syndrome and nerve pain hence I don't always sleep well at the best of times , racing mind catches up I have decorated my whole house in one night in my mind before 🤣 diet changes mindset really help , although I have to say it never just disappears, I find once I came to terms with who I am I managed a lot better  , a misconception is for many to change , that means to heal but that's not always the case , understanding and finding your coping mechanisms are vital tools , it's more productive to find that because there is no failure then no pressure to become something else , it's ok to be sad it's ok to not sleep , it's ok to worry , just try to see it has a journey not a task 🤗
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