Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Help! Not Sure What To Do About Diet


yogismith

Recommended Posts

yogismith Rookie

I was diagnosed in Janurary with Celiacs....I am still in the denial/angry stage. I need advise about foods to eat. I have been gaining weight pretty steadly...I am scared that I am going to keep gaining weight. I get bloated really easily. I have heard that when you are first diagnosed with celiacs that you should not eat lactose for a couple months to let your instestine heal (this is hard cause I LOVE cheese). I am 21 and living on a college students budget, so I don't like buying gluten-free grains because they can be really pricey for me. everytime i see regular pasta or cake, etc I get huge cravings. I am just so upset with myself for allowing myself to gain so much weight...any suggestions or ideas would be gratefully appreciated.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



lucia Enthusiast

It sounds like you may not have a lot of support with this. These are the kinds of things that you should be able to talk to your doctor about. It would also help to see a good nutritionist/dietician. I know this won't always be possible, since so many health professionals remain ignorant about celiac, but it may be worth looking into finding someone who you can trust. If it's possible in your area, I'd also suggest looking for a celiac support group to meet other people who are dealing with these issues too.

When I was first diagnosed, I thought that it'd be an easy process to recover - all I had to do was give up gluten. I had no idea how difficult it would be 1) abstaining from gluten in a gluten-filled world, and 2) dealing with secondary health issues that result from eating gluten for so many years. It's not easy! But when you commit to your recovery, you will feel better. That includes giving up lactose for awhile. It won't be forever, but that you are experiencing bloating means that your body can't process it right now (celiacs lose the enzyme for digesting lactose, but with recovery they get it back).

Do you know why you're gaining weight? It could be that your body is finally able to absorb the nutrients from food that it needs to be healthy. While it may be surprising and even shocking to see yourself gain a lot of weight suddenly, it may be what your body needs. Our Hollywood-obsessed culture doesn't exactly encourage a healthy weight especially in women so it's hard to know what's normal. On the other hand, newly-diagnosed celiacs will sometimes gain weight unnecessarily, because they are start eating too many gluten-free, replacement items which have a lot more calories than regular foods. Celiacs also sometimes have issues with their thyroid which cause them to gain weight quickly.

There are a lot of options for your new diet besides gluten-replacement foods. You need to make sure your body is getting the carbohydrates it needs, but there are a lot of options for carbs. Foods that satisfy these needs include: potatos, corn, and grains such as rice, quinoa, millet, and amaranth. Americans tend to choose wheat-based items for their carbs, which means you'll likely need to get used to eating different foods than before. Also, be careful you're not overloading on carbs, which is also common in the American diet. You need carbs, but not usually in the proportions of a typical American diet. Make sure you are getting plenty of fresh veggies and fruits.

If you are eating well-balanced meals without too many gluten-replacement items and you are not underweight but you are still gaining weight rapidly, then you'll want to see a doctor to get tested for thyroid issues.

Best of luck to you. I've found a lot of info and support on this board, and I hope you can too.

kayo Explorer

Look for an Asian market near you. They often have Ramen type noodle soup packs made with rice noodles. They also have lots of rice noodles and rice crackers which are often much cheaper than at a regular super market.

scarlett77 Apprentice

I agree with PP...you can get Ramen type soups with rice noodles that are gluten free and very inexpensive. Rice is cheap and easy to make into a meal. I personally love mexican rice and it is cheap to make. Pair it with some black beans and some corn tortillas and you've got a very filling meal. gluten-free pasta can be a bit pricey, but if you are feeding just yourself 1 bag of Tinkyada should last you AT LEAST 2-3 meals (so that only equates to about less than $2 per meal). Toss pasta with garlic, olive oil, and some parmasean cheese. There are commercial sauces that are gluten free or you can make your own from some ground beef, can of tomato sauce, garlic, onion, and italian seasoning. The beauty of making your own sauce is that it freezes really well too. Betty Crocker makes gluten-free cake mixes (sometimes they go on sale!!)so there's no need to give up cake. It is very easy to make chocolate chip cookies too with Pamela's pancake mix. I know Pamela's is a bit pricey, but for a large bag at $17 you can make a lot with it (cookies, biscuits, pancakes, bread, pizza crust, muffins,etc...heck i even use it to bread chicken). So the per meal cost is not too bad. I've heard Domato is a bit cheaper so you might look at that.

I know what you mean about your feelings about the food. I went gluten-free because my son has Celiac and it was tough and I did go through a period where all I wanted was cookies, fried foods, and candy. I even went as far as to figure out how to make all these unhealthy foods gluten-free. But 2 things helped me get past it: 1) the realization that I CAN still have and make a lot of things that I love to eat...the gluten-free versions are sometimes just as good if not better. And 2) reading blogs of other Celiacs and celiac moms (my favorite is Open Original Shared Link). That blog helped me to really SEE food and really appreciate all the things out there that are yummy and naturally gluten free. I don't think I've truly appreciated food until going gluten-free.

I wish you the best and hope you feel better (and eat your beloved cheese) soon!

