Jump to content

  • Welcome to Celiac.com!

    You have found your celiac tribe! Join us and ask questions in our forum, share your story, and connect with others.



  • Celiac.com Sponsor (A1):

    Celiac.com Sponsor (A1-M):

  • Get Celiac.com Updates:
    Support Our Content
    eNewsletter
    Donate

My Toddler Celiac Or Allergy?need Help Please

marie33

Recommended Posts

marie33 Rookie
marie33
Posted

I have 5 children and last child is so different she is always so severel constipated that she bleeds when she has a bowel movement and cries and screams. It so awful :(

She has major mood swings,never happy, very bloated and gassy and won't really eat much of anything...They told me to give her liquid laxatives and I did for a couple days but it was awful. Her mood swings are not just being a toddler there's something more there. So I took her off gluten for two weeks and she for the first time started going to the bathroom properly everyday without any problems and is less moddy and less bloated..... What do you think???? My son also has the same problems as myself and my toddler...Exact same things. We have all went off gluten and feel amazing. My sons tantrums go away. He doesn't sweat at night and he sooooooo much calmer....Does this sound like an allergy or celiac....Any help would be greatly appriciated...

Celiac.com Sponsor (A8):
Celiac.com Sponsor (A8):

Celiac.com Sponsor (A8-M):


mommyto3 Contributor
mommyto3
Posted

My son was just diagnosed as celiac and once we took him off of gluten his mood swings, anger, tantrums, and overall bad behaviour improved IMMENSELY. It's like flicking a switch. If he gets glutened I can tell right away by the way he acts.

My daughter also had really bad pooping problems when she was 3. It lasted for about 6 months and it was the worst 6 months of our life. She didn't bleed but she was SEVERELY constipated, going only every 4 days or so. When she went she would scream like someone was killing her. It made me cry on many occasions. We did the whole route with liquid laxatives, enemas, etc etc but nothing ever got to the root of the problem. What finally took care of things for us was removing dairy from her diet. Right away she was so much better. The only downer is that we then had to deal with the fact that she was terrified to poop. It was a long and awful process but we got through it.

I'm celiac along with my son and I suspect my two other daughters are too so we just went ahead and took everyone off of gluten. I figure having myself and my son diagnosed is enough reason to remove the wheat. I don't want to take chances and end up with them damaged in the long run.

Good luck....it will get better. And trust me, I know the pain you're going through with the constipation. I wouldn't wish it on my worst enemy :(

AllergyQ Newbie
AllergyQ
Posted

Just wondering if either of you had your children blood tested. I found out in June that i have Celiac thru + blood test and then + biospy. My two youngest 7yrs and 2yrs have both had issues with bad constipation. Now my 7yr old has been having alot of

stomach aches and gets nauseated. I took her to a GI Pedi Doctor and they did blood work and her blood was neg.

I took it upon myself to switch her to lactaid milk because it

seems like when ever she eats ice cream she gets a stomache ache. This has seemed to help. The doctor was going to send me a kit in the mail to check her for lactose intolerence but of course nothing has come yet.

I had all three of my children blood tested and all three came back neg.

Im wondering if i should trust the blood test.

T.H. Community Regular
T.H.
Posted

I think it could be celiac, allergy, or sensitivity (which there's no test for other than what you're seeing. and which won't likely be believed unless you have an exceptional doctor).

My moods improved hugely going off gluten, and I have celiac disease. They improved going off of foods I was diagnosed as having an allergy for. And then they improved even more when I dropped a few foods that seemed to give me trouble. Keeping a food journal, I can absolutely track my 'crazy feelings' back to certain foods. I'm lucky enough to have a doctor who's been with me for a while and has seen what's happening and believes me, because all tests say I should not be reacting to some of my foods.

Re: my kids. My kids improved a little off of gluten, but going off of a few other foods took care of the huge mood swings that my son has had since he was a toddler - I totally know what you mean re: that. It's not just 'being a toddler.' For my son, it was like someone broke off his switch where he could figure out 'enough was enough' and he would just lose it over the slightest thing, and it took him forever to get over it. I remember more than once him having a tantrum so severe he'd cry himself into exhaustion and then wake up and KEEP GOING!

It was SO crazy. You have my total sympathy!

Personally, I'd say that if it helps them to be off of it, keep doing what you're doing, because it seems like you are doing the right thing. Probably wouldn't hurt seeing an allergist, just in case, if you are concerned, however.

For celiac testing, they have to BE on gluten to be tested, for 6 weeks straight before the test I understand, so you'd have to make her feel sick again to get the test done. Many parents I know don't feel they need to know so badly that they want their child to have to do that, so simply go with what they are doing, ya know? It's up to you if you feel a diagnosis will be helpful.

Archived

This topic is now archived and is closed to further replies.

