Jump to content
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):



    Celiac.com Sponsor (A1-M):


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Ibs-D


willabec

Recommended Posts

willabec Contributor

does anyone who has celiac also have IBS-D???just curious...thanks!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Skylark Collaborator

Celiac is a very common underlying cause of IBS-D. Mine went away when I went off gluten (along with a ton of other problems).

jackay Enthusiast

Gluten intolerant here but never confirmed Celiac as not willing to go back to eating gluten. The D was what finally tipped off gluten intolerance after 11 years of fatigue, over four years of being so sick both physically and mentally that I wanted to die. It was less than I year that I had the horrible D but luckily I did or I would either be even sicker than I was or I would have ended my life.

For me the D went away after giving up gluten. Also, my extreme anxiety went away in just a few days.

ksymonds84 Enthusiast

I used to think that I still had IBS riding along with the celiac but then found out that I also have a problem with fructose. I can only eat so much fructose in one sitting or I greatly pay for it with the big D. Fruit, applesauce, and anything with High fructose corn syrup and corn syrup solids will get me if I have too much. everyone is different on what they can handle. If you google Sue Shepard fructose malabsorption you will get many hits to learn about it.

willabec Contributor

I used to think that I still had IBS riding along with the celiac but then found out that I also have a problem with fructose. I can only eat so much fructose in one sitting or I greatly pay for it with the big D. Fruit, applesauce, and anything with High fructose corn syrup and corn syrup solids will get me if I have too much. everyone is different on what they can handle. If you google Sue Shepard fructose malabsorption you will get many hits to learn about it.

how did you find out you were sensative to too much fructose? i have celiac but now have loose stools/D (sometimes) and it has been going on like this for about a year or so.....maybe it is something else other than IBS-D??

ksymonds84 Enthusiast

how did you find out you were sensative to too much fructose? i have celiac but now have loose stools/D (sometimes) and it has been going on like this for about a year or so.....maybe it is something else other than IBS-D??

For me, keeping a food diary along with writing down symptoms for the day, really helped me figure what else was going on. I was able to see that the mornings I was eating a gluten free waffle with peanut butter and blueberry preserves was giving me a D day. Also at Thanksgiving I had a severe reaction. Everything was gluten free but I had sweet potato casserole, small piece of pumpkin pie and a small piece of pecan pie plus a gluten free chocolate chip cookie. Around 3 in the morning I had severe D, hot and cold flashes, my ears were ringing and was dizzy. I have medical people in the family and they suggested that I had a high fructose intake (especially since I put corn syrup in the pecan and sweet potato casserole). So I did a ton of research and now watch my fructose and know what I can have and not have based on my food journal. Hope you find your answer I know how tough it can be trying to be your own detective.

willabec Contributor

For me, keeping a food diary along with writing down symptoms for the day, really helped me figure what else was going on. I was able to see that the mornings I was eating a gluten free waffle with peanut butter and blueberry preserves was giving me a D day. Also at Thanksgiving I had a severe reaction. Everything was gluten free but I had sweet potato casserole, small piece of pumpkin pie and a small piece of pecan pie plus a gluten free chocolate chip cookie. Around 3 in the morning I had severe D, hot and cold flashes, my ears were ringing and was dizzy. I have medical people in the family and they suggested that I had a high fructose intake (especially since I put corn syrup in the pecan and sweet potato casserole). So I did a ton of research and now watch my fructose and know what I can have and not have based on my food journal. Hope you find your answer I know how tough it can be trying to be your own detective.

yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):



Celiac.com Sponsor (A8-M):



Katie B Apprentice

yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!

I've just started the low FODMAP diet which eliminates or limits foods that ferment in the stomach due to an excess in bacteria and the gut's inability to absorb certain foods. It's being pioneered in Australia and Monash University is studying various foods. My Gastroenterologist recommended it and it's proven to help so far. You can have certain amounts of starchs, veggies, fruits and dairy at one time - this way the gut has time to process everything and doesn't leave a lot for the bacteria to snack on. The diet eliminates certain types of fruits which have higher fructose than glucose such as watermelon and juice if you have fructose intolerance. I think I'm intolerant to some fruits and am starting from square one. I'm not eating any fruits at the moment but am looking forward to reintroducing them. I can forward you a document from Sue Shepherd (Shepherd Works) that provides up to date info. I'm working with a dietician at Diet Solutions (they also work with Monash) and they conference via Skype. Let me know if you're interested and I can email it!

K

ksymonds84 Enthusiast

yes, it is...i am keeping a food diary but i cannot figure out what, if anything is affecting me...my dr. says not to bother, not sure why, but it makes me feel better doing it for some reason. i also would have no idea how long it would take for something to affect me once i ate it?? 1 day, 2 days, etc.??? that's what is bothersome!