Skylark Collaborator

Go for lots of fruits and veggies, rice, and beans. They're cheap and don't have so many calories. Peanut butter is filling too. I like it with celery, rice cakes, or on apple slices. I also used to eat a lot of eggs in college because they were cheap and easy to cook. Also, you only need to avoid dairy or lactose if they bother you. If cheese doesn't give you any trouble it's OK to eat (though it has a lot of calories). If you can find the Betty Crocker Gluten Free mixes, they aren't too expensive. Might help with the cravings but not the weight.

T.H. Community Regular

This site might be of some use in finding foods to eat that work for you: Open Original Shared Link

It's a gluten free blog by another college student who has to live on a budget. He has recipes and food ideas that would hopefully be something you could afford/have time to make. :)

There's another site that might be of some use, too: Open Original Shared Link

Lots of recipes for the shoestring budget. She's not gluten free, but she has recipes from usually simple ingredients, so many of them ARE gluten free, from things in season, and affordable!

Tina B Apprentice

Look for an Asian market near you. They often have Ramen type noodle soup packs made with rice noodles. They also have lots of rice noodles and rice crackers which are often much cheaper than at a regular super market.

You don't really need to go to an Asian market if it is hard to find. Most major grocery chains have these things in the international food aisle. I have bought rice crackers and rice noodles there. Also, don't buy corn and rice flour in the health food stores. It is much more expensive there. I keep a bag of Goya fine white corn flour or rice flour around for coating meats for stews etc. 1/3 the cost of buying it somewhere like Wholefoods.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - trents replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    2. - Theresa2407 replied to Theresa2407's topic in Gluten-Free Foods, Products, Shopping & Medications
      2

      Probiotics

    3. - KathyR37 replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    4. - Scott Adams replied to KathyR37's topic in Coping with Celiac Disease
      3

      New here

    5. - KathyR37 posted a topic in Coping with Celiac Disease
      3

      New here


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      131,814
    • Most Online (within 30 mins)
      7,748

    ColbyBowlin
    Newest Member
    ColbyBowlin
    Joined

  • Celiac.com Sponsor (A20):


  • Forum Statistics

    • Total Topics
      121.4k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):





  • Celiac.com Sponsor (A21):



  • Upcoming Events

  • Posts

    • trents
      @KathyR37, I would suspect that in addition to gluten intolerance, you have other food intolerances/sensitivities. This is very common in the celiac community. The most common offenders are oats, dairy, soy, corn and eggs with dairy and oats being the big two. Have you considered this? Have you tried keeping a food diary to detect patterns?
    • Theresa2407
      thank you for your advice.   I have always taken them and I use Stonehedge because they are in a glass bottle, but don't have to be refrigerated.  I also like they are 3rd party tested and state gluten free. But you never know if something better has come alone over the years.
    • KathyR37
      Thank you for your response. I have already learned about the info you sent but i appreciate your effort. I am the only one in my family cursed by this disease. I have to cook for them too. I make sure that my utensils are free of gluten and clean after using them for other food. I use non-porous pots and pans and  gloves when cooking for them. One huge problem I have is a gag reflex out of this world and if something doesn't taste good it is not going down. Most commercially made breads and such taste like old cardboard.Pastas are about the same. I did find one flour that I like and use it regularly, but it is so expensive! All gluten free food is way more expensive. I only eat twice a day because I cannot afford to buy all that. We live on a very low income so my food purchases are quite limited.
    • Scott Adams
      What you've described—the severe weight loss, the cycle of medications making things worse, and the profound fear of eating before leaving the house—is a heavy burden to carry for 15 years. It is absolutely not your fault. While everyone's journey with celiac is different, the struggles with the learning curve, social isolation, and dietary grief are feelings many in the community know all too well. Your question about whether you should just eat what you want and manage the symptoms is a heartbreaking one, born from years of frustration. It's crucial to know that the diarrhea is a sign of ongoing damage to your small intestine from gluten, and simply managing the symptom with Imodium doesn't stop that internal harm or the risk of other complications. The fact that you are still getting sick within an hour of eating, even while trying to be gluten-free, is a huge red flag that something isn't right. This could be due to cross-contamination in your kitchen (e.g., using a shared toaster, colander, or condiment jars), hidden gluten in foods, or the possibility of another concurrent condition like refractory celiac disease. Don't give up!  This article has some detailed information on how to be 100% gluten-free, so it may be helpful (be sure to also read the comments section.):    
    • KathyR37
      I am new here but celiac disease is not new to me. I was diagnosed with it at age 60. At the time I weighed a whopping 89 pounds. I was so ignorant to celiac so I buried myself in learning all about it and looking for food I could eat. I lost so much weight and stayed sick all the time. So to combat the sickness I was give all sorts of meds for loose bowels and vomiting. All that just made me sicker. Eventually I chucked it all and went back to eating like I had all my life. Now I am from the south and biscuits and gravy are a big part of our food, as are breaded foods, pasta, and sandwich bread. Through the years I would try to do the gluten free thing again and am doing it now. It has not helped any. Within and hour of eating I have to run to the bathroom. I am now 75 and am wondering if I should just forget it and eat what I like, take Immodium and live the best I can. I cannot eat before going anywhere for fear of embarrassing myself. Family and church dinners are out of the question unless I eat and run straight home. I am so frustrated I just want to sit down and cry or throw something. Does everyone go through all this?
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.