Go to topic listing
  • Celiac.com Sponsor (A19):


  • Member Statistics

    • Total Members
      131,959
    • Most Online (within 30 mins)
      7,748
    jenny44
    Newest Member
    jenny44
    Joined
  • Celiac.com Sponsor (A20):

  • Forum Statistics

    • Total Topics
      121.5k
    • Total Posts
      1m
  • Celiac.com Sponsor (A22):



  • Celiac.com Sponsor (A21):


  • Upcoming Events

  • Posts

    • Scott Adams
      Does anyone here also have Afib

      By Scott Adams · Posted

      If black seed oil is working for his Afib, stick to it, but if not, I can say that ablation therapy is no big deal--my mother was out of the procedure in about 1 hour and went home that evening, and had zero negative effects from the treatment. PS - I would recommend that your husband get an Apple watch to monitor his Afib--there is an app and it will take readings 24/7 and give reports on how much of the time he's in it. Actual data like this should be what should guide his treatment.
    • Jacki Espo
      Covid caused reoccurrence of DH without eating gluten

      By Jacki Espo · Posted

      This happened to me as well. What’s weirder is that within a couple hours of taking paxlovid it subsided. I thought maybe I got glutened but after reading your post not so sure. 
    • Mari
      New Celiac Mama in My 30s

      By Mari · Posted

      Hi Tiffany. Thank you for writing your dituation and  circumstancesin such detail and so well writte, too. I particularly noticed what you wrote about brain for and feeling like your brain is swelling and I know from my own experiences that's how it feel and your brain really does swell and you get migraines.    Way back when I was in my 20s I read a book by 2 MD allergist and they described their patient who came in complaining that her brain, inside her cranium, was swelling  and it happened when she smelled a certain chemical she used in her home. She kept coming back and insisting her brain actually swelled in her head. The Drs couldn't explain this problem so they, with her permission, performed an operation where they made a small opening through her cranium, exposed her to the chemical then watched as she brain did swell into the opening. The DRs were amazed but then were able to advise her to avoid chemicals that made her brain swell. I remember that because I occasionally had brain fog then but it was not a serious problem. I also realized that I was becoming more sensitive to chemicals I used in my work in medical laboratories. By my mid forties the brain fog and chemicals forced me to leave my  profession and move to a rural area with little pollution. I did not have migraines. I was told a little later that I had a more porous blood brain barrier than other people. Chemicals in the air would go up into my sinused and leak through the blood brain barrier into my brain. We have 2 arteries  in our neck that carry blood with the nutrients and oxygen into the brain. To remove the fluids and used blood from the brain there are only capillaries and no large veins to carry it away so all those fluids ooze out much more slowly than they came in and since the small capillaries can't take care of extra fluid it results in swelling in the face, especially around the eyes. My blood flow into my brain is different from most other people as I have an arterial ischema, adefectiveartery on one side.   I have to go forward about 20 or more years when I learned that I had glaucoma, an eye problem that causes blindness and more years until I learned I had celiac disease.  The eye Dr described my glaucoma as a very slow loss of vision that I wouldn't  notice until had noticeable loss of sight.  I could have my eye pressure checked regularly or it would be best to have the cataracts removed from both eyes. I kept putting off the surgery then just overnight lost most of the vision in my left eye. I thought at the I had been exposed to some chemical and found out a little later the person who livedbehind me was using some chemicals to build kayaks in a shed behind my house. I did not realize the signifance  of this until I started having appointments with a Dr. in a new building. New buildings give me brain fog, loss of balance and other problems I know about this time I experienced visual disturbances very similar to those experienced by people with migraines. I looked further online and read that people with glaucoma can suffer rapid loss of sight if they have silent migraines (no headache). The remedy for migraines is to identify and avoid the triggers. I already know most of my triggers - aromatic chemicals, some cleaning materials, gasoline and exhaust and mold toxins. I am very careful about using cleaning agents using mostly borax and baking powder. Anything that has any fragrance or smell I avoid. There is one brand of dishwashing detergent that I can use and several brands of  scouring powder. I hope you find some of this helpful and useful. I have not seen any evidence that Celiac Disease is involved with migraines or glaucoma. Please come back if you have questions or if what I wrote doesn't make senseto you. We sometimes haveto learn by experience and finding out why we have some problems. Take care.       The report did not mention migraines. 
    • Mari
      My only proof

      By Mari · Posted

      Hi Jmartes71 That is so much like my story! You probably know where Laytonville is and that's where I was living just before my 60th birthday when the new Dr. suggested I could have Celiacs. I didn't go on a gluten challange diet before having the Celiac panel blood test drawn. The results came back as equivical as one antibody level was very high but another, tissue transaminasewas normal. Itdid show I was  allergic to cows milk and I think hot peppers. I immediately went gluten free but did not go in for an endoscopy. I found an online lab online that would do the test to show if I had a main celiac gene (enterolab.com). The report came back that I had inherited a main celiac gene, DQ8, from one parent and a D!6 from the other parent. That combination is knows to sym[tons of celiac worse than just inheriting one main celiac gene. With my version of celiac disease I was mostly constipated but after going gluten-free I would have diarrhea the few times I was glutened either by cross contamination or eating some food containing gluten. I have stayed gluten-free for almost 20 years now and knew within a few days that it was right for me although my recovery has been slow.   When I go to see a  medical provide and tell them I have celiacs they don't believe me. The same when I tell them that I carry a main celiac gene, the DQ8. It is only when I tell them that I get diarrhea after eating gluten that they realize that I might have celiac disease. Then they will order th Vitamin B12 and D3 that I need to monitor as my B12 levels can go down very fast if I'm not taking enough of it. Medical providers haven't been much help in my recovery. They are not well trained in this problem. I really hope this helps ypu. Take care.      
    • knitty kitty
      Does anyone here also have Afib

      By knitty kitty · Posted

      Fascinating.
×
×
  • Create New...

Important Information

NOTICE: This site places This site places cookies on your device (Cookie settings). on your device. Continued use is acceptance of our Terms of Use, and Privacy Policy.