Jump to content
This site uses cookies. Continued use is acceptance of our Terms of Use and Privacy Policy. More Info... ×
  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.




  • Celiac.com Sponsor (A1):
    GliadinX



    Celiac.com Sponsor (A1-M):
    GliadinX


  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

Rant


conniebky

Recommended Posts

conniebky Collaborator

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Authentic Foods
Authentic Foods



Celiac.com Sponsor (A8-M):
NutHouse! Granola Co.


kareng Grand Master

Poor baby! Most of the Advil/tylenol type stuff is gluten-free that I have found. Go take a shower & wash your head! (Say that in your Grandmothers voice!) It will improve your mood.

Can you eat little tiny bits that you don't need to chew yet? Hamburger chopped up really dinky in a little beef broth would probably hit the spot. Maybe a bakes potato with lots of butter or mixed with the mixer and milk & butter until creamy? An over ripe fresh peach mushed up? Making meself hungy. :P

ravenwoodglass Mentor

(((((((((((((((((Hugs))))))))))))))))))))

The advice to take a nice warm shower is a good one. If you have any lavender scented soap, or any other favorite scent, it might make you feel better.

Do you have any cream of buckwheat on hand? That's a favorite comfort food of mine. Perhaps some scrambled eggs or some rice noodles broken up in small swallow whole bits and some nice chicken broth might be doable.

I hope your feeling better soon.

Gemini Experienced

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Connie dear.....I had only one molar pulled in January and thought that a pain in the butt as far as all the things you ranted about so I cannot imagine what pulling 6 teeth must be like. It was 6, wasn't it? :o My implant will be started in October so there's more fun coming for me down the road.

Take a shower and wash your hair so you'll feel cleaner and calmer. Even if you don't need the pain meds, maybe take one anyway for the hell of it as you shouldn't drink alcohol right now. ;) That always works for me! Eat your favorite mushy foods so you won't be hungry, which always makes people grumpy. Not much else that can be done...it's one of those pain in the arse times when you just have to get through it and try not to lose your mind. I am thinking of you and sending healing thoughts your way. Dental work is just no fun as it impacts what you can eat and that's huge. Feel free to rant away!

conniebky Collaborator

And tell me WHY I'm craving 3 Musketeers and Milky Ways and PB cups????

I have NEVER been a candy eater.

The good news is, I get off work in 16 minutes.

lucia Enthusiast

Oh, Connie - this too shall pass. I hope you can go home, maybe have a nice bath, and surround yourself with good things. Maybe watch something that makes you laugh?

kareng Grand Master

And tell me WHY I'm craving 3 Musketeers and Milky Ways and PB cups????

I have NEVER been a candy eater.

The good news is, I get off work in 16 minutes.

You went to work like that? :P Supposedly, if we crave candy, we are actually craving fruit. OK, maybe...


Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):
Little Northern Bakehouse
Little Northern Bakehouse



Celiac.com Sponsor (A8-M):
GliadinX


curiousgirl Contributor

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Conniebky, I know EXACTLY how you feel! And, I appreciate the format in which you shared your frustration. To the point! No beating around the bush! Not writing, rewriting, editing and reediting til 3 hours pass and that frustrating energy is still swarming around because it hasn't been "released." Can you use Tom's toothpaste?

curiousgirl Contributor

I don't feel good

I can't keep my eyes open

I can't take my pain pills because I don't need that much anymore

I got Meijer's brand Advil.

I took two.

I got a reaction.

I wrote to them.

They wrote me back with a gluten free link that doesn't work

They told me they'll forward this on to someone else

I can't brush my teeth good and my mouth is disgusting yucky

He doesn't want me using mouthwash yet, just salt water

I feel filthy from head to toe

I didn't wash my hair cuz I didn't feel like it

I want some real food but can't have that yet

I got some broc cheese soup for lunch and it was good but I need a gallon of it

ok i'm done ranting now.

Conniebky, I know EXACTLY how you feel! And, I appreciate the format in which you shared your frustration. To the point! No beating around the bush! Not writing, rewriting, editing and reediting til 3 hours pass and that frustrating energy is still swarming around because it hasn't been "released." Can you use Tom's toothpaste?

Archived

This topic is now archived and is closed to further replies.


  • Celiac.com Sponsor (A19):
    Food for Life



  • Member Statistics

    • Total Members
      130,031
    • Most Online (within 30 mins)
      7,748

    joanna19
    Newest Member
    joanna19
    Joined

  • Celiac.com Sponsor (A20):
    Holidaily Brewing Co.


  • Forum Statistics

    • Total Topics
      121.3k
    • Total Posts
      1m

  • Celiac.com Sponsor (A22):
    GliadinX




  • Celiac.com Sponsor (A21):
    Holidaily Brewing Co.