It can take up to 72 hours for a food reaction to show. I know that is hard which is why with elimination diets you only eat say rice and chicken for 72 hours then add one more thing and wait 72 hours. With my journal I always wrote say a "N" for a normal day "D" for diarrhea day "L" loose and so on so I would look back over 3 days and try to figure it out. Not saying its easy but I did start to figure out a pattern with the heavier fructose days also whenever I ate salads. My body doesn't handle raw vegetables very well so I eat salads very sparingly and chew them very well.

willabec Contributor

I've just started the low FODMAP diet which eliminates or limits foods that ferment in the stomach due to an excess in bacteria and the gut's inability to absorb certain foods. It's being pioneered in Australia and Monash University is studying various foods. My Gastroenterologist recommended it and it's proven to help so far. You can have certain amounts of starchs, veggies, fruits and dairy at one time - this way the gut has time to process everything and doesn't leave a lot for the bacteria to snack on. The diet eliminates certain types of fruits which have higher fructose than glucose such as watermelon and juice if you have fructose intolerance. I think I'm intolerant to some fruits and am starting from square one. I'm not eating any fruits at the moment but am looking forward to reintroducing them. I can forward you a document from Sue Shepherd (Shepherd Works) that provides up to date info. I'm working with a dietician at Diet Solutions (they also work with Monash) and they conference via Skype. Let me know if you're interested and I can email it!

K

Thanks.....if you could email it to me that would be great! not sure how to go about giving you my email address though!

Archived

This topic is now archived and is closed to further replies.

  • Get Celiac.com Updates:
    Support Celiac.com:
    Join eNewsletter
    Donate

  • Celiac.com Sponsor (A17):
    Celiac.com Sponsor (A17):





    Celiac.com Sponsors (A17-M):




  • Recent Activity

    1. - Scott Adams commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    2. - chrisinpa commented on Scott Adams's article in Additional Concerns
      4

      Going Low-Gluten May Harm Good Gut Bacteria, Researchers Warn

    3. - Flash1970 replied to Ginger38's topic in Related Issues & Disorders
      7

      Shingles - Could It Be Related to Gluten/ Celiac

    4. - trents replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy

    5. - Roses8721 replied to Roses8721's topic in Celiac Disease Pre-Diagnosis, Testing & Symptoms
      10

      GI DX celiac despite neg serology and no biopsy


  • Celiac.com Sponsor (A19):



  • Member Statistics

    • Total Members
      132,501
    • Most Online (within 30 mins)
      7,748

    MarisaMR
    Newest Member
    MarisaMR
    Joined

  • Celiac.com Sponsor (A20):



  • Celiac.com Sponsor (A22):




  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m

  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Flash1970
      You might try Heallix.  It's a silver solution with fulvic acid. I just put the solution on with a cotton ball.  It seemed to stop the nerve pain. Again,  not in your eyes or ears.   Go to heallix.com to read more about it and decide for yourself Also,  I do think nerve and celiac combined have a lot to do with your susceptibility to shingles breaking out. 
    • trents
      Celiac disease requires both genetic potential and a triggering stress event to activate the genes. Otherwise it remains dormant and only a potential problem. So having the genetic potential is not deterministic for celiac disease. Many more people have the genes than actually develop the disease. But if you don't have the genes, the symptoms are likely being caused by something else.
    • Roses8721
      Yes, i pulled raw ancetry data and saw i have 2/3 markers for DQ2.2 but have heard from friends in genetics that this raw data can be wildly innacurate
    • Ginger38
      Thanks, I’m still dealing with the pain and tingling and itching and feeling like bugs or something crawling around on my face and scalp. It’s been a miserable experience. I saw my eye doc last week, the eye itself was okay, so they didn’t do anything. I did take a 7 day course of an antiviral. I’m hoping for a turnaround soon! My life is full of stress but I have been on / off the gluten free diet for the last year , after being talked into going back on gluten to have a biopsy, that looked okay. But I do have positive antibody levels that have been responsive  to a gluten free diet. I can’t help but wonder if the last year has caused all this. 
    • Scott Adams
      I don't think any apps are up to date, which is exactly why this happened to you. Most of the data in such apps is years old, and it doesn't get updated in real time. Ultimately there is no substitution for learning to read labels. The following two lists are very helpful for anyone who is gluten sensitive and needs to avoid gluten when shopping. It's very important to learn to read labels and understand sources of hidden gluten, and to know some general information about product labelling--for example in the USA if wheat is a possible allergen it must be declared on a product's ingredient label like this: Allergens: Wheat.      
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.