  • Upcoming Events

  • Posts

    • trents
      Here is an article that gives an overview of all tests that can be used to detect celiac disease:    As you can see, the different tests vary in their degree of specificity and sensitivity. So, it is to be expected that if someone has celiac disease, not all the tests will be positive. Also notice that the tests break down into two large groups, IGA-based tests and IGG-based tests. There is also the EMA (Endomysial Antibodies) which is an older test and has largely been supplanted by he tTG-IGA which is less expensive to administer. So, when you report that the TTG score from your daughter's bloodwork is 22ku/l, we assume you are referring to the tTG-IGA test, which is the most popular test ordered by physicians when checking for celiac disease and considered to be the centerpiece test. However, you do not mention if there was a "total IGA" test run. Whenever the tTG-IGA is ordered, a total IGA should also be ordered to check for IGA deficiency. IGA deficiency will result in other IGA test scores, such as the tTG-IGA being artificially low, even falsely negative. This is especially true for young children. This is discussed in the article I linked. If your physician did not order total IGA test, this should have been done. Do you have a recourse for requesting such? I should also mention that you must not withdraw gluten from your toddler's diet until all testing for celiac disease is completed. Doing so would invalidate the testing.
    • Scott Adams
      I’m so sorry to hear about your toddler’s recent Type 1 diabetes diagnosis, and I understand how overwhelming it must feel to now be navigating possible celiac disease as well. The slightly elevated TTG antibodies (22 ku/L) with normal endomysial antibodies could indicate a few things—sometimes, mild elevations can occur due to factors other than celiac disease, such as recent infections or even Type 1 diabetes itself. However, the symptoms you’ve noticed (changes in stools, itching, and hair thinning) could potentially align with celiac disease, so it’s understandable why you’re concerned. Since the consultant wants to retest in 3–6 months, it may be because they’re assessing whether the antibody levels persist or increase, which would strengthen the case for further investigation (like a biopsy). In the meantime, if your daughter’s symptoms worsen or you feel uneasy waiting, it’s completely reasonable to ask for an earlier review or a referral to a pediatric gastroenterologist for further advice. Keeping a symptom diary until the next test might also help track any patterns. You’re doing a great job advocating for your little one—trust your instincts and don’t hesitate to push for more clarity if needed. Sending you lots of support.
    • mytype1diabetes
      Hi all, Posting from the UK.  My 2 year old was recently diagnosed with Type 1 diabetes. In the UK they routinely screen for coeliac disease. The test showed slightly elevated levels of TTG antibodies. The consultant wants to repeat these antibodies in 3-6 months time to determine clinical significance. In our letter it said "marginally elevated TTG antibodies (22ku/l), normal endomysial antibodies". I'm not exactly sure what this means, especially given one of the tests were within the normal range, and if we should be worried about the numbers. It is difficult to know if she has any "symptoms" but at the time she was diagnosed with Type 1 diabetes I noticed that her stools had changed. They are now probably a Type 6 on the Bristol stool chart. She seems to be quite itchy which is a recent thing and over the past week I have noticed some hair loss/thinning. I feel very worried and I'm not sure I can wait for her to be retested in 3-6 months time.  I'd appreciate any wisdom, advice or information you have. Thanks 🙏🏼
    • slkrav
      I was feeling really sick last week, for several days I kept thinking I was getting cross contamination. Typical symptoms like not sleeping well at night and waking up with widespread inflammation in all of my joints, foggy head and of course bowel issues. I had read the article recently that was talking about body products. I was starting to get depressed. I was showering and decided to read the ingredients in the products I've been using. It turns out that two of the ingredients in my conditioning hair mask contain GLUTEN. I felt really stupid for not checking before and I threw that away and also checked the ingredients of everything else I've been using. I've heard of skin issues from gluten containing body products, but this opens up a whole new way if being proactive. 
    • xxnonamexx
      I haven't taken blood test for deficiencies yet since self diagnosed but I started a Multi vitamin from reading consumerlabs Nature Made Multivitamin For Her 50+ with No Iron, Womens Multivitamin for Daily Nutritional Support, Multivitamin is actually good for men compared to the mens version since im 47 I figured this should be ok. I also just started taking Kirkland Signature Super B-Complex with Electrolytes which consumerlabs which is an independent lab that tests what is actually in it states this is a good balanced B complex vitamin where its not too much of any vitamin for you to take.  I was thinking of taking the Gluten test after the summer  ut I think if I reintroduce gluten for this test I will be so sick and make things worse. I heard there is a blood test coming in a year that they add gluten to the blood to test which would be nice but prob in a year or 2. 
×
×
  • Create New...